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12-13-2009, 07:29 PM | #16 |
YT 2000 Club Member | Yes, I agree it can always be worse. It also took me a few years to get disability. I was shocked when I finally had to quit work. I had planned on retiring just like most people. However, just like you said, we have a roof over our head, food in our bellies, many blessings. Gentle hugs to everyone.
__________________ Jasmine's, Prissy's and Maggie Mae's Mommy |
Welcome Guest! | |
12-13-2009, 09:08 PM | #17 |
Donating Senior Yorkie Talker Join Date: Sep 2009 Location: Calgary
Posts: 520
| Hello ladies, there is definitely help in knowing others out there feel the same way! Especially when no one understands how I feel, even me I was diagnosed with FM this year, although I have had pain for as long as I remember. Actually the "real" pain started when I was pregnant with our youngest. The pain was so bad I could hardly walk somedays. I am now on Gabapentin and it helps some. My Lily has gotten my through some tough times! Especially when I can't sleep, she is always there awake with me and I can get my mind off the pain by snuggling and stroking her. She got me through the last trimester of my pregnancy as well as the first year of Suzanna's life. Our Yorkies are a blessing! Finding a good doctor is so hard. My Mom finally cornered a friend and begged him to take me on as a patient after having a series of horrible doctors, the last of which told me my pain was from streached muscles and anxiety anyway there is hope! And actually I read a great book called Hope and Healing for Sufferes of Cronic Fatigue and FM. I really found the advice valuable, she is a doctor who only deals with these two issues. And the advice about taking supplements has really helped. Omega3+joy Ok heres a good question... If you had the body of your dreams what would be the first thing you would do pain free??? personally I'd run!!!!!! Run with my kids my dogs, my husband.
__________________ Nicole: |
12-14-2009, 04:24 AM | #18 |
Yorkie Yakker Join Date: Apr 2009 Location: Des Moines
Posts: 30
| I was also diagosed this year with the FM have been diabetic for 21 years. I've hurt for along time but chalked it up to getting older and being on my feet for years doing catering. Got out of that kind of work 20 years ago and am in an office now. Having alot of problems but now its with my hands,legs, eyes and back. My problem is I don't know if what I am feeling at times is the diabetes or the fibro. I would like to have someone to discuss this with. I am so confused!!!! |
12-14-2009, 09:59 AM | #19 | |
Yorkie Yakker Join Date: Jun 2009 Location: NC
Posts: 52
| Quote:
I understand about your fatigue. When I get up in the morning my body feels like I've been working in a field somewhere all night long. If I could have one wish it would be to have enough energy to get through the day. I can deal with the other stuff. Last edited by princesmom; 12-14-2009 at 10:01 AM. | |
12-14-2009, 07:22 PM | #20 | |
Donating Senior Yorkie Talker Join Date: Sep 2009 Location: Calgary
Posts: 520
| Quote:
Somedays I wake up in shock at the body I am in... then I remember. I have very small children so I have to get moving fast Aparently everyone is hungry in the morning who knew LOL
__________________ Nicole: | |
12-14-2009, 10:10 PM | #21 |
YT 2000 Club Member | Lily, If I had a pain free body............I would run! I have always loved the wind hitting my face. I haven't been able to run in years. However, I remember several years ago when I was so bad that I couldn't get out of bed and we had to get me an electric scooter. When I finally got outside with the scooter I went as fast as I could to feel the wind against my face, it felt so good. I am so thankful that I am able to walk most of the time now. wjones, Boy, DM and FM together that can be very difficult to say the least. I use to teach diabetes education so I know how hard that can be at times. How are your blood sugars doing? A lot of times when you are stressed or in pain your blood sugars will be effected, but I am sure you are aware of that. Do you have an endocrinologist? I imagine at times it is difficult to tell when it is the DM or FM on certain things like neuropathy/RLS.
__________________ Jasmine's, Prissy's and Maggie Mae's Mommy |
12-14-2009, 10:14 PM | #22 |
YT 2000 Club Member | I am glad that we are all finding each other here, this syndrome/disease (whatever they want to call it today) can be very difficult to deal with and although I would never wish this on anyone, it is great to be able to talk to others who know what I am going through and can also give advice on what works for them. I know since I was DX'd in 2004 my meds have been changed a few times to get them "fine tuned" to work for me. I know of only one other person with FM and that is my cousin who lives in another state, so again, I appreciate talking to each of you here. Gentle hugs to you all and thanks for sharing.
