Quote:
Originally Posted by nana911  rheumy thought I had Lupus, all my tests were positive for that. But then they went negative. Lupus is a cagey disease. My current rheumy has never been able to get a positive so she is sticking with fibro. All I know is that so far no regimen really works. I just live with pain, everywhere. The Lexapro is a new fix and it ain't working. Prednisone worked pretty good. I have chronic fatigue but no one seems to be able to address that. A doctor gave me provigil for that, works great on midnights but the rheumatologist was horrified.
yeah, weight gain scares the heck out of me too. Pain can't get better by adding more weight to the joints, I wouldn't think... |
You are right, Lupus is a hard disease to diagnose because it can mimic many other things. Please be careful with the amount of Prednisone you're taking and the length of time you are on it. Most of my problems aren't from Lupus but are due to the side effects from taking large amounts of Prednisone for years. For the past couple of years I have refused to take Prednisone so my doctor has nothing else to prescribe. And you will have some weight gain with Prednisone. Talk to your rheumy about Benlysta when it becomes available in Jan/Feb. It is the first (and only) Lupus drug and will probably be given to treat Fibro.
I understand about your fatigue. When I get up in the morning my body feels like I've been working in a field somewhere all night long. If I could have one wish it would be to have enough energy to get through the day. I can deal with the other stuff.