Could you please pray for my son.. - YorkieTalk.com Forums

heather_lathrop · 01-13-2006, 01:57 PM

I am just writing this because I am at my breaking point. I am a mother of three little boys, the oldest if 4, middle 2, and y baby 7 months. The baby, his name is Ayden, was born premature at 32 weeks. We knew when my water broke early that there was a chance that he could have to go into the intensive care unit. The doctors said that he may have to go there for a few days or so, until he could prove that he could eat and breath well on his own. We had accepted that as a possibility. But we had no idea that would not be the case. After 21 hours of labor with little progress the doctor said that if he did not stop showing signs of stress, and move down to deliver, that he would have to do a c-section. He gave me 30 more minutes to make progress, and then came back. I had made even progress that he could be delivered vaginally. And then at 6:53 p.m. he made his entrance into this world. As soon as the doctor cut his cord he was handed off to the team of doctors that specialize in premies. All I could do was sit there in silence and wait. There was nothing, no cry, no real movement. Just a little tiny baby. Then out of nowhere he screamed. I think that was the best feeling I have ever had, just to know that he was alive, and breathing. The nurses cleaned him up, and wrapped him in a little blanket. Then she brought him over to me. But something wasn't right, he was starting to turn blue. I paniced, I told her to take him away because he was turning blue. So she rushed him back over to the table, and unwrapped him, then they rushed him out of the room and into the nursery. I could not stand it, I knew nothing. The only thing they would tell me was when the doctor gets him stable he will come and talk to you. All I could do is wonder. My husband went down to the nursery to see if he could get any information from them. When he came back to the room he had the oddest look on his face like there was something that he did not want to tell me. I knew something was not right and demanded that he tell me. He said that when they got down to the nursery he stopped breathing, and they had to put him on a ventelator to keep him alive. Of course I freaked out and just cried and cried. And I could not see him at all. So finally the doctor came in to talk to me, and he told me what I already knew. Then he told me that they were going to have to transport him to a different hospital that had a NICU in it. So they took him there and they let me out of the hospital early the next day to go be with him. When I got there, he was so tiny, all of these machines around him, tubes coming in and out of him, it was heartbreaking. I could not even hold him, or touch him. They said that touching him could bother him, and they just wanted him to rest. The next day they were able to take him off the vent, and put him on a c-pap. He was doing better, but we still could not hold him or anything. A week later he was still on the oxygen and pic line, and feeding tubes, but he had gotten off the c-pap,and just moved to nasel canulas. He seemed to be doing well. He was growing, and taking his feedings through the tube well. Then one night in the second week something else went wrong. We never had a phone call or anything, but when we got there they would not let us in to see him. They said that they had to get him stable first. I was freaking out again,not knowing what was going on. Then finally they let us in, they said that his sodium levels were really high, and that he was very adgitated because of this. They had no idea what caused that to happen. But no matter how much fluid they gave him, it was still high, he just kept peeing it out. They thought there might be something wrong with his kidneys. So they did lots of tests on them, and all of them came back ok. So then the sodium started to go down, and they slowed the fluids down, and he was doing good again. Then he had another spell and the sodium was up again. This time they said that he could have a type of diabeties. Not sugar diabeties, but central diabeties insibidus. A rare type of diabeties that involves the pituitary gland.
The next weekend we were sent home from the hospital with a strict intake schedule. He seemed to be ok, we had been refered to go to childrens hospital the next month. Which was way to long, for someone who had something so serious. But we went for blood work every week to monitor it. When we got to childrens the next month, they admitted him right away because it was up again. They did lots of tests, and concluded that it was the diabeties. They started him on a hormone that replaces the hormone that the pituitary gland is suppose to produce. After they got him regulated on that hormone he has been doing well with that. He gets therapy three times a week for strengthening, and motor skills. And last month we had an eye appointment down at childrens hospital and they found out that he is blind. That was the straw that droke the camels back. To me, it was almost like a death sentence, because he would never see me, or his brothers, or his dad. Never see the sun, the sky, animals, anything that we take advantage of everyday. I cried all the way home from Little Rock, a four hour drive, turned into much longer, because I had to stop to collect myself. It was just me and the kids. So now I am trying to juggle three little boys, all very young, and one with a handicap. I am trying to do everything I can to teach him everything that I possibly can. I am going to educate myself, and teach y other children too. Sometimes I don't know if it has really set in yet. Because the vision therapist came today, and brought something for him to help teach him to see some light. And I dreaded them coming, because then I would have to face it. And see these things here, and know that this was really happening. My heart is just broken over this. There is not a day that goes by that I don't wonder what I could have done different. Everyone tells me I should not feel this way. But there is nothing that they can say to change my mind. I just have to work through it. And I will eventually.
I just want as many people to pray for him, and for our family as possible. We could really use the prayers right now. He is already on lots of prayer lists at church's in this area. But every single prayer helps. Thank you all. God Bless my

bchgirl · 01-13-2006, 02:01 PM

Oh Heather, prayers and best wishes coming from Virginia. God sends "special" children to "special" people.....

