Any thoughts? So much pain! :(

[shodanusmc]

Well, at least it is not life threatening. Guess you got some good and a little bad. I am sure the Derm will come up with an alternate treatment. A lot of drugs will cause Esophagus burn. Best of luck.

[Wylie's Mom]

Originally Posted by celstu1

Ok I'm back.
My doctor did blood work and urine test, also is sending me for an ultrasound on thursday to make sure its not the gallbladder. However, she is already pretty sure it's not.

She believe its the minocycline I take daily for my skin. Its causing esophagial burn (sp?) and it will get worse if I don't get off of it. Now I have to call my dermo to talk about options for my skin! aaarrrggggg this was working so well too!

I am on prilosec for 14 days once a day, not supposed to have coffee! I can't go w/o coffee that long. WWAAHH!!! LOL But the pain should go away in a few days, yeah... ouch ... and no more minocycline.

Really glad you updated , thank you. I hope it is not gall bladder, so I'll be keeping my fingers crossed.

There should be some other options for your skin. Are you going to get rebound headaches w/out the coffee? Those can get bad. There are caffeine substitutes you could try to help wean you off the caffeine, but you'd have to be sure they were easy on your tummy.

[manolos mom]

Originally Posted by Wylie's Mom

Really glad you updated , thank you. I hope it is not gall bladder, so I'll be keeping my fingers crossed.

There should be some other options for your skin. Are you going to get rebound headaches w/out the coffee? Those can get bad. There are caffeine substitutes you could try to help wean you off the caffeine, but you'd have to be sure they were easy on your tummy.

I agree with Ann, You should wean yourself off coffee. My doctor told me Caffeine is dehydrating and makes you age. Good Luck to you.....Lissette

[celstu1]

I was thinking of doing 1/2 caf coffee at least. Yeah Id probably get headaches... plus I don't trust myself to drive to work in the morning w/o coffee! LOL so at least cutting back the caffeine for 2 weeks would be a good compromise.

I just really hope the pain goes away or gets better soon. I'm eating chewy rolaids today to try to help coat my system until the prilosec kicks in!

Thanks all!

[maryeverett1]

Makes total sense. Minocycline can cause a burned esophagus! Glad he has pinpointed in! Sucks to be in any kind of pain...after having 15 years of chronic pain for a specific condition I have unfortunately become an expert in how bad it sucks! Hope you get to feeling better really soon! Get some rest! :-)

[ARCHIE]

I am sure your demotologist will be able to find something else for your skin.
Important thing is no surgery involved. Hope the meds get rid of the
pain for you soon. How about decaf? Or 1/2 coffee 1/2 decaf then
smaller amouts of real coffee etc until all decaf. Otherwise headaches
are sure to happen, that caffine withdrawl is a real pain in the butt.

Wishing you a speedy recovery. Hope the gall bladde is ok.

[celstu1]

Thanks Ladies! Yes, I need to do something about coffee right about now actually.... I am falling asleep, just sooo tired, I did not sleep at all last night with the pain and today is a real struggle. Today is my long day too, with school tonight straight from work until 9pm. UGH! I have my ultrasound on thurs at 7am so i'll keep yas posted. No surgery I hope! Thanks all for thinking of me!

Now if you can think of a way to keep me awake I'd much appreciate it! LOL

[shodanusmc]

Originally Posted by celstu1

Thanks Ladies! Yes, I need to do something about coffee right about now actually.... I am falling asleep, just sooo tired, I did not sleep at all last night with the pain and today is a real struggle. Today is my long day too, with school tonight straight from work until 9pm. UGH! I have my ultrasound on thurs at 7am so i'll keep yas posted. No surgery I hope! Thanks all for thinking of me!

Now if you can think of a way to keep me awake I'd much appreciate it! LOL

Ladies? But I digress! Best of luck on Thursday.

Shodanusmc is not a female!

[celstu1]

Originally Posted by maryeverett1

Makes total sense. Minocycline can cause a burned esophagus! Glad he has pinpointed in! Sucks to be in any kind of pain...after having 15 years of chronic pain for a specific condition I have unfortunately become an expert in how bad it sucks! Hope you get to feeling better really soon! Get some rest! :-)

Do you have Fibromyalsia? My mom has that really bad, I feel soo bad for her. Actually they misdiagnosed her and treated her for 10 years for MS that she did not have. She was so messed up health-wise from that. But now she is being treated only for Fibro and doing much better. She still has times and days where she can barely walk but they do this needle treatment in her back once a year, shoot up specific nerve with novacain and then cut and cauterize them, this takes away a lot of her pain. Thankfully after 15 years they found something that helps her dramatically but she always goes downhill towards the end of the year, signaling its time to do it again. Its not a fun treatment but maybe its something you could talk to your doctor about.

