My 16 yr old dd has numbness!!

[jmdt]

Originally Posted by gidget529

If this is true - and I'm not doubting you, I'm questioning this "friend" and how truthful she is - this is a violation of HIPPA. The dr should know this is a big NO NO. Charges can be brought against him for discussing another pt to someone else (not dealing w her medical care and info necessary for the other person to treat your daughter). This is a federal offense that carries fines. This is serious business in the medical world if this friend is telling you the truth.

Is this dr affiliated w a hospital, university, or is this his own practice?

I think it is about time for a new dr, especially if this is true.

I've worked in healthcare for years, practice in clinical care, and HIPPA is a very serious violation.

No my friend is telling the truth. I have known her for 35 years. She is my oldest childs Godmother. She is the one who gave me the name of this doctor because I know she has MS and she sees a neurologist, so I asked for her name and number. I know my friend very well and I know she discussed my dd with the doctor. She actually told the doctor that I was a bit upset that she was aluf about the situation. She told the doctor that she knows that she is a calm person and doesnt get excited but to me it seemed that she didn't think it was a big deal. I know she talked about it with my friend. I am going to go around about with it today to see for myself if she talked to my friend about my dd. Then I have proof...my own ears!!!

[gidget529]

I am so sorry you are going through this. You really don't need this on top of what you are going through already!

If you are sure it took place, this is serious business in the medical world. The dr can be reported for this. You might want to just inform the dr that you did not give written persmission for your daughter's condition to be discussed outside of her caregivers (which is a requirement under HIPPA).

This is a neurologist you are seeing. I think it is probably time for a second opinion elsewhere. These are very upsetting symptoms, especially in a 16 year old. I understand totally why you feel the way you do - I would also. You don't need this "betrayal" on top of it. I'm sorry.

[Patti]

That is so wrong. My 25 year old daughter has been dealing with a serious condition for a year now and she has to call each provider including the specialty pharmacies and sign a release so they can talk to me about her condition and order her medicines. My dtr was seeing a rheumatologist and she was getting no relief. One day we had to take another dr in the practice and loved her. You could tell she was surprised the other doctor hadn't moved forward in her treatment. We switched to her that day. Normally I am the type that would feel bad switching within the practice but when it comes to your kids health I'll do whatever it takes. Maybe you can switch doctors. Those are the HIPPA rules put in place for patient privacy. I am keeping your daughter in my prayers. She has to be so scared.

[shodanusmc]

That sucks. My advice, and my advice and $1.60 will get you a cup of small starbucks, is to find a much better Neurologist. Not sure, what about a Dermatologist if the skin is numb also. What about the Mayo Clinic? Sometimes it is worth a road trip of you can get her in there. I sure hope for all in the family, it gets resolved.

[jmdt]

Ok just got back. I am positive that the dr was talking to my friend about this because I texted my friend some questions that only my dr knew the answers to. She told me that the dr said it will go away. I know for a fact that they had a conversation about my daughter. I also said to the dr., " oh my friend said that the lymes test came out negative?" She said, "yes" so there you go.
Anyway the doctor said that since nothing has changed in the past week we should just monitor her and "hopefully" it will go away on it's own. Her motor skills are still fine, and her muscle movements and reflexes are still fine. In the beginning it was worse day by day, but that was it. Now it has been stabelized for a week now. The hospital also said that there is no sign of an emergency. The MRI results are fine which means no brain issues. I don't know. I don't want to have to put her through a spinal tap. The doctor said it probably wont show anything. My crystal ball is broken and in the shop so I don't know what to do. I will talk to my dh when he gets home from work. My daughter is a bit releaved that all the tests are coming back good. We will see... I guess!!

[Lil Sis]

you have too much on your plate not to trust your doctor. I would get another... get another referral.

I have a very ill dh... the one thing that keeps me sane is I / we trust his doctor.

I still have you guys in my thoughts and prayers.....

[Sammy Mommy]

Sending continued good thoughts and prayers for you and your daughter.

[shodanusmc]

Originally Posted by jmdt

Ok just got back. I am positive that the dr was talking to my friend about this because I texted my friend some questions that only my dr knew the answers to. She told me that the dr said it will go away. I know for a fact that they had a conversation about my daughter. I also said to the dr., " oh my friend said that the lymes test came out negative?" She said, "yes" so there you go.
Anyway the doctor said that since nothing has changed in the past week we should just monitor her and "hopefully" it will go away on it's own. Her motor skills are still fine, and her muscle movements and reflexes are still fine. In the beginning it was worse day by day, but that was it. Now it has been stabelized for a week now. The hospital also said that there is no sign of an emergency. The MRI results are fine which means no brain issues. I don't know. I don't want to have to put her through a spinal tap. The doctor said it probably wont show anything. My crystal ball is broken and in the shop so I don't know what to do. I will talk to my dh when he gets home from work. My daughter is a bit releaved that all the tests are coming back good. We will see... I guess!!

Hope the Dov is right. I had a spinal tap and I still remember it. They did it when I had encephalitis. I remember saying I did not want it done. The Neurologist said without it I will die. Thought about it for a second....

[MaddiesMommie]

Originally Posted by jmdt

Ok just got back. I am positive that the dr was talking to my friend about this because I texted my friend some questions that only my dr knew the answers to. She told me that the dr said it will go away. I know for a fact that they had a conversation about my daughter. I also said to the dr., " oh my friend said that the lymes test came out negative?" She said, "yes" so there you go.
Anyway the doctor said that since nothing has changed in the past week we should just monitor her and "hopefully" it will go away on it's own. Her motor skills are still fine, and her muscle movements and reflexes are still fine. In the beginning it was worse day by day, but that was it. Now it has been stabelized for a week now. The hospital also said that there is no sign of an emergency. The MRI results are fine which means no brain issues. I don't know. I don't want to have to put her through a spinal tap. The doctor said it probably wont show anything. My crystal ball is broken and in the shop so I don't know what to do. I will talk to my dh when he gets home from work. My daughter is a bit releaved that all the tests are coming back good. We will see... I guess!!

So the doctor is discussing your daughter's case with someone else? even giving test results before you have them!? I don't like that one bit, sounds very unprofessional. YOU should not have to worry about this kinda stuff too.

I am still praying your daughter gets an answer to what is causing her discomfort. You will make the right decision about her care.

[Sookie]

How is your daughter?

[jmdt]

Thank you for asking. She is better. Not as numb or wierd feeling. It has not gotten worse. We are waiting it out. What else could i do?? She is acting fine and it hasn't stopped her from her activities or work.

[Lil Sis]

I am glad she is feeling better. I sure hope you get some answers though.

Take care...