__________________ Jasmine's, Prissy's and Maggie Mae's Mommy |
12-15-2009, 04:33 AM | #23 |
threadkillin' 6 pack Donating Member Join Date: Jun 2009 Location: USA
Posts: 1,242
| pain free body...hmmm I was never one for running... I always let the boys catch me anyway.. What I would love to do is just get up and down off the floor or ground. You know, down on all fours, play with the dogs or grandkids. Get up without the knees feeling like I'm on broken glass or needing someone to literally pull me up, or my legs asleep within 2 minutes. Yeah that, jumping down on the floor or grass at will.
__________________ lorelei, wife to gerry , momma to bear , baxter ,baby and bug |
12-15-2009, 04:34 AM | #24 |
Yorkie Yakker Join Date: Apr 2009 Location: Des Moines
Posts: 30
| My BS aren't so good. Mostly my fault. I quit smoking 5 weeks ago and since then I have gained 9 pounds. Keep telling myself its better than smoking. Yes, it is difficult to tell which is which when I start hurting. Especially leg pain burning etc. I do have an Endocrinologist but after several years of telling both my GP and the Endo that I felt like I had been hit by a truck my GP finally sent me to a Reumatologist and that's how I found out about the FM. I am only taking naproxen as i am afraid to take alot of meds. I also have COPD. It sucks to be me!!!! So far I feel fortunate that I don't have further complications with the diabetes. The FM seems to slow me down the most. |
12-15-2009, 08:19 AM | #25 | |
Donating Senior Yorkie Talker Join Date: Sep 2009 Location: Calgary
Posts: 520
| Quote:
Has anyone checked out the book I mentioned.. Help and Hope for suffers of CF and Fm? It really has helped me, especially if your doctor is not up on the up of FM. How is everyone feeling today? you know I think I may start a group on here for FM suffers look for it ok!
__________________ Nicole: | |
12-15-2009, 08:31 AM | #26 |
Donating Senior Yorkie Talker Join Date: Sep 2009 Location: Calgary
Posts: 520
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__________________ Nicole: |
12-15-2009, 11:52 AM | #27 |
YT 2000 Club Member | wjones, Wow, Congrats on quitting smoking, that is a tough one! I quit ten years ago and I also gained a few pounds but it was better then the smoking. Boy, and COPD also, you really have a challenge, I am praying for you girl. Pray you have a good day today. Lily, I haven't read/bought that book yet, where do I get it? I think the group is a great idea, I joined it....really don't know what to do there/how to yet, but will learn. Nana, What was I thinking that running was so fun...........I should have let the boys catch me to...........LOL ((((gentle hugs to all))))
__________________ Jasmine's, Prissy's and Maggie Mae's Mommy |
12-15-2009, 12:19 PM | #28 |
Yorkie Yakker Join Date: Apr 2009 Location: Des Moines
Posts: 30
| Yeah, just wished I'd have gotten wiser younger. I am going to go to Barnes and Noble to see if I can find that book. I tried to stay off the internet until I was diagnosed. Initially I was afraid I was imagining alot of it. Such strange symptoms. I can imagine alot of folks were like me and thought they had MS or cancer that was making them hurt or clumsy. I am still not sure if my symptoms are the diabetes or the FM but at least I found out that there was something else wrong with me. i know it sounds strange but I did find some comfort in knowing that. |
12-15-2009, 12:24 PM | #29 |
Donating Senior Yorkie Talker Join Date: Sep 2009 Location: Calgary
Posts: 520
| I know you can buy the book from www.amazon.com Also here in Canada at Chapters/Indigo. My doctor actually recomended the book to me
__________________ Nicole: |
12-15-2009, 12:53 PM | #30 |
Piper & Sebastian Donating Member Join Date: Jul 2007 Location: florida
Posts: 14,495
| I went to my PT yesterday, and he said he thinks I either have fibro. or arthritis. I made an appointment with a neurologist for next week. Does anyone know how they tell the difference between the two?
__________________ Susan, Piper ,Harley & Suiki |
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