schatzie · 01-13-2006, 02:08 PM

Oh Heather, my thoughts and prayers surround your family. I am right around the corner from you, one dirt road and a little pavement and I can be there. Please let me know if ever I am needed!!!

vainchick5 · 01-13-2006, 02:25 PM

I will Pray for you and that wonderful little boy. He is lucky to have a mom as loving and caring as you. God knew exactly who this little boy needed. HE will never give us something we can't handle.

YorkieRose · 01-13-2006, 02:31 PM

Of course, your heart is broken. There is nothing worse then to see the innocent suffer in any way, be it human or animal.

May I tell you something I have learned about blindness? It is not the end of his world..being born with a problem such as this does not mean he will not have a wonderful and fulfilled life..

I used to work with handicapped children on a school bus, mostly in wheel chairs or deaf. We had a little girl named Rena who was born blind. She was the first blind child I had been around.
This child was 4 when I met her. You could not fool her at all. One day I was sitting on the bus doing some paper work. The driver helped Rena get on the bus and I did not say anything. After a couple minutes Rena asked me why I was so quiet? I asked her how she knew I was there..she said I smelled like flowers and always knew where I was...I cried...and never miss another opportunity to interact with her.
Rena was bright, happy, full of joy and played the piano so well. She was more observant then the children with perfect sight..believe me I could pull the wool over their eyes.

I was also given an 8 girl in a wheel chair to transport. I was told she was nothing more then a houseplant.. that is what they said at the school, can you believe that? She was severely retarded, in a wheel chair, could not talk...eyes did not focus.
One day I told all the children on the way home they could have a lollipop.
I did not give Tomeka one, as I had no clue she could eat one or even hear me or see me.
After a couple minutes I noticed a tear run down her cheek. It was the first response I had seen in her..but honestly I did not look for any since I was told she was so brain damaged. With so many children, we had to concentrate on the ones who could grow up to be independent we were told.

I held up a lollipop in front of her face and asked if she wanted one..she smiled..I had to hold it in her mouth, but she sucked on it..both me and the driver cried all the way to school...
God has a purpose for all of us on this earth..some of us are go through life with what may look like a burden to carry, but when we help each other carry their burdens, then we all make it just fine.

red98vett · 01-13-2006, 02:37 PM

Heather...You already got some wonderful feelings here and words of encouragement ...I just want you to know that YOU Are strong - it already shows ....and I'll be praying for you and your little son...Bless your heart...this can be overcome.

I hope he continues to be healthy.... and the very best to you....

ilovelouie · 01-13-2006, 02:42 PM

oh heather, i am so sorry for your troubles. I will pray for you and your family.

ilovelouie · 01-13-2006, 02:44 PM

Pat that was an unbelievably touching story that you told. I hope that this gives heather the hope and encouragment that she needs at this time. I was in tears reading her story and then again when I read yours.

God Bless

LaviniaHyacynth · 01-13-2006, 02:52 PM

Heather, You sound like such a wonderful mother.I will pray for you and your family.I am sending you a hug.

Marie · 01-13-2006, 02:59 PM

Heather, I will have you, your beautiful son

and family in my prayers. Like someone said "God doesnt give us what we can't handle". Im so sorry for your troubles. Sending you lots of hugs.

Pat, your story was so touching and make me cry. I hope it gives Heather hope.

jbarile · 01-13-2006, 03:05 PM

My prayers are with you and your family! The angels will watch over him try to rest take one day at a time.. and know we all will have your family and your baby in out thoughts and prayers.
God Bless the child.

Patti · 01-13-2006, 03:20 PM

I wil keep you all in my prayers. Hopefully you have a strong support system close by that can help you. We have to trust God's reason for these things. Also, take adavantage of all resources there are. I do believ in miracles and will pray that you have one!

heather_lathrop · 01-13-2006, 03:34 PM

Thank you so much for that story. It really opened my eye's. Sometimes I start to really get down about things, and then other times I am strong as I could be. I want to thank everyone else for their inspirational words.

