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Thanks for the update Va. That is wonderful new and I hope Mikey finally gets to go home. That will truely be a celebration. You need to take care of yourself because it sounds like you are doing so much for everyone else that you arent taking any time for yourself. I bet Mikey is going to need a babysitter so mommy and daddy can get some well deserved rest also. Friday the 13 was a very good day. Give Mikey a kiss for us next time you see him. |
Great News! thanks for the update... fight Mikey Fight! You are such a strong little man! light my candle.... d |
I hope Mikey gets to go home today. Still praying .............. |
Not so good news Okay this has got to be really fast. I just got a call from my daughter Mikey isn't doing to well agian. I know this is so much like a soapopera up and down up and down. Mikey has to have surgery today. His ventricles in his brain are getting bigger and his head circumfrance(SP?) is getting bigger. i will put becca's email to everyone in the post so you all can understand better. Please if you have a minute lite a candle for mikey. I will put the candle ceremony up again on the bottom of this post. Gotta run I have a hour anda half drive to the hospital and am waiting on a sitter for Babybear. Becca's post first off, let me tell you mikey has been eating great. over night he took between 70 and 80ml's! thier goal is 65! at 6am this morning, mikey went down for what we hoped was his last ct scan for a while. as i watched his scan in the room, i personally could tell (by my unspecialized eye) that his ventricles had increased in size. at 630, one of the neurosurgery members came up (as they do every morning) and felt his head. he said it felt "full again" but the sutures felt fine. his hc has also gone up a bit, from 42.5 to 43.5cm. so he said he thought mikey would most likely need surgery. that he would talk to dr. wilson (which is the one who has done all his surgeries) to see what he thought. i then put him down to bed. after about 30 minutes he woke up SCREAMING! so i picked him up and snuggled him, which usually makes him stop, but he just screamed harder. so i started to walk with him, and as soon as we walked out his door, all the nurses doctors and dr. wilson were standing there. they were all in shock at how loud and upset mikey was (cause that is not him at all). so mikeys nurse came over to see if he was okay, then we both decided he should get some tylenol just because it seemed like he was in pain. all the other nurses were worried about him... my poor man. dr. wilson then told me that his ventricles have increased, and he could tell now because all the fluid has drained. so he wants to do surgery TODAY to place the shunt. the sooner the better i figure. so he is going in for surgery at about noon time today. i will let you all know how things go. mike will be up a little later tonight, but was working when i got the news. thanks http://www.gratefulness.org/candles/...l=eng&gi=Mikey |
Oh I am so sorry. You will be in my prayers and especially for Mikey at noon today. Patty |
I hope his surgery goes well today. I'll keep him in my thoughts today..... |
My gosh, what a roller coaster ride you guys have been on. Just when we think he is over the worst something happens again. I will pray Mikeys surgery goes well today and he get back on the track to healing. Poor little guy. |
Will be praying for little Mikey, that the surgery goes well for him today, bless his little heart !!! |
quick update sorry everyone, the doctors bumped mikey's surgery he is now going in at 5 or 5:30 so next update will be very late. gotta run i am at the hospital going back to be with becca and mikey |
Sending Prayers for a fast recovery and praying that the Surgery goes well.I lite a candle. |
Praying for Mikey and your family............ |
You all must be exhusted with worry. What a roller coster ride you have all been on. Poor baby. Prayer's coming his surgery goes well and does what it's suppose to do to get the pressure down in his little head. :hands: :hands: :hands: :hands: Be strong Mikey you've come so far. |
i'm so sorry he has to get surgery again, hopefully this will be his last:( let us know how it goes, we\'ll be hoping for the best |
We will be praying for Mikey, to come thru yet another surgery. I lit another candle for this sweet baby. Desiree |
Praying for Mikey to keep fighting a little more so he can come home and strenght for you all to help you thru this trying time |
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