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Old 03-05-2013, 04:39 PM   #1
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Default Bo has lymphangiectasia/ ple

I posted on here earlier about bo's condition and Lady Jane has been very helpful with this disorder. This is my situation. My husband and I have took bo to the vet several times. His condition isn't getting much better and we can't afford any more trips. The vet is working with us and calling a specialist about what foods he can have to help get him better. His diarehha sorry for spelling is much better and he was eating good but losing weight. He has lost 2 lbs. in a week and his energy level is bad. He is still on his meds and the vet gave him a b 12 shot. We are not ready to put him down so what it boils down to is doing a lot of research. I know his diet is the key to nursing him back. I have been reading savelouie and several people whose dogs have this disease give them Spirulina. Is anyone familiar with this supplement. Bo is starting to eat less and less. Right now I need to get his energy level up so he will eat. It is killing my husband and I to see him just lay and not want to get up much. Any advice is greatly appreciated.
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Old 03-05-2013, 04:55 PM   #2
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I don't know if this will help but I did a quick search on google for 'what is the best diet for a dog with Lymphangiectasia?' and it brought up several links, maybe there is something there that will help you...here is the page I got:

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I will keep all of you in my thoughts and prayers...
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Old 03-28-2013, 09:17 PM   #3
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Maybe this support group can help: K9KIDNEYS : for owners of dogs with Kidney Disease
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Old 03-28-2013, 10:17 PM   #4
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Joining a kidney group is going to be futile in my opinion if your pup has lymphangectasia...as it has to do with the intestines, not the kidneys. I am not aware of any lymphangectasia groups on yahoo but there could be some. You might want to search for one.

Does your vet have Bo on any meds at all? Diet is very important, but so are medications. Cookie was on antibiotics and prednisone at first...she remains on prednisone and will for the rest of her life. She takes a low dose every other day.

Lymphangectasia is difficult to get under control if you cannot get a pup to eat. That is one of the biggest challenges. There is a medication that can help with his appetite and that is mirtazapine. If you have not tried it, I would highly suggest you discuss it with your vet.

As for diet....Royal Canin L/F .. that is their gastrointestinal diet was the first suggested to me. I opted to home cook but that food was highly recommended.

I will keep Bo and you in my thoughts and prayers. I am so sorry he is feeling so badly.
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Old 03-28-2013, 10:30 PM   #5
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Maybe this support group can help: K9KIDNEYS : for owners of dogs with Kidney Disease
Should have explained better: I did a search for Lymphangietasia/PLE on Yahoo Groups for you. This K9Kidney (see link above) group lists PLE as a topic they discuss, so I thought it might be helpful to you:

Description

Mission Statement K9KIDNEYS is a high volume list for owners of dogs suffering from one or more forms of kidney disorders,e.g. Canine Kidney Disease, Acute or Chronic Renal Failure, Juvenile Renal Dysplasia, Glomerulonephritis, Renal Insufficiency, PLN, PLE. The emphasis is on kidney treatment options, kidney diets for dogs and other necessary “tips and tricks” in the management of the renal dog.
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Old 03-29-2013, 01:25 AM   #6
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I have two pups with protein losing enteropathies. One is kidney related and one is intestinal related; and honestly, even though they SAY that they discuss PLE I would personally not go there for the simple reason that their MAIN focus is on kidneys.

Different conditions in my way of thinking and my pups are on two totally different protocols.

Nothing against a support group..I just believe that if I had a pup with intestinal issues, I would not want to be on a forum with a heavy focus on kidneys.
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Old 03-29-2013, 01:36 AM   #7
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OK...my wording above is weird...and it was too late to edit.

What I am trying to say is that while lymphangectasia IS a PLE, they say their focus is on kidneys. PLN IS a PLE, so I think that is what they meant. They don't mention anything about lymphangectasia. While I am sure they would be welcoming to someone, I really don't think that the focus would be what the OP is looking for.

I did a search on the web and there are a couple of forums out there that discuss lymphangectasia. Might try to google search yourself op...I don't think YT rules allow us to post other forums.
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Old 03-29-2013, 03:57 AM   #8
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The other thing you can do is visit the Balace It website free recipe generator. You can select the condition your dog has (fat intolerant, lymphangiectasia). The nutritionist at BI will get approval from your veterinarian and once your vet approves it you will have a customized home cooked diet for YOUR dog and you simply purchase the balance it supplement. This is not like a consult with a vet nutritionist but if you can't afford a consult ($250 approx) then this is another option. The website is https://secure.balanceit.com/tools/r...tor/index.php?
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Old 03-29-2013, 03:58 AM   #9
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Prayers for Bo..........I am so sorry he is ill.
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Old 03-29-2013, 04:03 AM   #10
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Your vet also can set up an account and generate the recipe for you instantaneously for free. If you do it it takes 3 days.
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Old 03-29-2013, 04:08 AM   #11
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OP, I just re read your previous thread about this. Are you SURE your pup has lymphangectasia? You had said previously that your friend thought that was it...that you did not know.
I am assuming you cannot afford to get the right testing done since you said in this thread that money is an issue, but just concerned.....does your vet think this is what it is?
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Old 03-29-2013, 04:09 AM   #12
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The other thing you can do is visit the Balace It website free recipe generator. You can select the condition your dog has (fat intolerant, lymphangiectasia). The nutritionist at BI will get approval from your veterinarian and once your vet approves it you will have a customized home cooked diet for YOUR dog and you simply purchase the balance it supplement. This is not like a consult with a vet nutritionist but if you can't afford a consult ($250 approx) then this is another option. The website is https://secure.balanceit.com/tools/r...tor/index.php?
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Old 03-29-2013, 04:22 AM   #13
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OK...my wording above is weird...and it was too late to edit.

