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-   -   Chiari Malformation (https://www.yorkietalk.com/forums/off-topic-discussions/110969-chiari-malformation.html)

Shadow 01-09-2008 07:51 PM
Chiari Malformation
 
My niece was just diagnosed with the brain condition, anyone else have it or have heard anything about it?

cockerduchess 01-09-2008 08:22 PM
I am so sorry to be reading this my prayers are with your family.

RoxyJosMom 01-09-2008 08:26 PM
Never heard of it, but she will definitely be in my prayers.

FL Tink 01-09-2008 08:27 PM
awww sorry. they thought my neice had it. when she was 16 she started having severe headaches esp when she would change positions.
they finally determined her body wasnt reabsorbing the spinal fluid so she had too much spinal fluid flowing around causing increased pressure in her head. they believe her condition was caused by a virus that left scars on the area of her brain that is responsible for reabsorbing the old fluid. they ended up putting a vp shunt in to drain the excess. the drain originates in the ventricles of her brain and ends in the abdominal cavity. so when the pressure is too hign it can drain off so to speak.
here is a link for more info. my neice is 25 and is living a normal life.
she just delivered her first child today!!!
http://www.ninds.nih.gov/disorders/c...ail_chiari.htm
I hope everything goes ok for your neice

Rosey07 01-09-2008 09:24 PM
I was diagnosed with Syringomyelia at the age of 38. I had surgery to drain the cyst in my spinal cord. I still walk today but have pain.

I just pray they are wrong. And have misdiagnosed her. How old is your niece?

gypsyqueen 01-09-2008 09:29 PM
So sorry
 
Like you dont have enough on your plate my prayers for your neice

Shadow 01-09-2008 09:36 PM
She is 32. I don't know if they have misdignosed her ,that is what the MRI has showed.
Quote:
Originally Posted by Rosey07 (Post 1661134)
I was diagnosed with Syringomyelia at the age of 38. I had surgery to drain the cyst in my spinal cord. I still walk today but have pain.

I just pray they are wrong. And have misdiagnosed her. How old is your niece?

Rosey07 01-10-2008 12:20 AM
I was hoping Shadow. Sorry but that is a very painful disorder. That's about all I know. Blessings sent to your niece.

Shadow 01-19-2008 07:41 PM
They usualy rate the malformation between a 1-5 hers is a 9 :eek: ...So she will be having surgey and shew is scared to death,prayers for Brandie please!

RowdysMom 01-20-2008 02:47 PM
I'm so sorry to hear this - I hope treatment is successful!

patty58 01-20-2008 02:52 PM
I will keep her in my prayers. My granddaughter was diagnosed with syringomyelia when she was 2.

PANAMA69 01-20-2008 07:19 PM
I also sending prayers:hands: :hands: :hands:

LunasMomma 01-20-2008 08:08 PM
Prayers on the way:hands:

LunasMomma 01-20-2008 08:23 PM
I don't know if this will help, but a friend from another online group has been dealing with Chiari, for a few years now, after so many misdiagnoses. Here is her blog, it might help you guys:

http://chiarian.blogspot.com/

Shadow 01-20-2008 09:50 PM
Thanks! I will pass that too her.
Quote:
Originally Posted by LunasMomma (Post 1691329)
I don't know if this will help, but a friend from another online group has been dealing with Chiari, for a few years now, after so many misdiagnoses. Here is her blog, it might help you guys:

http://chiarian.blogspot.com/


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