How Many Others Have Had a Positive Biopsy? Asking For Your Prayers.

[yorkietalkjilly]

Originally Posted by crystalsmom

I see you have some other issues so I would ask your Dr. before doing any of this as I will too.I took too long with this and my time ran out. I'll make it a bit shorter.

Low fiber diet about four days before the procedure. While fiber is normally important for colon health, it can cause problems during screening. Small pieces of nuts or grains can sometimes get clogged in the scope, they can also cover up the polyps they are looking for during the test.

About one day before the screening, you'll need to stop eating solid food and switch over to clear liquids like broth, apple juice, clear soda, popsicles and plain Jell-O without fruit.

Because most colonoscopies are done in the morning, many people follow a 'split prep. This involves drinking half the colon purge solution in the evening and half the other half in the morning. This gives it time to work and people seem to tolerate it better when it split up (maybe they meant spit up lol)

Hope this helps some, I was never told any of this 10 years ago but maybe they didn't realize the need for these things at that time.

Hope this helps you some.

Oh, thank you for that great advise and food and drink ideas. I will stay low fiber for a few days beforehand for sure. My GI doc says I have to go clear liquids two days prior to the test and gave me very specific directions for the "cleanse". Oh, joy! He did my last scope so he's basing his directions on that. Two whole days on clear liquids! Can you just imagine what fun days those will be? I'll be sick to death of broth and 7-Up, apple juice and lime jello!!! Oh, well, that's a ways down the road - I'll be worrying about that in a few weeks, haha. I guess my GI doc found a way to get my mind off worrying about radiation side effects, huh?

[sandy simpson]

Jeanie, do not worry about radiation side effects. You will be fine. There is no pain involved. You just lay on that table and after a few prayers, it is done! The only concern you have is that your skin may have a little burn but it won't if you use that cream right after. Call a pharmacist or ask a radiologist what cream to use. You will breeze right through this! Another mountain to climb but you never go alone-the Lord will never leave you or forsake you. Your life is in His hands. We are not to fear but walk in peace knowing He has your footsteps directed. The worse thing is that you will miss Tibbe and he will certainly miss you!

[BabyGirl Rosie]

Oh my goodness. I guess I missed this threads. Sending prayers your way!

[EarthAngel]

Jeanie, I have you in my prayers and thoughts that you are doing well. Hugs to you and Tibbe! God Bless

[Yorkieville200]

Originally Posted by yorkietalkjilly

That's wonderful news that Sheila is able to take a larger though tiny portion of the medicine for her bad pain. Even a little bit of help beats none at all, doesn't it! I'm so glad she's got that to help in some small way. Even with the side effects, it's good to get some respite from unremitting pain.

Your sweet feelings are returned - the very same I feel about getting to know you two on YT! Turns out even bad times bring about blessings unbounded and miracles turn up everywhere.

Sheila sounds as if she was very blessed to have survived that episode at the Cleveland Clinic, poor thing. Sounds awful and smacks of patient neglect and some degree of malpractice! She was very fortunate to have you to look out for her and to have you and those babies waiting for her when she was done with that awful test! I'll bet she won't be ever returning back there. Your both are always in my prayers. Take care, both of you.

Jeanie,

God watches over His children every moment. Sheila said she could feel His presence in the room with her, and she remained very calm.

I filed a complaint with the Patient Advocate, and she replied, "That is not the way the doctor remembered it". So, their Patient Advocate's are useless.

She loved our girls, more than her own life, and as much as I wanted to be in the Clinic with her, I knew, she would be stressed to the max, if I wasn't with our girls.

Members of her MS Support Group were trying to reach her, to tell het to "Run, not walk away from Cleveland Clinic", but it was too late, Sheila was already undergoing the tests, which by the way, were useless because she'd had too many cleanses.

No, we will never return there.

Jeanie, you are always in our thoughts & prayers.

Rich

[EarthAngel]

Jeanie, You are never far from my thoughts and prayers. Hope you are doing well, my friend.

[yorkietalkjilly]

Originally Posted by sandy simpson

Jeanie, do not worry about radiation side effects. You will be fine. There is no pain involved. You just lay on that table and after a few prayers, it is done! The only concern you have is that your skin may have a little burn but it won't if you use that cream right after. Call a pharmacist or ask a radiologist what cream to use. You will breeze right through this! Another mountain to climb but you never go alone-the Lord will never leave you or forsake you. Your life is in His hands. We are not to fear but walk in peace knowing He has your footsteps directed. The worse thing is that you will miss Tibbe and he will certainly miss you!

Originally Posted by BabyGirl Rosie

Oh my goodness. I guess I missed this threads. Sending prayers your way!

Originally Posted by EarthAngel

Jeanie, I have you in my prayers and thoughts that you are doing well. Hugs to you and Tibbe! God Bless

Thank you all for your wonderful thoughts and prayers. I'm eternally blessed to have you. Here's an update:

Well, I'm stunned and haven't been online as I've been thinking and praying. Turns out the malignancy was extremely tiny, early and all of the malignancy was extracted by the needle biopsy and no malignancy seen in any of the lumpectomy tissue - at all!!! For this reason and my age and continuing hip and back problems and low grade osteoporosis, neither oncologist thinks I need either radiation or even Tamoxofen(sp?), given the odds in my case. I have a 4% less chance of getting a return of the malignancy on Tamoxofen at my age with my type of CA than I have if I don't take it. The odds are slightly better with radiation but not by much. They both like having the radiation as a card to play down the road should it be needed and think it is worth it to my health to not make me have the "overkill" of radiation right now. Apparently, the Tamoxofen isn't that much of a deterrent at my age with my type of tumor so they think the side effects would certainly come in to play. Anyway, I'm going to talk to the surgeon as they both are and we'll go from there.