TXGirl · 01-13-2006, 03:51 PM

Dear Heather,
I just want you to know that I just said a prayer for your baby and your entire family. I prayed for strength, for God's comfort, and for miracles for your baby. I'm so sorry that you are having to endure this right now, but you sound very strong. I can tell that you are a good mother. Please keep us posted on his progress.

Hugs to you,
Phyllis

heather_lathrop · 01-13-2006, 03:57 PM

Thank you so much for your prayers.. you will never know how much we appreciate it.

01-13-2006, 01:57 PM	#1
heather_lathrop Gizmo and Gidget's Pet Donating Member Join Date: Oct 2005 Location: Arkansas Posts: 1,326	Could you please pray for my son.. I am just writing this because I am at my breaking point. I am a mother of three little boys, the oldest if 4, middle 2, and y baby 7 months. The baby, his name is Ayden, was born premature at 32 weeks. We knew when my water broke early that there was a chance that he could have to go into the intensive care unit. The doctors said that he may have to go there for a few days or so, until he could prove that he could eat and breath well on his own. We had accepted that as a possibility. But we had no idea that would not be the case. After 21 hours of labor with little progress the doctor said that if he did not stop showing signs of stress, and move down to deliver, that he would have to do a c-section. He gave me 30 more minutes to make progress, and then came back. I had made even progress that he could be delivered vaginally. And then at 6:53 p.m. he made his entrance into this world. As soon as the doctor cut his cord he was handed off to the team of doctors that specialize in premies. All I could do was sit there in silence and wait. There was nothing, no cry, no real movement. Just a little tiny baby. Then out of nowhere he screamed. I think that was the best feeling I have ever had, just to know that he was alive, and breathing. The nurses cleaned him up, and wrapped him in a little blanket. Then she brought him over to me. But something wasn't right, he was starting to turn blue. I paniced, I told her to take him away because he was turning blue. So she rushed him back over to the table, and unwrapped him, then they rushed him out of the room and into the nursery. I could not stand it, I knew nothing. The only thing they would tell me was when the doctor gets him stable he will come and talk to you. All I could do is wonder. My husband went down to the nursery to see if he could get any information from them. When he came back to the room he had the oddest look on his face like there was something that he did not want to tell me. I knew something was not right and demanded that he tell me. He said that when they got down to the nursery he stopped breathing, and they had to put him on a ventelator to keep him alive. Of course I freaked out and just cried and cried. And I could not see him at all. So finally the doctor came in to talk to me, and he told me what I already knew. Then he told me that they were going to have to transport him to a different hospital that had a NICU in it. So they took him there and they let me out of the hospital early the next day to go be with him. When I got there, he was so tiny, all of these machines around him, tubes coming in and out of him, it was heartbreaking. I could not even hold him, or touch him. They said that touching him could bother him, and they just wanted him to rest. The next day they were able to take him off the vent, and put him on a c-pap. He was doing better, but we still could not hold him or anything. A week later he was still on the oxygen and pic line, and feeding tubes, but he had gotten off the c-pap,and just moved to nasel canulas. He seemed to be doing well. He was growing, and taking his feedings through the tube well. Then one night in the second week something else went wrong. We never had a phone call or anything, but when we got there they would not let us in to see him. They said that they had to get him stable first. I was freaking out again,not knowing what was going on. Then finally they let us in, they said that his sodium levels were really high, and that he was very adgitated because of this. They had no idea what caused that to happen. But no matter how much fluid they gave him, it was still high, he just kept peeing it out. They thought there might be something wrong with his kidneys. So they did lots of tests on them, and all of them came back ok. So then the sodium started to go down, and they slowed the fluids down, and he was doing good again. Then he had another spell and the sodium was up again. This time they said that he could have a type of diabeties. Not sugar diabeties, but central diabeties insibidus. A rare type of diabeties that involves the pituitary gland. The next weekend we were sent home from the hospital with a strict intake schedule. He seemed to be ok, we had been refered to go to childrens hospital the next month. Which was way to long, for someone who had something so serious. But we went for blood work every week to monitor it. When we got to childrens the next month, they admitted him right away because it was up again. They did lots of tests, and concluded that it was the diabeties. They started him on a hormone that replaces the hormone that the pituitary gland is suppose to produce. After they got him regulated on that hormone he has been doing well with that. He gets therapy three times a week for strengthening, and motor skills. And last month we had an eye appointment down at childrens hospital and they found out that he is blind. That was the straw that droke the camels back. To me, it was almost like a death sentence, because he would never see me, or his brothers, or his dad. Never see the sun, the sky, animals, anything that we take advantage of everyday. I cried all the way home from Little Rock, a four hour drive, turned into much longer, because I had to stop to collect myself. It was just me and the kids. So now I am trying to juggle three little boys, all very young, and one with a handicap. I am trying to do everything I can to teach him everything that I possibly can. I am going to educate myself, and teach y other children too. Sometimes I don't know if it has really set in yet. Because the vision therapist came today, and brought something for him to help teach him to see some light. And I dreaded them coming, because then I would have to face it. And see these things here, and know that this was really happening. My heart is just broken over this. There is not a day that goes by that I don't wonder what I could have done different. Everyone tells me I should not feel this way. But there is nothing that they can say to change my mind. I just have to work through it. And I will eventually. I just want as many people to pray for him, and for our family as possible. We could really use the prayers right now. He is already on lots of prayer lists at church's in this area. But every single prayer helps. Thank you all. God Bless my __________________ Heather & Max - In honor of my sweet Ayden!

