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:hug::ghug: Sending many hugs and prayers was hoping to here he started eating. I too think of you often Take care of yourself I know that is easier said then done |
Sending prayers and healing thoughts and energy.... |
God Bless you Patti and Ken. I pray that you find some comfort soon. You have both been through way too much already! |
Thanks. Ken is still not eating. I am going to try and take care of him myself because I'm just not ready to call in Hospice. Prayers are so needed. |
I too think you all the time and send prayers. |
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Just know that you and Ken have remained in my prayers. |
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You have prayers and love coming your way. Please remember to take care of yourself as best you can. Hugs, Bonny |
Patti praying for you and Ken. You are both on my mind everyday. |
Sending prayers and loving thoughts to you and Ken. |
Patti still praying for you and Ken. Is He Taking his Marisol? that helped my sister eating something But she still had day's she would not eat.Does he have a port in his vein's that way he would not to swallow his med's. It was a lot easier doing liquid med's for pain and nausea, and the other med's throught the port then them having to swallow pills. We found to if we just brought her something to eat instead of asking her if she wanted anything. that she would possbly eat a little. popsicles he may suck on some, and that may help with his deydration, any little thing help's. I have you in my heart I know where you are coming from. Try to get some rest hug's to you. Anne, |
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Patti, you and Ken are in my prayers. God bless you both. Hospice took care of my mother for over a year at two different times during her illness. When they cancelled her the first time, I felt so lost without them. They were a great help to me and my mother and a great support system. They never interfered with anything that I wanted to do for my mother. I continued to take care of her and they just monitored me and were there to help if me or my mom needed them. They could get the medications mom needed much more quickly than I ever could have. I never had to take my mother out of the house once to be seen by anyone because Hospice was there for all of that. I just wanted you to know this for when you decide it is time for Hospice to be in your home. God bless you both. |
Patti, I am so sorry to hear that Ken is not eating. You both are in my thoughts and prayers daily. Praying for strength and comfort for both of you. |
Patti, Please know that the both of you remain in my prayers daily. I really wish there was something more I could do. |
Sending prayers.... old school but what about a naso-gastric feeding tube? Through the nose into the tummy... no surgery involved...? |
I agree that hospice is a wonderful resource for so many areas of help & support, both for Ken & for you. They have some of the most wonderful & caring individuals working in hospice care that often become like family to their patients. The resources they can bring to bear & the clout they have are unexpected to some of us and greatly appreciated to a family that is worn down with trying to cope with so much during such terrible times. You can dismiss them anytime if you are not pleased. You two are always in my prayers & thoughts. |
Thanks. I have been assigned a nurse coordinator by my dh insurance so I will see what she can help with. Ken does not want a feeding tube so between that and his oncologist not wanting one I can't do anything. We see the oncologist Tuesday so we will see about palliative care. I am going to do a little research into the different Hospices around here. The one we had for my dad was not good. But my friend had one for 9 months for her mother and said they were great. I am still praying for a miracle! |
Miracles still happen, even in hospice care. Keep up your hope that any day this disease could knuckle to the treatment if those cancer cells start to mutate & lose their ability to beat the drugs & other treatment! Any little mutation could start the weakness of those bad cells & subject them to the teatment! |
Continue prayers for you and Ken. |
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As always, I am praying your strength and comfort and better days ahead. |
....and sending you lots of {{{{{{hugs}}}}}}. :) |
Helping to keep an angel with you. Still praying for you and Ken:animal-pa |
Patti still hoping that things turn around for you & Ken hugs to you both |
Patti I think of you so much, your up front on my mind, keeping you and Ken in prayer. Diana my sister in law has just found out this has came back and she has decided not to go through anymore treatments. It just mind boggles me how so many scientific things can come to be, send man to the moon many years back then came all the outer space travels and yet how far have we really come in finding a cure for the so many devastateing diseases. I continue to pray for this much needed cause. Patti I pray you feel comfort from God and strength through HIM as you are also battling along with Ken through this most difficult time. It's the hardest time in life to watch our loved one struggle through an affliction and not be able to change what is going on, it is such a helpless feeling but God is always with us and HE will see us through all things. Love and Hugs, Patti and Jack |
Praying for you both and sending big hugs and Love.... |
Thinking of Ken and you and sending prayers. |
Sending prayers and good wishes your way. God is good and miracles do happen! |
Patti, I'm so sad to see that Ken isn't doing well! I know that hospice is a scary thought but as someone who works daily with individuals with disabilities, let me tell you that it can literally be a life saver. Great hospice nurses have a wealth of information and experience gained from previous patients that may be able to help get Ken back to eating. They can also be really dedicated advocates for their patients and families with regards to communicating with the doctors (which I know from experience is insane). My mom has COPD and has been in and out of the hospital for the last 2 years. I have never been so frustrated as I have been in dealing with her doctors. Almost everytime she's been in ICU on the ventilator, I have had to DEMAND that they turn the sedation down so that I could get her to really orientate and communicate with her so she could focus on breathing and improve. So don't be afraid to literally harass his medical staff to get what you and Ken need! They have many patients and regardless of what people say, the "squeeky wheel" DOES get the oil. Lastly, no matter how hard I try to convince her otherwise, my mom does sometimes just feel like she'd be doing me a favor by giving up and she starts talking about refusing treatment. When you feel that bad, how can you help but be depressed? But she is very motivated by my tough love approach when she gets down like that. Everyone is different, but its what works for us. I've had to really be tough on her at times about eating and getting up and moving. She always ends up saying "If I ...., will you leave me alone." and I say "Yep!" I hate feeling like the bad guy but if it keeps her going I'll do whatever I have to... I hope that just a tiny bit of that will help you keep going! You are such a strong lady and I'll keep praying for both you and Ken. Lots of hugs and puppy kisses, from me and the puppy boys! |
Thanks. We met with the oncologist today and Ken was very alert, saying he felt more positive and looking forward to riding his Harley and that he was going to eat more and start walking some every day. I was just amazed at how positive he seemed. The oncologist said to see him again in 3 weeks and a CT scan in July. We get home and he won't eat, laying around same old thing. I am hoping he will indeed do what he told the doctor but it isn't looking good. He still will have hydration 3 days a week. If he doesn't start to eat I will check into Hospice. Thanks for sharing your experience Rebelbelle. |
Patti, I can imagine that today was an even greater rollercoaster of emotions for you. I pray he has more of these optimistic moments and that he does try to eat and walk every day. Sending prayers for your continued strength. |
Patti, I hear you, and fully understand what you are going through. The frustrations of caregiving, and the powerlessness of not being able to *make* someone do something. We can all only guess what we would do if we were the one with cancer, but honestly we can never really know how it feels to be the patient. Try to turn some of this over to God, and continue to give loving kindness and have hope. All of us here at YT continue to hold you and Ken in our thoughts and prayers. Hugs to you too! |
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