It's certainly good news as I didn't ever ask about the type of or grade of malignancy I had - I usually do better with something scary the less I know for a while. So these last two days hearing about how early on it was caught and how blessed and lucky I was to have had the screening mammogram when I did have really been a lesson in preventive medicine and a pleasant shock. My surgeon was more like "it's cancer so out it comes and the protocol is for radiation or mastectomy....period" and asked me if I wanted particulars and I said "No, not right now, please". She did tell me it was very low grade and I was certainly rewarded for getting the screening mammogram when I did and because of it, would have less trouble all along and left it at that until I was ready to talk to her about it. So, now, I'll call her and discuss the radiation and Tamoxofen and see what she thinks.

I am so grateful to have caught this so early that I'm still a little shocked that I may not be getting further treatment and have got more thinking and consulting to do. I'll probably get a second opinion, too. But for now, I just don't want to do anything but sleep. haha!

[yorkietalkjilly]

Originally Posted by Yorkieville200

Jeanie,

God watches over His children every moment. Sheila said she could feel His presence in the room with her, and she remained very calm.

I filed a complaint with the Patient Advocate, and she replied, "That is not the way the doctor remembered it". So, their Patient Advocate's are useless.

She loved our girls, more than her own life, and as much as I wanted to be in the Clinic with her, I knew, she would be stressed to the max, if I wasn't with our girls.

Members of her MS Support Group were trying to reach her, to tell het to "Run, not walk away from Cleveland Clinic", but it was too late, Sheila was already undergoing the tests, which by the way, were useless because she'd had too many cleanses.

No, we will never return there.

Jeanie, you are always in our thoughts & prayers.

Rich

Wow, Rich, that's an awful thing to have to go through at such a time and then to have your complaint go no where is disappointing, to say the least. Poor Sheila. Well, all you can do it file the complaint and recount what happened to warn others and go forward, which you are doing. I pray she never has to deal with any doctor like that again! I'm still praying and hoping for better days ahead. Hugs to you both and stay courageous.

Originally Posted by EarthAngel

Jeanie, You are never far from my thoughts and prayers. Hope you are doing well, my friend.

God bless you for that, sweet one!

[EarthAngel]

Oh Jeanie! What wonderful news! So blessed to have caught it very early! God is good! Sending you a huge hug and will keep you in my prayers, my friend.

Love and Hugs,
Dyan

[Harrysmum]

Hee hee!!! Jeanie - such WONDERFUL news, we are so, SO happy for you!

Love and a great big hug from the 3 of us (by the way, Andy's op was over a year ago now but, fingers crossed, all seems to be well, thank God, and thank you for asking) xxx

[Yorkieville200]

Originally Posted by yorkietalkjilly

Wow, Rich, that's an awful thing to have to go through at such a time and then to have your complaint go no where is disappointing, to say the least. Poor Sheila. Well, all you can do it file the complaint and recount what happened to warn others and go forward, which you are doing. I pray she never has to deal with any doctor like that again! I'm still praying and hoping for better days ahead. Hugs to you both and stay courageous.



God bless you for that, sweet one!

Jeanie,

Yes, it was an awful thing to go through and have my complaint not taken seriously.

Sheila has a good friend in Florida who also has MS and said to Sheila one day, "I wish I could go to Cleveland Clinic" and Sheila told her, "No, I've been there enough times to tell you, that 1st, the neurologist I saw for the muscular problems in my legs, convinced my former neurologist that I did not have MS and 2nd, the G.I. Doc I saw there, just about killed me, running too many tests in 3 days".

Thankfully, a top spine specialist here, called a top MS Specialist and told her, "You really need to see this lady". The MS Specialist didn't see patients that didn't have a definite diagnosis. But she saw Sheila immediately, and hugged her & promised her, "I will never give up on you". She ran one test to be certain Sheila didn't have "Stiff Person Syndrome" and the next month, she saw Sheila, and held her hands, and said, "Sheila, you have a rare form of MS". Sheila was so grateful for her diagnosis.

Her DO is also excellent. And so is her new G.I. Doc.

We've learned, the best doctors aren't necessarily at the so-called top hospitals.

Sheila & I send you our love & hugs.

We were both so relieved, that you don't need radiation, and we pray you will never need it ever in your life.

Rich

[MauiGirl]

Jeanie, I am so happy to hear that your doctor feels they got it all and do not have to subject you to radiation and chemo at this time. That is fantastic!!! Good going. What a relief to know it was caught early and is now gone.

[Maximo]

Jeanie, I am very happy to read the wonderful news that the biopsy got all of the bad stuff and your oncologists do not think radiation or chemo are necessary. Excellent news! Praying that you do not need further treatment.

Enjoy sleeping!

[Jellybaby]

Fantastic news Jeanie! I have just caught up on this thread.... when I read your latest update I started grinning from ear to ear! I'm so happy for you, it's great that you might not need any further treatment

[MauiGirl]

I woke up this morning smiling at your good news Jeanie.

You have been on my mind so much with all this, and it is fantastic to have a bit of relief. The YT prayer warriors have once again been successful it seems.