[shodanusmc]

Originally Posted by celstu1

Do you have Fibromyalsia? My mom has that really bad, I feel soo bad for her. Actually they misdiagnosed her and treated her for 10 years for MS that she did not have. She was so messed up health-wise from that. But now she is being treated only for Fibro and doing much better. She still has times and days where she can barely walk but they do this needle treatment in her back once a year, shoot up specific nerve with novacain and then cut and cauterize them, this takes away a lot of her pain. Thankfully after 15 years they found something that helps her dramatically but she always goes downhill towards the end of the year, signaling its time to do it again. Its not a fun treatment but maybe its something you could talk to your doctor about.

Does she take Gabapentin (Neurotin) for the pain? It works pretty well with Fibro.

[Reese1]

I hope you get to feeling better soon!
Your pain isn't like what I experienced with my gall bladder, but it's always best to rule it out!
Please keep us posted!!

[maryeverett1]

Originally Posted by celstu1

Do you have Fibromyalsia? My mom has that really bad, I feel soo bad for her. Actually they misdiagnosed her and treated her for 10 years for MS that she did not have. She was so messed up health-wise from that. But now she is being treated only for Fibro and doing much better. She still has times and days where she can barely walk but they do this needle treatment in her back once a year, shoot up specific nerve with novacain and then cut and cauterize them, this takes away a lot of her pain. Thankfully after 15 years they found something that helps her dramatically but she always goes downhill towards the end of the year, signaling its time to do it again. Its not a fun treatment but maybe its something you could talk to your doctor about.

No. I have a condition called endometriosis. It is a disease that wreaks havoc on your pelvic area and internal organs (not to get to graphic here so that's about as specific as I will get!) it acts as a silly putty and just wounds itself around organs where it doesn't belong. I have had 15 surgeries for it and been on every pain medicine under the sun. There is no treatment for it although pregnancy helps (if you can get pregnant) because the hormones are it's "food" and during pregnancy all of those hormones go to the baby. I have it so severe that I was told I would never have kids. But 2 rounds of IVF and 4 miscarriages later have 2 healthy miracle little girls! I decided about 4 years ago to try things that were more natural and at the very least non narcotic so I could be coherent enough to enjoy the kids I had worked so hard to get! At the end of may or early June I will be undergoing what we hope will be my last surgery and will be having a full hysterectomy at the age of 36. There are no guarantees because I've been in pain so long that my nerve endings could be so damaged that they will fire pain signals even if the problem is gone! But I am hopeful and just believing this will be the answer! Believe it or not I wouldn't change a thing about the last 15 years. Of course I wish I could be pain free but I have learned so much about life and pain makes me incredibly grateful and in touch with how blessed I am for the good days and the miracles along the way!

I'm sorry that your mom has had such a rough time. I liken walking around in pain everyday to walking around with 100 extra pounds strapped to your back! The easiest things are hard and people don't understand unless they've walked it! I take neurontin too and it has helped! I hope you start feeling better and if there is anything I can do please let me know! Have a great evening!

[celstu1]

Originally Posted by shodanusmc

Ladies? But I digress! Best of luck on Thursday.

Shodanusmc is not a female!

I am soooo sorry! I know you are not! You are ALLLLLL man!!!!

[celstu1]

Originally Posted by shodanusmc

Does she take Gabapentin (Neurotin) for the pain? It works pretty well with Fibro.

She actually takes ketamine. It's a horse tranq! But she takes it in suspension liquid form. From what I understand these year mini surgeries allowed her to get off many of the meds she was on for pain. She is doing well! Its nice to see her up and living again! She's too young, smart and beautiful!

[celstu1]

Originally Posted by maryeverett1

No. I have a condition called endometriosis. It is a disease that wreaks havoc on your pelvic area and internal organs (not to get to graphic here so that's about as specific as I will get!) it acts as a silly putty and just wounds itself around organs where it doesn't belong. I have had 15 surgeries for it and been on every pain medicine under the sun. There is no treatment for it although pregnancy helps (if you can get pregnant) because the hormones are it's "food" and during pregnancy all of those hormones go to the baby. I have it so severe that I was told I would never have kids. But 2 rounds of IVF and 4 miscarriages later have 2 healthy miracle little girls! I decided about 4 years ago to try things that were more natural and at the very least non narcotic so I could be coherent enough to enjoy the kids I had worked so hard to get! At the end of may or early June I will be undergoing what we hope will be my last surgery and will be having a full hysterectomy at the age of 36. There are no guarantees because I've been in pain so long that my nerve endings could be so damaged that they will fire pain signals even if the problem is gone! But I am hopeful and just believing this will be the answer! Believe it or not I wouldn't change a thing about the last 15 years. Of course I wish I could be pain free but I have learned so much about life and pain makes me incredibly grateful and in touch with how blessed I am for the good days and the miracles along the way!

I'm sorry that your mom has had such a rough time. I liken walking around in pain everyday to walking around with 100 extra pounds strapped to your back! The easiest things are hard and people don't understand unless they've walked it! I take neurontin too and it has helped! I hope you start feeling better and if there is anything I can do please let me know! Have a great evening!

I have to run and I didn't get to read this (school tonight) I will check back later and respond. My heart goes out to you. Chronic illness is probably one of the hardest things Ive seen people accept and live with.