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Old 03-16-2010, 02:39 AM   #16
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Any news? Im praying for your son.
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Old 03-16-2010, 03:55 AM   #17
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I will pray for you and your family. I can't imagine going through something like this.... However, I know from experience that you KNOW when something's off within your body. Not having an answer is the hard part....because then your mind races thinking of all the possibilities which in turn cause more stress. I hope that everything turns out fine and your son Trevor will recover 100%. As everyone else has stated, stay strong for his sake and be persistent with the doctors... they do not always know everything and MANY mis-diagnosis's take place every single day.

God Bless!
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Old 03-19-2010, 05:51 PM   #18
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I feel so bad to read about your son's illness. I will pray that you get answers soon and that he recover quickly from whatever it is. How scary and doctors should investigate and find the cause of the problem. I am praying for you and Trevor. Hugs to you!
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Old 03-19-2010, 06:37 PM   #19
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Keep pushing to find an answer--kidney stones, heart, back strain, bowel etc...something is up--normal kids don't just crash out and have horrible pain--something is wrong---don't stop until you are comfortable with the answer!
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Old 03-21-2010, 09:41 AM   #20
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Special thoughts to you and your family! Please post back and let us know how he's doing! How old is he?
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Old 03-21-2010, 04:55 PM   #21
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Just checking back in to see if there were any updates on how your son is doing.
Keeping your family in my thoughts and prayers......
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Old 03-22-2010, 12:35 PM   #22
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I hope and pray by now you have gotten an answer as to what is causing
your son pain. You have a right to know and it's the doctor's job to find
out the problem. I would go to another doctor for answers and not stop until
I got them. A young boy with back pain and chest pain and doctor's aren't
concerned? Time to switch and get your answers.
Hoping and praying your son is ok.
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Old 03-25-2010, 09:50 PM   #23
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Holy smokes!!! I hope everything is ok, a few days have gone by with no updates.

As a mother I agree with the posts. Be persistent if you feel something is wrong. I had a child with sever stomach pain who would just scream and scream. I kept taking her in for tummy aches. Finally I got someone to take an x-ray and sure enough she was full of poop from top to bottom. The doctor was shocked. He said when he palpitated her stomach he never would have guessed. What she was doing was holding it in. he said kids have this incredible knack of not pooping and then when they finally have to go it hurts and then they hold it again. Vicious never ending loop. Had to give her mineral oil for a while. It was heart breaking.

As a kid I was sick. Nobody could figure it out and my mom wouldn't back off. 5 doctors and 4 ER's before finally demanding someone send me to Children's. They had me diagnosed and out of pain in less then a day.

Persistence ~ go with your gut
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Old 03-25-2010, 11:02 PM   #24
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I wouldn't wait around with chest pain, I would definitely get a second opinion, Dr's are human they can make mistakes, miss something, or just not know. A children's hospital is a great idea! Don't leave the hospital until someone tells you what is going on with your son.
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Old 03-28-2010, 04:08 PM   #25
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to all of you who responded here.....thank you from the bottom of my heart.

the few times i've had a moment to check yt i've not even had the time to view this thread. to read through all of your thoughts and words is beyond encouraging for me and i do appreciate them, and all of you, very much.

oh...where to start when it comes to my son..... first and foremost, i will say that his symptoms have lessened substantially. thank god. for several weeks, i was planted by his bedside at night for fear something would happen while he slept. i can sleep in my own room now.

he's gone back to school, though he still comes home and heads straight for the couch. this is unusual for him. i sense he's getting a bit stronger every day, though.

i still have no explanation for the symptoms. i am thrilled that they have subsided, but unnerved not to know what caused them. how do you prevent a recurrence if you don't know the original origin?