01-13-2006, 02:01 PM	#2
bchgirl Donating YT 10K Club Member Join Date: Apr 2005 Location: at da beach Posts: 15,444 Blog Entries: 2	Oh Heather, prayers and best wishes coming from Virginia. God sends "special" children to "special" people..... __________________ Deb, Reese, Reggie, Frazier, Libby, Sidney, & Bodie Trace & Ramsey who watch over us www.biewersbythebay.com

01-13-2006, 02:08 PM	#3
schatzie *Moderator Emeritus* Join Date: Sep 2004 Location: Tontitown Arkansas Posts: 4,909	Oh Heather, my thoughts and prayers surround your family. I am right around the corner from you, one dirt road and a little pavement and I can be there. Please let me know if ever I am needed!!! __________________ ~~~~ Schatzie and Ransom ~~~~

01-13-2006, 02:25 PM	#4
vainchick5 YT 6000 Club Member Join Date: May 2005 Location: CA Posts: 6,588	I will Pray for you and that wonderful little boy. He is lucky to have a mom as loving and caring as you. God knew exactly who this little boy needed. HE will never give us something we can't handle. __________________ Mommy to Coco and Rocco

01-13-2006, 02:31 PM	#5
YorkieRose No Longer a Member Join Date: Jul 2004 Location: South Florida Posts: 8,577	Prayers for you. Of course, your heart is broken. There is nothing worse then to see the innocent suffer in any way, be it human or animal. May I tell you something I have learned about blindness? It is not the end of his world..being born with a problem such as this does not mean he will not have a wonderful and fulfilled life.. I used to work with handicapped children on a school bus, mostly in wheel chairs or deaf. We had a little girl named Rena who was born blind. She was the first blind child I had been around. This child was 4 when I met her. You could not fool her at all. One day I was sitting on the bus doing some paper work. The driver helped Rena get on the bus and I did not say anything. After a couple minutes Rena asked me why I was so quiet? I asked her how she knew I was there..she said I smelled like flowers and always knew where I was...I cried...and never miss another opportunity to interact with her. Rena was bright, happy, full of joy and played the piano so well. She was more observant then the children with perfect sight..believe me I could pull the wool over their eyes. I was also given an 8 girl in a wheel chair to transport. I was told she was nothing more then a houseplant.. that is what they said at the school, can you believe that? She was severely retarded, in a wheel chair, could not talk...eyes did not focus. One day I told all the children on the way home they could have a lollipop. I did not give Tomeka one, as I had no clue she could eat one or even hear me or see me. After a couple minutes I noticed a tear run down her cheek. It was the first response I had seen in her..but honestly I did not look for any since I was told she was so brain damaged. With so many children, we had to concentrate on the ones who could grow up to be independent we were told. I held up a lollipop in front of her face and asked if she wanted one..she smiled..I had to hold it in her mouth, but she sucked on it..both me and the driver cried all the way to school... God has a purpose for all of us on this earth..some of us are go through life with what may look like a burden to carry, but when we help each other carry their burdens, then we all make it just fine. Last edited by YorkieRose; 01-13-2006 at 02:34 PM.

