Please say a prayer or positive thoughts for my DH

[Patti]

Thanks. Ken's drinking about 64 oz of fluids a day. I put a call into the oncologist's nurse about 9:30 but haven't heard back. I really want them to answer me on the numbness issue and what we can do about it. I will ask about the gabapentin too. His platelets were at 70 and they need to be at 100 to do the chemo. I am going to be more assertive in asking why they aren't doing things. He took a vicodin today for the foot pain and he said it helped a little, but he doesn't like to take them too often. You guys are the best.

[Maximo]

Definitely push for answers and additional things to try to combat the challenges Ken is facing.

My mom didn't like taking the prescription pain meds either. She didn't like being out of it.

Praying that his platelets get back up there.

[Patti]

The oncologist's office called and said that the 2 chemo drugs he is on does not cause neuropathy and to talk to the cardiologist as it sounded like his vascular problem. We talked to the cardiologist last week and mentioned it and he didn't seem concerned. I am trying to keep Ken more mentally occupied as I think stress may be playing in to it. He really doesn't have any good friends to talk to. I told him we need to get him out a little each day just for a car ride. I down loaded some games on the I Pad so he was bowling for awhile. His main interests were riding his harley's but he hasn't been able to do that since July, driving his mini for long rides and going to the shooting range. Things he can no longer do. So I am trying to think of new ways to keep him occupied.

[Lil Sis]

Patti... Still here... Still praying for you and Ken. Sending love and hugs

[yorkietalkjilly]

The praying and holding Ken and you up before the Lord is still ongoing, Patti. I pray that before long things begin to turn your way.

[TxVicki]

Originally Posted by Patti

The oncologist's office called and said that the 2 chemo drugs he is on does not cause neuropathy and to talk to the cardiologist as it sounded like his vascular problem. We talked to the cardiologist last week and mentioned it and he didn't seem concerned. I am trying to keep Ken more mentally occupied as I think stress may be playing in to it. He really doesn't have any good friends to talk to. I told him we need to get him out a little each day just for a car ride. I down loaded some games on the I Pad so he was bowling for awhile. His main interests were riding his harley's but he hasn't been able to do that since July, driving his mini for long rides and going to the shooting range. Things he can no longer do. So I am trying to think of new ways to keep him occupied.

Patti I'm sending you a PM, on the one drug it can cause the neuropathy. I won't dispute what your Doctor has said. But sending you the info from Chemocare.

[Maximo]

Originally Posted by Patti

The oncologist's office called and said that the 2 chemo drugs he is on does not cause neuropathy and to talk to the cardiologist as it sounded like his vascular problem. We talked to the cardiologist last week and mentioned it and he didn't seem concerned. I am trying to keep Ken more mentally occupied as I think stress may be playing in to it. He really doesn't have any good friends to talk to. I told him we need to get him out a little each day just for a car ride. I down loaded some games on the I Pad so he was bowling for awhile. His main interests were riding his harley's but he hasn't been able to do that since July, driving his mini for long rides and going to the shooting range. Things he can no longer do. So I am trying to think of new ways to keep him occupied.

I was going to ask about that. Hope you can find things for him to focus on that are physically within his capability.

[FlDebra]

Remind him that most of a person's water intake comes from food. So he needs to eat to stay hydrated too!

Try some Scrabble! That was one of Roy and I's favorite pastimes.

Just thinking of you two today and wanted you to know I am still praying!

[Valenie]

Sending you guys prayers and do push for answers if you dont ask they sure are not gonna tell ya!

[Patti]

Vicki, thank you so much for the link on the chemo and neuropathy. I am going to mention it to the chemo doc Thursday. Kristin,he has been enjoying the bowling and shooting games on the Ipad so it was good to see him engaged in something. I am hoping to get him out for a ride today. He had a pretty good evening and night. This morning the top of his right foot is swollen and painful. I am going to watch it and maybe call the cardio doctor if it doesn't get better. Every day is a new challenge but we will get through it with all the prayers and support. Thanks so much.

[Lil Sis]

It is good to know as much as you can about all the drugs! The Doctors are great but don't know everything

Alan bloodsugar went reAlly high, I did some research and found a Link between blood sugar levels and one of the drugs he was taking. The doctor said ..no..it's not the drug he is in danger of diabetes. I showed her the research, she did her own and agreed. Some doctors would not have even listened to me..that is why it is so important to have. Doctor you can talk to and to have a support group that share info!

So if Ken is having side effects trust your "gut feeling"
Btw... Vit b may help

[Patti]

Thanks. Ken has had a very good appetite today for the first time in many weeks. He has been playing games on the IPad he bought me lol for 8 hours. He has never used a computer before. I am so glad he has found something to keep his mind busy. Prayers are so powerful.

[Bitsy]

Love and hugs to you and your husband Patti.

[Micah my love]

Patti still thinking of you & Ken, hoping things get better soon

[aproctor]

Still praying for you both Patti!!!