Please pray for my husband Mike,

[AbbysMom08]

Will keep your husband, you and Romeo in my prayers.

[gidget529]

Poor little Romeo and his daddy. We will be praying these two guys are feeling better soon and the dr's can get these problems under control. It is good to hear hubby has not had to be drained in a month. Sorry he is back in the hospital for a stress test. We will be praying everything is ok.

[Buster Brown]

Oh I am so sorry to hear Romeo is dealing with the same issues as Mike. I wish only the best for you and your boys. Sending out prayers and healing thoughts. Best wishes.

[TxVicki]

Brenda I'm so sorry for all that you and Mike dealing with and now sweet Romeo.
Praying for both of them and you as well.
Being the care giver please take of yourself. Prayers and BIG HUG's to you.

[yorkieusa]

Sending more prayers for Mike and for Romeo. I know you must be exhausted.

[brendarash]

Hello everyone, I wanted to update all of you on Mike and Romeo. Well, Mike came home almost 3 weeks ago. I got a call on Tue. afternoon telling me that Mike was leaving the next day. I could not believe it, because Mike can not stand at all, now. They would not get him up at all. They would every few days take him to PT. I would question them, every few days,What is the reason why he was not having pt daily, the answer was always the same, they are short staffed. I got so tired of hearing that I would run in there ever day to be there at PT time and they would have him do a few leg lifts while sitting in his wheel chair and back to his room he would go.That's is where he would be for the rest of that day and the following day as well. Out of 68 days they got him up maybe 7 times and that is it. So you can only imagine how surprised when I heard he was coming home. I was so concerned, with how I, by myself is going to take care of him. Its been almost 3 weeks now ( Wed.) and I am so busy.He is bed riddened. When Mike first came home he could not pull himself up from a lying down to sitting up position. He could not put either leg back up on the bed once lying down. I worked with him and after the first week, P.T. now comes in 2 times a week,as well. The nurse was coming three times a week to watch him closely. Last Thursday, Mike stood and transferred to his wheel chair. I work with him every few hours, and he finally did it. I did not ever think I would see that again. He could only take one step and he had to sit down. Last Tuesday he stood only 10 seconds 5 times. He has not been drained since August. I am happy, because I have no way of getting him in a car.He can not stand long enough to transfer from the wheel chair to the car.He will need to be drained real soon. He is getting bigger in the belly, but we are trying to take it off with meds without his kidneys failing, again. So far so good. Now Romeo, After many test, The vet decided Romeo has a thyroid problem. All the other test came back normal. Thank goodness. So he takes a thyroid pill two times a day.Please continue to pray for Mike, while he starts working hard to get stronger to walk so he will be able to go back to Georgetown to be reevaluated for a liver transplant.Thank you all so much.

[AbbysMom08]

So glad to see an update.
I am appalled about the issue with P.T.
I can't understand that at all. Being short staffed is no excuse.
I work in the health care field so I am aware of staffing issues and that still does not excuse the fact that Mike didn't get as much P.T. as he should have.
Just think, if he would have had it 2 times a day all along, how much better he would be doing. Sad that he had to come home and you had to be the one to give him what he has needed.
It really sounds like you have been very busy.
You sound like an awesome caregiver. (Now maybe you need a spa day).
Glad to hear that Romeo is doing ok and that it was something treatable.
I will continue to keep the three of you in my prayers.
Take care.

[Buster Brown]

I am happy that Mike is home with his SUPER CAREGIVER! but I really wish he had had better PT at the rehab so you would not be in such a difficult position. Are there hoists that you could rent to help with the transfer? I would think there might be something to help handicapped people get into cars so maybe that would help you transfer Mike to the car. I hope the thyroid medication solves Romeos' issues. You, Mike, and Romeo are always in my prayers. Praying for strength for you all and continued improvement!

[Patti]

I will keep you both in my prayers. You must be so exhausted. Hugs

[Connie]

Prayers for you, Mike and Romeo. My heart goes out to you and bless your heart for all the TLC you give to Mike and Romeo. *HUG*

[brendarash]

Originally Posted by Buster Brown

I am happy that Mike is home with his SUPER CAREGIVER! but I really wish he had had better PT at the rehab so you would not be in such a difficult position. Are there hoists that you could rent to help with the transfer? I would think there might be something to help handicapped people get into cars so maybe that would help you transfer Mike to the car. I hope the thyroid medication solves Romeos' issues. You, Mike, and Romeo are always in my prayers. Praying for strength for you all and continued improvement!