01-13-2006, 02:37 PM	#6
red98vett Yorkie Kisses are the Best! Donating Member Join Date: Jul 2004 Location: Houston TX Posts: 33,590 Blog Entries: 1	Heather...You already got some wonderful feelings here and words of encouragement ...I just want you to know that YOU Are strong - it already shows ....and I'll be praying for you and your little son...Bless your heart...this can be overcome. I hope he continues to be healthy.... and the very best to you.... __________________ Villette, Chanel & Cheri www.DesignsByVillette.net Custom Address Labels and Note Cards using YOUR Photos! Just Click HERE!

01-13-2006, 02:42 PM	#7
ilovelouie YT 1000 Club Member Join Date: May 2005 Location: mass Posts: 1,762	oh heather, i am so sorry for your troubles. I will pray for you and your family. __________________ Our Photo Album is HERE http://www.dogster.com/?185528 http://www.dogster.com/?246319

01-13-2006, 02:44 PM	#8
ilovelouie YT 1000 Club Member Join Date: May 2005 Location: mass Posts: 1,762	Pat that was an unbelievably touching story that you told. I hope that this gives heather the hope and encouragment that she needs at this time. I was in tears reading her story and then again when I read yours. God Bless __________________ Our Photo Album is HERE http://www.dogster.com/?185528 http://www.dogster.com/?246319

01-13-2006, 02:52 PM	#9
LaviniaHyacynth Donating YT 500 Club Member Join Date: Nov 2005 Location: montclair,nj Posts: 925	Heather, You sound like such a wonderful mother.I will pray for you and your family.I am sending you a hug. __________________ Rest in peace my sweet angel dog, Lavinia Hyacynth, Vivi. I love you forever. Bear healed my broken heart!

01-13-2006, 02:59 PM	#10
Marie Mom loves Gucci Donating Member Join Date: Oct 2004 Location: New York City Posts: 6,427	Heather, I will have you, your beautiful son and family in my prayers. Like someone said "God doesnt give us what we can't handle". Im so sorry for your troubles. Sending you lots of hugs. Pat, your story was so touching and make me cry. I hope it gives Heather hope. __________________ Huggies, Gucci and Marie http://www.dogster.com/?132187 "I have been egged"

01-13-2006, 03:05 PM	#11
jbarile Tilly & Sami Donating Member Join Date: Feb 2005 Location: Syracuse, Utah Posts: 1,133	My prayers are with you and your family! The angels will watch over him try to rest take one day at a time.. and know we all will have your family and your baby in out thoughts and prayers. God Bless the child.

01-13-2006, 03:20 PM	#12
Patti Donating YT 30K Club Member Join Date: Oct 2005 Location: Illinois Posts: 35,509 Blog Entries: 6	I wil keep you all in my prayers. Hopefully you have a strong support system close by that can help you. We have to trust God's reason for these things. Also, take adavantage of all resources there are. I do believ in miracles and will pray that you have one! __________________ Cali Pixie Roxie : RIP Nikki; RIP Maya;RIP my sweet Dixie girl 1/17/08 http://callipuppyscastle.bravehost.com/index.html

01-13-2006, 03:34 PM	#13
heather_lathrop Gizmo and Gidget's Pet Donating Member Join Date: Oct 2005 Location: Arkansas Posts: 1,326	Thank you so much for that story. It really opened my eye's. Sometimes I start to really get down about things, and then other times I am strong as I could be. I want to thank everyone else for their inspirational words. __________________ Heather & Max - In honor of my sweet Ayden!

01-13-2006, 03:51 PM	#14
TXGirl Senior Yorkie Talker Join Date: Dec 2005 Location: McKinney, TX Posts: 166	Dear Heather, I just want you to know that I just said a prayer for your baby and your entire family. I prayed for strength, for God's comfort, and for miracles for your baby. I'm so sorry that you are having to endure this right now, but you sound very strong. I can tell that you are a good mother. Please keep us posted on his progress. Hugs to you, Phyllis __________________ Phyllis ( Gracie's and Toby's Mommie)

01-13-2006, 03:57 PM	#15
heather_lathrop Gizmo and Gidget's Pet Donating Member Join Date: Oct 2005 Location: Arkansas Posts: 1,326	Thank you so much for your prayers.. you will never know how much we appreciate it. __________________ Heather & Max - In honor of my sweet Ayden!