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Old 04-27-2010, 12:49 PM   #27
maryeverett1
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Join Date: Mar 2010
Location: Virginia Beach, VA
Posts: 795
Thumbs down Chronic pain...BOO!!!

Quote:
Originally Posted by celstu1 View Post
Do you have Fibromyalsia? My mom has that really bad, I feel soo bad for her. Actually they misdiagnosed her and treated her for 10 years for MS that she did not have. She was so messed up health-wise from that. But now she is being treated only for Fibro and doing much better. She still has times and days where she can barely walk but they do this needle treatment in her back once a year, shoot up specific nerve with novacain and then cut and cauterize them, this takes away a lot of her pain. Thankfully after 15 years they found something that helps her dramatically but she always goes downhill towards the end of the year, signaling its time to do it again. Its not a fun treatment but maybe its something you could talk to your doctor about.

No. I have a condition called endometriosis. It is a disease that wreaks havoc on your pelvic area and internal organs (not to get to graphic here so that's about as specific as I will get!) it acts as a silly putty and just wounds itself around organs where it doesn't belong. I have had 15 surgeries for it and been on every pain medicine under the sun. There is no treatment for it although pregnancy helps (if you can get pregnant) because the hormones are it's "food" and during pregnancy all of those hormones go to the baby. I have it so severe that I was told I would never have kids. But 2 rounds of IVF and 4 miscarriages later have 2 healthy miracle little girls! I decided about 4 years ago to try things that were more natural and at the very least non narcotic so I could be coherent enough to enjoy the kids I had worked so hard to get! At the end of may or early June I will be undergoing what we hope will be my last surgery and will be having a full hysterectomy at the age of 36. There are no guarantees because I've been in pain so long that my nerve endings could be so damaged that they will fire pain signals even if the problem is gone! But I am hopeful and just believing this will be the answer! Believe it or not I wouldn't change a thing about the last 15 years. Of course I wish I could be pain free but I have learned so much about life and pain makes me incredibly grateful and in touch with how blessed I am for the good days and the miracles along the way!

I'm sorry that your mom has had such a rough time. I liken walking around in pain everyday to walking around with 100 extra pounds strapped to your back! The easiest things are hard and people don't understand unless they've walked it! I take neurontin too and it has helped! I hope you start feeling better and if there is anything I can do please let me know! Have a great evening!
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