lillymae, I think you may be right and Bella has the same thing as yours. i received bella's medical records today and i'm going through it. there's a lot of terms and stuff that i'm not well educated on. from what i can tell, it is what your little one has but hopefully you and anyone else out there can clarify it in simpler form for me.
There's a lot of information so hopefully just this part can help.
MRI IMPRESSIONS:
"there is increased signal intensity on the t2 weighted images starting in the left caudate nucleus and continuing through the thalamus and mid-brain. there is also a cystic change within the thalamus associated with the previous described changes. the ventricles are moderate to severely enlarged symmetrically with involvement of the lateral, third and fourth ventricles. the cerebellum is displaced caudally by a fluid fill cyst (intracranial intra-arachnoid cyst) and the cerebellum is flattened caudally with a small cerebuellar herniation through tthe foramen magnum. there is increased signal intensity on the t2 weighted images involving the right pariental lobe. no abnormalities are noted of the structures that are seen outside the cranium. after the injection of contrast there is a heterogenous contrast enhancement pattern associated with the previous described thalamic changes. no unusual meningeal enhancement is noted. these changes are consistent with multifocal disorder involving the thalamus and right parietal lobe. a cystic change that results in caudal displacement of the cerebellum with cerebellar herniation results in secondary hydrocephalus involving the entire ventricular system. the differentials include infectious inflammatory previous injury with secondary necrotic changes."
MRI IMPRESSIONS:
"increased signal change is noted within the spinal cored of the vertebral bodies of c3 through c4. these changes are consistent with byrosyringomyelia associated with altered cerebrospinal fluid flow.
Doesn't this sound the same as your little one? If so, please give me more info on your little one such as age of diagnoses etc. Anything will help.
Thanks! |