I need help!

[lillymae]

Iris atrophy of the left eye, lenticular sclerosis OU
Mentation: Depressed
Head Posture: intermittent left head tilt
Gait: Mildly ataxic with inward rotation of the left thoracic limb
Diffuse hydrocephalus, Caudal occipital malformation syndrome, CSF cyst off the 3rd ventrical with compression of the cerebellum, Syringohydromyelia diffuse cervical spinal cord, Hyperintensity in the dorsal spinal cord at C1 with a focal cystic area ( suspected subarachniod cyst)
Displacement of the cerebellum with possible mild herniation of the cerebellum through the foramen magnum
DIAGNOSIS 1. Hydrocephalus
2.Caudal occipital malformation syndrome
3. Syringohydromyelia
4. Subarachnoid cyst C1
Meds Compuonded Theophylline 25 mg) 0.1 ml 2 x a day
Omeprizole 1/4 tab 1 x a day
Prednisone 1st wk 1mg/1 tab every 12 hrs
2nd wk 0.5 mg/ 1/2 tab every 12 hrs This she took for the rest of her life. She weighed between 4 3/4 and 5 lbs back and forth.

[lillymae]

Also my dog had some wheezing and am pretty sure that's what the Theophylline was for. And I know what Deb means by Rude. That's how they are at WSU when you call but when you get there it's a whole diff story. And I think I figured out why you have a say so in who treats your pet at WSU also. Because they are only place here to get an MRI and lots of other things. Maybe that's the reason for getting to choose.

[mly]

Originally Posted by lillymae

Iris atrophy of the left eye, lenticular sclerosis OU
Mentation: Depressed
Head Posture: intermittent left head tilt
Gait: Mildly ataxic with inward rotation of the left thoracic limb
Diffuse hydrocephalus, Caudal occipital malformation syndrome, CSF cyst off the 3rd ventrical with compression of the cerebellum, Syringohydromyelia diffuse cervical spinal cord, Hyperintensity in the dorsal spinal cord at C1 with a focal cystic area ( suspected subarachniod cyst)
Displacement of the cerebellum with possible mild herniation of the cerebellum through the foramen magnum
DIAGNOSIS 1. Hydrocephalus
2.Caudal occipital malformation syndrome
3. Syringohydromyelia
4. Subarachnoid cyst C1
Meds Compuonded Theophylline 25 mg) 0.1 ml 2 x a day
Omeprizole 1/4 tab 1 x a day
Prednisone 1st wk 1mg/1 tab every 12 hrs
2nd wk 0.5 mg/ 1/2 tab every 12 hrs This she took for the rest of her life. She weighed between 4 3/4 and 5 lbs back and forth.

I would love to compare Bella's notes with yours once I get it in the mail. Also, I wish I was able to give her omeprizole in tabs but unfortunately, it's compounded for a lot more money.

[lillymae]

I just remembered something else they told me. The Neuro said the spinal fliud was biulding up just a tiny bit at the top of the spine in the neck before going into the brain also caused by the deformity. Hmmm wonder that's not on the report. He said it was very slight but it was there.

[lillymae]

Originally Posted by mly

I would love to compare Bella's notes with yours once I get it in the mail. Also, I wish I was able to give her omeprizole in tabs but unfortunately, it's compounded for a lot more money.

Yea I don't get that because Bella weighs about the same as Sassy did. And for most of the time after she started the Pred she stayed at 5 lbs. I would ask about that too. Maybe Bella has more of a blockage then Sassy did. Or maybe it's not this prob at all. But it sure looks and sounds the same. I just hope she responds to the meds and they get it figured out soon. And keep an eye on her shaking because that's a sign of pain , probably a headache from the fluid build up. That's what started happening to Sassy a few days before she passed and they could no longer control it with meds. I used to buy the omeprazole at Wal-mart in tab form.
How is Bella doing today ?

[lillymae]

Huh, I just found the total. I was wrong it was $1571.66 They had to get that 66 cents you know. That must have been for the free coffee and doughnuts, lol. I'll tell you that was the cleanest place I've ever seen though and HUGE it's like a whole city.

[dwerten]

Originally Posted by mly

I would love to compare Bella's notes with yours once I get it in the mail. Also, I wish I was able to give her omeprizole in tabs but unfortunately, it's compounded for a lot more money.

i thought you found a compounding pharmacy to do for much cheaper?