Buster Brown, Thank you so much for the kind words. When Mike was released from the rehab, They delivered a lift to help with getting him in and out of bed. It will not allow me to put him in the cars front seat. We tried that when they released him to me at the rehab, They said, they were unable to help me put him in the car. I did everything I could think of to get him in that van. It is almost impossible to put a full grown man that can not stand on his legs in a van with no help. I worked on trying to get him to stand for over an hour, I pulled him up, and He fell and I caught him with my knee. That is when I went back in and said, Okay you all either get me a lift or I am bringing him back in here and I am going home. They then brought the lift out and assisted me in getting Mike on the back floor of the mini van, for the 45 min drive home. I had to pull his legs out of the van once home, put the lift sling on, pump him up, and into the wheel chair then push him into the house lifted him back up and into bed.I asked them if they could help me get him in the van when I first got there to pick Mike up.That is when they said, they could not because they would be responable if he fell, I said you mean like when he fell out of the bed when you asked him to get up on his own ? That kind of fall... They did not know what to say.They even had the nerve to blame that on Mike also.What a nightmare. He stood for about 15 seconds today and turned and sat in his wheelchair. What a big improvement. He has been home for 3 weeks yesterday and they had him for 68 days and he was able to stand and transfer when he went in there. It makes no since. Thanks so much

[TxVicki]

Brenda I just cry every time I read an update. It makes me so very, very mad the way you two have been treated. I do know how very difficult this is for you. My sister's husband has been on the transplant list for right at a year.

I do want to make a suggestion, not sure if you have thought about this or not. Have thought about seeing if Hospice could come in and help? Hospice is not just for people who are dying, they are also for people who have a serious illness. They can be of some possible help to you.
They can give you some time to take care of yourself as well. It's so very hard on the care givers and they most certainly need a break at times.

Just know you and Mike are in my thoughts and prayers.

[brendarash]

Vicki, Thank you so much for the thoughts and prayers. Mike was not treated as well as he should of been, as far as PT is concerned. The staff (techs) were great. I hired one of the girls that worked with Mike a lot, to come in and help me if I have to go some where. Her name is Denise. She happened to ask me the other day if I felt they gave Mike the care he needed. I said to be truthful, No. She said do you know they said they have been trying to fix the notes and records because they know they did wrong by Mike. I said that is not right, she said all of the girls that worked with Mike said he is so nice that he would not say anything. So, If he was sleeping they would come in to his room at 9 am to get him, ask him if he was ready for Pt he would say can you please let me get awake a bit, they would say sure but they would not ever come back to get him.I had ask them when he first got there to have the afternoon Pt. That was set up that way. They knew that but Denise said they did that on purpose. That was they did not have to stand him up. I could not believe it when she told me that. She said I should report them to the main group of people in charge. I do not want to do that, because it will not help Mike at all now. the damage is done.Is your brother in law on the wait list for a liver? Please continue to pray for Mike. Thank you so much. Mike said to Thank everyone as well.

[TxVicki]

Originally Posted by brendarash

Vicki, Thank you so much for the thoughts and prayers. Mike was not treated as well as he should of been, as far as PT is concerned. The staff (techs) were great. I hired one of the girls that worked with Mike a lot, to come in and help me if I have to go some where. Her name is Denise. She happened to ask me the other day if I felt they gave Mike the care he needed. I said to be truthful, No. She said do you know they said they have been trying to fix the notes and records because they know they did wrong by Mike. I said that is not right, she said all of the girls that worked with Mike said he is so nice that he would not say anything. So, If he was sleeping they would come in to his room at 9 am to get him, ask him if he was ready for Pt he would say can you please let me get awake a bit, they would say sure but they would not ever come back to get him.I had ask them when he first got there to have the afternoon Pt. That was set up that way. They knew that but Denise said they did that on purpose. That was they did not have to stand him up. I could not believe it when she told me that. She said I should report them to the main group of people in charge. I do not want to do that, because it will not help Mike at all now. the damage is done.Is your brother in law on the wait list for a liver? Please continue to pray for Mike. Thank you so much. Mike said to Thank everyone as well.

Oh my goodness I can't believe they are changing the notes in his chart. That is so very wrong. I also can't believe that they wouldn't come back and get him for afternoon PT.
I also believe that something should be said, like you said it won't do Mike and good now, but it may help someone in the future. I'm glad that Denise is so good to you and Mike.
Yes my Brother In Law is on the wait list for a Liver at Methodist Dallas Medical Center.
Prayers will continue for Mike and you.

[Buster Brown]

Originally Posted by TxVicki

Oh my goodness I can't believe they are changing the notes in his chart. That is so very wrong. I also can't believe that they wouldn't come back and get him for afternoon PT.
I also believe that something should be said, like you said it won't do Mike and good now, but it may help someone in the future. I'm glad that Denise is so good to you and Mike.
Yes my Brother In Law is on the wait list for a Liver at Methodist Dallas Medical Center.
Prayers will continue for Mike and you.

I agree how horrible that they knowingly defrauded Mike and who knows how many others from PT because they knew how to scam it. It make me furious that they are toying with people's lives. I am so sorry. I know you are dealing with so much but I think they should be reported. It must be bad is someone confessed to you because they felt so bad. I am so sorry for you, Mike and all the others.
Hugs and positive thought to you and Mike.