to all of you who responded here.....thank you from the bottom of my heart.
the few times i've had a moment to check yt i've not even had the time to view this thread. to read through all of your thoughts and words is beyond encouraging for me and i do appreciate them, and all of you, very much.
oh...where to start when it comes to my son..... first and foremost, i will say that his symptoms have lessened substantially. thank god. for several weeks, i was planted by his bedside at night for fear something would happen while he slept. i can sleep in my own room now.
he's gone back to school, though he still comes home and heads straight for the couch. this is unusual for him. i sense he's getting a bit stronger every day, though.
i still have no explanation for the symptoms. i am thrilled that they have subsided, but unnerved not to know what caused them. how do you prevent a recurrence if you don't know the original origin?
i have consulted with chkd...someone mentioned that here. yes, i consulted them first and foremost as i wanted him in the hands of the best. sadly, it just wasn't helpful. chkd wanted his regular doc to take the lead, his regular doc wanted chkd to take the lead....and meanwhile, i felt they were all letting him slip through the cracks. so i took the stinkin' lead and spent weeks doing medical research while i watched him at night, and catching a bit of sleep when the other kids were home after school. it just had to be done. i wasn't going to wait, like one of the docs from chkd actually suggested, until my son keeled over to call 911 and finally get a diagnosis.
i could not find any syndrome, any virus, any anything that was marked by all the strange symptoms my son had. i still haven't. i noticed though, that as trevor saw how determined i was to help him, he seemed to feel a bit better. it's almost as if all of the speculation by docs, who then proceeded to do nothing, had terrified him so much all he could do was think about pain and worry about pain and worry nobody would help him. i looked at him one night when he'd woken up and i simply told him, "trevor, you are not alone here. i am not going to let you hurt indefinitely. i may not be a doctor, but i'm your mother and if i have to turn over the local medical school library to get to the bottom of this myself, i will. i promise you can stop worrying now."
you know...when i said it i didn't think it would be all that helpful but amazingly, my everything about him seemed to relax right in front of my eyes. i have never been so relieved.
it's been over a month, and no...i do not have the exact answers yet. i have what are some complicated theories, and am currently working with someone at the local medical school on those. it took quite a bit of tenacity to get in there, but i simply wasn't going to take no for an answer.
trevor has been seen by a cardiologist at my insistence. his heart has been deemed healthy. i have been feeding him all the healthy foods i can think of, and making a concerted effort to keep things stress free around here. i've met with his teachers and requested they get with me immediately if they notice anything out of the ordinary as far as he's concerned.
other than that, i treat him as if nothing ever happened. i feel that asking how he's doing is only going to make him think about his health. i'm certain he knows to come to me if he needs to.
he knows i continue to work on this and he knows i will keep my promise and for now, that seems to be effective medicine.
anyhow....it seems i've rambled again....i apologize. i've been out of the loop so long and not able to really have a normal conversation with an adult that it seems a dam burst when i opened my mouth!!
once again, thanks so much for the kind thoughts and words here.