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![]() | #16 |
No Longer a Member Join Date: Jul 2005 Location: California
Posts: 5,368
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Welcome Guest! | |
![]() | #17 |
No Longer A Member Join Date: Aug 2005 Location: NEW YORK
Posts: 16,218
| ![]() Prayer's are on their way for your niece. Wishing her a successful surgery a speedy recovery. |
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![]() | #18 |
Senior Yorkie Talker Join Date: Oct 2007 Location: Pasadena, TX
Posts: 238
| ![]() I have two cousins that have this the oldest has the more severe and the young girl has a mild form. I will say the oldest which is 14 going on 15 has been in and out of the hospital for the past year and a half numerous of times. He's had about I would say 50 surgeries and still counting. He makes improvement but then relapses again. My cousin had to move from Houston to Chicago so he could be treated by one of the best doctors in this matter. If you are interested I'm sure my cousin(the kids mom) is more than welcome to talk to you about this as she has became a real advocate for this. If you are interested you may PM me. I know she was keeping a blog about it I don't know if she still does. I wish your family the best as I know how difficult this illness can be and I will keep them in my prayers
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![]() | #19 |
Donating YT 5000 Club Member Join Date: Mar 2007 Location: texas
Posts: 5,272
| ![]() She hasn't had to have surgery so far. They are so afraid the surgery will 'cause more damage. She has not had problems for a couple of years but is starting to have pain again so we are taking her to the neurologist for another MRI. She has had so many.
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![]() | #20 |
No Longer a Member Join Date: Jul 2005 Location: California
Posts: 5,368
| ![]() How old is she now? I will keep her in my prayes. My niece's surgery is Scheduled for April 11. |
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![]() | #21 |
Donating YT 5000 Club Member Join Date: Mar 2007 Location: texas
Posts: 5,272
| ![]() Thank you so much for asking. She had her MRI and it shows that the cavity is still there...I think about one third of her spinal column is affected but now she has a bulging disc. We still can't see the neurologist until the middle of March. Pediatric neurologists are few and far between!!! even here in DFW with 2 children's hospitals.
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![]() | #22 |
Donating YT 1000 Club Member Join Date: Feb 2008 Location: Michigan
Posts: 1,280
| ![]() Yes, my mom and brother have it. My mom had surgery to correct it, my brothers isnt as severe. I can get you whatever details you want from my mom. She had the surgery about 14 years ago now.
__________________ Proud Mommy of Gavin, Ethan, Morgan, Nia, Olivia, and Kiana and baby #7! Also Mommy to furkids: Cleo ,Lola, Lilly Appletini, and Diesel. ![]() |
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![]() | #23 |
Tiny Dog Big Heart Donating Member Join Date: Feb 2006 Location: Texas
Posts: 6,205
| ![]() I don't know anything about it, but there was an episode on Extreme Makeover Home Edition that had a family dealing with this. Your niece will be in my prayers.
__________________ Little Bit |
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