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Thanks. I have been assigned a nurse coordinator by my dh insurance so I will see what she can help with. Ken does not want a feeding tube so between that and his oncologist not wanting one I can't do anything. We see the oncologist Tuesday so we will see about palliative care. I am going to do a little research into the different Hospices around here. The one we had for my dad was not good. But my friend had one for 9 months for her mother and said they were great. I am still praying for a miracle! |
Miracles still happen, even in hospice care. Keep up your hope that any day this disease could knuckle to the treatment if those cancer cells start to mutate & lose their ability to beat the drugs & other treatment! Any little mutation could start the weakness of those bad cells & subject them to the teatment! |
Continue prayers for you and Ken. |
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As always, I am praying your strength and comfort and better days ahead. |
....and sending you lots of {{{{{{hugs}}}}}}. :) |
Helping to keep an angel with you. Still praying for you and Ken:animal-pa |
Patti still hoping that things turn around for you & Ken hugs to you both |
Patti I think of you so much, your up front on my mind, keeping you and Ken in prayer. Diana my sister in law has just found out this has came back and she has decided not to go through anymore treatments. It just mind boggles me how so many scientific things can come to be, send man to the moon many years back then came all the outer space travels and yet how far have we really come in finding a cure for the so many devastateing diseases. I continue to pray for this much needed cause. Patti I pray you feel comfort from God and strength through HIM as you are also battling along with Ken through this most difficult time. It's the hardest time in life to watch our loved one struggle through an affliction and not be able to change what is going on, it is such a helpless feeling but God is always with us and HE will see us through all things. Love and Hugs, Patti and Jack |
Praying for you both and sending big hugs and Love.... |
Thinking of Ken and you and sending prayers. |
Sending prayers and good wishes your way. God is good and miracles do happen! |
Patti, I'm so sad to see that Ken isn't doing well! I know that hospice is a scary thought but as someone who works daily with individuals with disabilities, let me tell you that it can literally be a life saver. Great hospice nurses have a wealth of information and experience gained from previous patients that may be able to help get Ken back to eating. They can also be really dedicated advocates for their patients and families with regards to communicating with the doctors (which I know from experience is insane). My mom has COPD and has been in and out of the hospital for the last 2 years. I have never been so frustrated as I have been in dealing with her doctors. Almost everytime she's been in ICU on the ventilator, I have had to DEMAND that they turn the sedation down so that I could get her to really orientate and communicate with her so she could focus on breathing and improve. So don't be afraid to literally harass his medical staff to get what you and Ken need! They have many patients and regardless of what people say, the "squeeky wheel" DOES get the oil. Lastly, no matter how hard I try to convince her otherwise, my mom does sometimes just feel like she'd be doing me a favor by giving up and she starts talking about refusing treatment. When you feel that bad, how can you help but be depressed? But she is very motivated by my tough love approach when she gets down like that. Everyone is different, but its what works for us. I've had to really be tough on her at times about eating and getting up and moving. She always ends up saying "If I ...., will you leave me alone." and I say "Yep!" I hate feeling like the bad guy but if it keeps her going I'll do whatever I have to... I hope that just a tiny bit of that will help you keep going! You are such a strong lady and I'll keep praying for both you and Ken. Lots of hugs and puppy kisses, from me and the puppy boys! |
Thanks. We met with the oncologist today and Ken was very alert, saying he felt more positive and looking forward to riding his Harley and that he was going to eat more and start walking some every day. I was just amazed at how positive he seemed. The oncologist said to see him again in 3 weeks and a CT scan in July. We get home and he won't eat, laying around same old thing. I am hoping he will indeed do what he told the doctor but it isn't looking good. He still will have hydration 3 days a week. If he doesn't start to eat I will check into Hospice. Thanks for sharing your experience Rebelbelle. |
Patti, I can imagine that today was an even greater rollercoaster of emotions for you. I pray he has more of these optimistic moments and that he does try to eat and walk every day. Sending prayers for your continued strength. |
Patti, I hear you, and fully understand what you are going through. The frustrations of caregiving, and the powerlessness of not being able to *make* someone do something. We can all only guess what we would do if we were the one with cancer, but honestly we can never really know how it feels to be the patient. Try to turn some of this over to God, and continue to give loving kindness and have hope. All of us here at YT continue to hold you and Ken in our thoughts and prayers. Hugs to you too! |
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