What I am trying to say is that while lymphangectasia IS a PLE, they say their focus is on kidneys. PLN IS a PLE, so I think that is what they meant. They don't mention anything about lymphangectasia. While I am sure they would be welcoming to someone, I really don't think that the focus would be what the OP is looking for.

I did a search on the web and there are a couple of forums out there that discuss lymphangectasia. Might try to google search yourself op...I don't think YT rules allow us to post other forums.
Ok..I am having health issue with one of my dogs..the issue is kidneys. I did join this site and the mods are wonderful!!! But Linda is right in that it is a lot a LOT of information being thrown at you. So far I see all related to kidney. I made a new email addy so it is all going to one address and I then can sort through it, otherwise it would be over whelming and I get over whelmed very easy.

On the site there are files that have recipes and such.. but please be careful until you know what you are doing (I am saying that to me more than you)

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The other thing you can do is visit the Balace It website free recipe generator. You can select the condition your dog has (fat intolerant, lymphangiectasia). The nutritionist at BI will get approval from your veterinarian and once your vet approves it you will have a customized home cooked diet for YOUR dog and you simply purchase the balance it supplement. This is not like a consult with a vet nutritionist but if you can't afford a consult ($250 approx) then this is another option. The website is https://secure.balanceit.com/tools/r...tor/index.php?
This is excellent advise!!!! I have been homecooking and using the balance it recipes. You can get a free recipe and even a special generated recipe for $50.00. Once you fill out the information they will fax a permission request to your vet. OOp sorry.. just realized I was repeating Cathy...but you can see how happy I am with this vet and this site.

There is another vet..Cathy said it also.. that is a lot more. I think I will do that as soon as I get over the hump and am a little more stable emotionally. I also have spent some large vet bills and will keep doing it but trying to choose what is best for now.

BTW.. have you applied for care credit? I have, havent used it yet, but just knowing its there helps me feel a little calmer!

Good luck
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Old 03-29-2013, 04:31 AM   #14
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I am so sorry to hear about Bo. I understand what you are feeling and going through. Columbo was just diagnosed with PLE, but his is severe IBD. We are fortunate it had not yet progressed to lymphangectasia, although some of his villi looked to be headed in that direction. Fortunately, he is responding to his steroid & antibiotic treatment so far. We almost lost him 3 weeks ago when his albumin level dropped so low he had a pleural effusion. Before that, we didn't know he was ill. LadyJane may have already told you, but she posted a link on another thread to the vet nutritionists in the country. There are 2 in my state and they are located at the vet school. There are propably some in Tennessee, but you could do a phone consult with one in any state. If Columbo stops eating his prescription food, I will contact one. The phone consult looked very reasonably priced, maybe only around $50. Columbo has been on Purina EN for the past 3 weeks, but the internist has ordered a new food for him that should be in today. I don't know what it is yet, other than it is hypoallergenic and venison based. She said the Purina EN is very bland & easy on the intestines, but similar to a chicken & rice diet nutritionally, so she is attempting to find a novel protein diet for him. Columbo is on a pretty high dose of steroids and it has given him a big appetite. He was taking 10mg a day, but on Monday, she reduced it to 7.5mg a day. Before that, he had stopped eating when he had the fluid. He also gets the B12 shots. He's lost close to 2lbs, but not as quickly as Bo has. Fortunately, Columbo wasn't skinny to begin with. Have you looked into any local groups in your area that can help with vet bill assistance? There is one not far from us called the Mosby Foundation that is wonderful. There is a link on Yorkie Talk to some groups, as well. It sounds like your vet is doing everything he can, but I know seeing an internist was a godsend for Columbo. I am praying that Bo can get this disease under control.
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Old 03-29-2013, 05:28 AM   #15
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Ok..I am having health issue with one of my dogs..the issue is kidneys. I did join this site and the mods are wonderful!!! But Linda is right in that it is a lot a LOT of information being thrown at you. So far I see all related to kidney. I made a new email addy so it is all going to one address and I then can sort through it, otherwise it would be over whelming and I get over whelmed very easy.

On the site there are files that have recipes and such.. but please be careful until you know what you are doing (I am saying that to me more than you)



This is excellent advise!!!! I have been homecooking and using the balance it recipes. You can get a free recipe and even a special generated recipe for $50.00. Once you fill out the information they will fax a permission request to your vet. OOp sorry.. just realized I was repeating Cathy...but you can see how happy I am with this vet and this site.

There is another vet..Cathy said it also.. that is a lot more. I think I will do that as soon as I get over the hump and am a little more stable emotionally. I also have spent some large vet bills and will keep doing it but trying to choose what is best for now.

BTW.. have you applied for care credit? I have, havent used it yet, but just knowing its there helps me feel a little calmer!

Good luck
You are wise to be wary of the recipes on that yahoo group. No clue who has written them and I have not seen them, but I would think many or all are written by lay people. Honestly, I do not think a vet nutritionist would ever release a diet like that because they need to know more about the pup prior to doing a diet for one. I don't know who wrote them but if they did not take into account the size of the dog and body condition, I would run away.

That's just me...I like to know that not only am I giving the right foods for my pups...but also the correct amounts of each and also the total so that he/she is helped to gain and/or maintain proper body size and condition.
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