Any thoughts? So much pain! :(

[shodanusmc]

Originally Posted by maryeverett1

No. I have a condition called endometriosis. It is a disease that wreaks havoc on your pelvic area and internal organs (not to get to graphic here so that's about as specific as I will get!) it acts as a silly putty and just wounds itself around organs where it doesn't belong. I have had 15 surgeries for it and been on every pain medicine under the sun. There is no treatment for it although pregnancy helps (if you can get pregnant) because the hormones are it's "food" and during pregnancy all of those hormones go to the baby. I have it so severe that I was told I would never have kids. But 2 rounds of IVF and 4 miscarriages later have 2 healthy miracle little girls! I decided about 4 years ago to try things that were more natural and at the very least non narcotic so I could be coherent enough to enjoy the kids I had worked so hard to get! At the end of may or early June I will be undergoing what we hope will be my last surgery and will be having a full hysterectomy at the age of 36. There are no guarantees because I've been in pain so long that my nerve endings could be so damaged that they will fire pain signals even if the problem is gone! But I am hopeful and just believing this will be the answer! Believe it or not I wouldn't change a thing about the last 15 years. Of course I wish I could be pain free but I have learned so much about life and pain makes me incredibly grateful and in touch with how blessed I am for the good days and the miracles along the way!

I'm sorry that your mom has had such a rough time. I liken walking around in pain everyday to walking around with 100 extra pounds strapped to your back! The easiest things are hard and people don't understand unless they've walked it! I take neurontin too and it has helped! I hope you start feeling better and if there is anything I can do please let me know! Have a great evening!

Mary, I will make a huge bet that your next surgery will be your last, and you will be pain free....well, body pain, not the little pains that life throws at us. No cure for endometriosis, and no reason why you would get it. You sure are a trooper and a tough kid, as that is one of the most painful diseases there is. Remove the source, and the symtoms will just fade away. You just hang in there and so glad that you had the 2 little girls. Yep, one tough kid.

[celstu1]

Originally Posted by maryeverett1

No. I have a condition called endometriosis. It is a disease that wreaks havoc on your pelvic area and internal organs (not to get to graphic here so that's about as specific as I will get!) it acts as a silly putty and just wounds itself around organs where it doesn't belong. I have had 15 surgeries for it and been on every pain medicine under the sun. There is no treatment for it although pregnancy helps (if you can get pregnant) because the hormones are it's "food" and during pregnancy all of those hormones go to the baby. I have it so severe that I was told I would never have kids. But 2 rounds of IVF and 4 miscarriages later have 2 healthy miracle little girls! I decided about 4 years ago to try things that were more natural and at the very least non narcotic so I could be coherent enough to enjoy the kids I had worked so hard to get! At the end of may or early June I will be undergoing what we hope will be my last surgery and will be having a full hysterectomy at the age of 36. There are no guarantees because I've been in pain so long that my nerve endings could be so damaged that they will fire pain signals even if the problem is gone! But I am hopeful and just believing this will be the answer! Believe it or not I wouldn't change a thing about the last 15 years. Of course I wish I could be pain free but I have learned so much about life and pain makes me incredibly grateful and in touch with how blessed I am for the good days and the miracles along the way!

I'm sorry that your mom has had such a rough time. I liken walking around in pain everyday to walking around with 100 extra pounds strapped to your back! The easiest things are hard and people don't understand unless they've walked it! I take neurontin too and it has helped! I hope you start feeling better and if there is anything I can do please let me know! Have a great evening!

Sorry I had to run earlier, tuesday nights I have class directly from work so I need to book it out of work at 5 on the dot to make it to class for 6.

Wow, Ive heard of endrometriosis but only have a vague idea of what it is. My neighbor just told me that her niece was told a year ago to have a kid now because she may not be able to if hers gets worse, so her and her bf of 5 years decided to do it. It could be her one and only at 25. Its sad. It must be hard to hear that.
I am 33 with no desire to have kids but perfectly healthy inside and out for the most part. I wish I could give up my 'parts' to those who could use them! My mom was told at age 40 that she needed a full hysterectomy as well, she had other issue, I think fibroid tumors in her uterus, after 3 kids and divorcing my dad at the time she knew she was done with kids however she did not go all the way with the surgery, she left the tubes so she still had her hormones just no uterus where the tumors kept growing. Is that an option for you?

Well I understand how you could be grateful for what you have and your attitude is really positive. Life goes on right? Glad you are going to do all you can for yourself and your family to live that life to the fullest!

[celstu1]

I had an ultrasound today, noone called me, so I would guess that is a good thing, it can't be anything super serious I guess. I am off my face meds now though and will have to call my dermo to get something else for my skin. Its only been 4 days off and already my face is back to breaking out... gggrrrrr

Anyways.. I am so glad that it seems nothing serious is wrong with me just the meds.