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Originally Posted by yorkietalkjilly  Wow, Rich, that's an awful thing to have to go through at such a time and then to have your complaint go no where is disappointing, to say the least. Poor Sheila. Well, all you can do it file the complaint and recount what happened to warn others and go forward, which you are doing. I pray she never has to deal with any doctor like that again! I'm still praying and hoping for better days ahead. Hugs to you both and stay courageous.
God bless you for that, sweet one!  |
Jeanie,
Yes, it was an awful thing to go through and have my complaint not taken seriously.
Sheila has a good friend in Florida who also has MS and said to Sheila one day, "I wish I could go to Cleveland Clinic" and Sheila told her, "No, I've been there enough times to tell you, that 1st, the neurologist I saw for the muscular problems in my legs, convinced my former neurologist that I did not have MS and 2nd, the G.I. Doc I saw there, just about killed me, running too many tests in 3 days".
Thankfully, a top spine specialist here, called a top MS Specialist and told her, "You really need to see this lady". The MS Specialist didn't see patients that didn't have a definite diagnosis. But she saw Sheila immediately, and hugged her & promised her, "I will never give up on you". She ran one test to be certain Sheila didn't have "Stiff Person Syndrome" and the next month, she saw Sheila, and held her hands, and said, "Sheila, you have a rare form of MS". Sheila was so grateful for her diagnosis.
Her DO is also excellent. And so is her new G.I. Doc.
We've learned, the best doctors aren't necessarily at the so-called top hospitals.
Sheila & I send you our love & hugs.
We were both so relieved, that you don't need radiation, and we pray you will never need it ever in your life.
Rich