i have consulted with chkd...someone mentioned that here. yes, i consulted them first and foremost as i wanted him in the hands of the best. sadly, it just wasn't helpful. chkd wanted his regular doc to take the lead, his regular doc wanted chkd to take the lead....and meanwhile, i felt they were all letting him slip through the cracks. so i took the stinkin' lead and spent weeks doing medical research while i watched him at night, and catching a bit of sleep when the other kids were home after school. it just had to be done. i wasn't going to wait, like one of the docs from chkd actually suggested, until my son keeled over to call 911 and finally get a diagnosis.

i could not find any syndrome, any virus, any anything that was marked by all the strange symptoms my son had. i still haven't. i noticed though, that as trevor saw how determined i was to help him, he seemed to feel a bit better. it's almost as if all of the speculation by docs, who then proceeded to do nothing, had terrified him so much all he could do was think about pain and worry about pain and worry nobody would help him. i looked at him one night when he'd woken up and i simply told him, "trevor, you are not alone here. i am not going to let you hurt indefinitely. i may not be a doctor, but i'm your mother and if i have to turn over the local medical school library to get to the bottom of this myself, i will. i promise you can stop worrying now."

you know...when i said it i didn't think it would be all that helpful but amazingly, my everything about him seemed to relax right in front of my eyes. i have never been so relieved.

it's been over a month, and no...i do not have the exact answers yet. i have what are some complicated theories, and am currently working with someone at the local medical school on those. it took quite a bit of tenacity to get in there, but i simply wasn't going to take no for an answer.

trevor has been seen by a cardiologist at my insistence. his heart has been deemed healthy. i have been feeding him all the healthy foods i can think of, and making a concerted effort to keep things stress free around here. i've met with his teachers and requested they get with me immediately if they notice anything out of the ordinary as far as he's concerned.

other than that, i treat him as if nothing ever happened. i feel that asking how he's doing is only going to make him think about his health. i'm certain he knows to come to me if he needs to.

he knows i continue to work on this and he knows i will keep my promise and for now, that seems to be effective medicine.

anyhow....it seems i've rambled again....i apologize. i've been out of the loop so long and not able to really have a normal conversation with an adult that it seems a dam burst when i opened my mouth!!

once again, thanks so much for the kind thoughts and words here.
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Old 03-28-2010, 05:42 PM   #26
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I am so glad that your son seems to be doing better. My heart goes out to you on your fight for a diagnosis. I pray that eventually you get to the bottom of this.
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Old 03-28-2010, 05:50 PM   #27
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Thank you for the update, many of us have been worried and wondering how he is. I wish you all the best to see him thru a complete recovery, even if the diagnosis remains a mystery.
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Old 03-28-2010, 06:47 PM   #28
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Dear lulumom-
My heart goes out to you in a HUGE way! I personally suffer from extreme chronic pelvic pain due to a serious uterian disease. I know how scary it can be to watch someone you love suffer and not be able to help them and I know what it is like to be in that pain and feel your hope, energy and will to get through the day falter. This is a difficult journey for you as a mom but also for your son and all I can tell you is to take it one day at a time! One moment at a time really. I will be praying for you to have supernatural strength to face whatever tomorrow brings, for your son that they will be able to quickly find the source and treat it and in the meantime he would be encouraged as he waits to be pain free! Please let me know if there is ANYTHING I can do to be a support to you! I am new to yorkies and YT but unfortunately am a pro/expert when it comes to managing and coping with severe pain on a daily basis! Feel free to PM me any time day or night and if you feel like you need to talk live I would be glad to give you my phone number! I will be thinking of you and will check back with you tomorrow! Prayers and Hugs!
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Old 03-28-2010, 06:50 PM   #29
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lulumom!
I just saw you mention CHKD! I live in Virginia Beach too!! I would love to find out more about you and if you need a meal brought one night this week I would love to be able to help out and make you guys dinner!! Please call me if this at all interests you! will PM my phone number!! How cool!! WE are VB'ers!!!
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Old 03-29-2010, 02:42 AM   #30
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I'm relieved that your son's feeling better, but I know it has to be terribly frustrating to not have any answers!
I will keep him in my prayers! I hope you can get the answers you need!!
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