[dwerten]

Originally Posted by lillymae

Huh, I just found the total. I was wrong it was $1571.66 They had to get that 66 cents you know. That must have been for the free coffee and doughnuts, lol. I'll tell you that was the cleanest place I've ever seen though and HUGE it's like a whole city.

lol yeah that reminds me when dex was in the hospital i took them krispy kremes daily loll with a pic of him saying thanks for taking care of me and said SAVE DEXTER DONUTS lollllll They loved it and dex was the hit so i knew they would take good care of him as sometimes when you do a little extra to appreciate them they go above and beyond i feel so when i call now they are very attentive and help us. Not to mention the plasma we paid for lolllll He also wore his

M.D. Mad Dogtor shirt when he went in for follow up and the doctors all took pics with him lollll

[lillymae]

Originally Posted by dwerten

lol yeah that reminds me when dex was in the hospital i took them krispy kremes daily loll with a pic of him saying thanks for taking care of me and said SAVE DEXTER DONUTS lollllll They loved it and dex was the hit so i knew they would take good care of him as sometimes when you do a little extra to appreciate them they go above and beyond i feel so when i call now they are very attentive and help us. Not to mention the plasma we paid for lolllll He also wore his

M.D. Mad Dogtor shirt when he went in for follow up and the doctors all took pics with him lollll

Hey Now ! you are too good. Kissing up can never be a bad thing either Love the shirt.

[dwerten]

Originally Posted by lillymae

Hey Now ! you are too good. Kissing up can never be a bad thing either

lol yep whatever to get my kids the best care - pucker up lollll

[mly]

Originally Posted by dwerten

i thought you found a compounding pharmacy to do for much cheaper?

Yeah I found a place that would do it for $27 instead of $45 except if i was doing tablets, I can buy a box for about $30/42 (20mg) tab. The liquid I get at the compounding pharmacy is only equivalent to about 1.5 (20mg) tab.

Hope that makes sense.

[mly]

Originally Posted by lillymae

Huh, I just found the total. I was wrong it was $1571.66 They had to get that 66 cents you know. That must have been for the free coffee and doughnuts, lol. I'll tell you that was the cleanest place I've ever seen though and HUGE it's like a whole city.

Gezz..that's pretty darn good. I wish I could have paid that amount instead of about $2500.

[mly]

lillymae, I think you may be right and Bella has the same thing as yours. i received bella's medical records today and i'm going through it. there's a lot of terms and stuff that i'm not well educated on. from what i can tell, it is what your little one has but hopefully you and anyone else out there can clarify it in simpler form for me.

There's a lot of information so hopefully just this part can help.

MRI IMPRESSIONS:
"there is increased signal intensity on the t2 weighted images starting in the left caudate nucleus and continuing through the thalamus and mid-brain. there is also a cystic change within the thalamus associated with the previous described changes. the ventricles are moderate to severely enlarged symmetrically with involvement of the lateral, third and fourth ventricles. the cerebellum is displaced caudally by a fluid fill cyst (intracranial intra-arachnoid cyst) and the cerebellum is flattened caudally with a small cerebuellar herniation through tthe foramen magnum. there is increased signal intensity on the t2 weighted images involving the right pariental lobe. no abnormalities are noted of the structures that are seen outside the cranium. after the injection of contrast there is a heterogenous contrast enhancement pattern associated with the previous described thalamic changes. no unusual meningeal enhancement is noted. these changes are consistent with multifocal disorder involving the thalamus and right parietal lobe. a cystic change that results in caudal displacement of the cerebellum with cerebellar herniation results in secondary hydrocephalus involving the entire ventricular system. the differentials include infectious inflammatory previous injury with secondary necrotic changes."

MRI IMPRESSIONS:
"increased signal change is noted within the spinal cored of the vertebral bodies of c3 through c4. these changes are consistent with byrosyringomyelia associated with altered cerebrospinal fluid flow.



Doesn't this sound the same as your little one? If so, please give me more info on your little one such as age of diagnoses etc. Anything will help.

Thanks!

[dwerten]

how is she feeling the last few days any improvement?

[mly]

Another thing that might be helpful:

NEUROLOGICAL EXAMINATION:

gait: ambulatory tetraparesis, hypermetric movements all limbs, right more involved than the left, righ sided hemiparesis

mentation: normal
cranial nerves: right head tilt, absent menace OD, no other deficits noted
placing reaction: thoracic limbs-normal Lt, very slow Rt
Pelvic limbs- normal Lt, very slow Rt
segmental reflexes: thoracic limbs-normal
pelvic limbs-normal
pain sensation: thoracic limbs (deep and superficial)-normal
pelvic limbs (deep and superficial)-normal
cutaneous trunci: normal
perineal response: normal
palpation of the head/neck/spine: non-painful

PROBLEM LIST:
-ambulatory tetraparesis with moderate ataxia
-right head tilt
-absent menace OD
-right sided hemiparesis
-hypermetric limb movements Rt worse than the Lt
-bilateral medical patella luxation