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11-28-2007, 11:16 AM | #1 |
Donating Yorkie Yakker Join Date: Jun 2007 Location: Schererville, IN
Posts: 175
| Lunesta (MS) For over the last year, I have been dealing with severe pain in my feet and ankles that was debilitating to say the least. Then the pain spread to all over my body and wakes me up in the middle of the night and has been disrupting my daily life and has been continuously getting worse. I've been seen by at least 7 doctors and have been run for a million tests and no one could figure out what was wrong. The only thing they found were lesions on my brain but couldn't figure if they were causing my pain. But I finally went to a neurologist on Monday who gave me the diagnosis of MS. It's somewhat bittersweet becuase I feel somewhat relieved that I finally have an answer but I am still in a lot of pain. However, he did prescribe Lunesta to help try to battle the fatigue and allow me to sleep through the night so I tried it last night for the first time. And it did help me sleep and I didn't wake up or feel groggy this morning, which was good. But I am wondering if anyone else has tried this medicine, because I also woke up with the worse taste in my mouth...drinking water or soda makes it worse and its not going away. Its bearable when I am eating but its horrible otherwise (gum helps a little)!!! Anyone have this problem??? I would like to know if so, if there's a way to get this taste out of my mouth. It kinda tastes like someone stuck a whole roll of dirty quarters in my mouth....yuck! I hope this goes away soon...if not, I won't be taking this again tonight.
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11-28-2007, 12:01 PM | #2 |
Piper & Sebastian Donating Member Join Date: Jul 2007 Location: florida
Posts: 14,495
| I've never taken it, but hope you will feel better. My daughter has MS too, and has to give herself shots once a week.
__________________ Susan, Piper ,Harley & Suiki |
11-28-2007, 12:08 PM | #3 |
Donating Yorkie Yakker Join Date: Jun 2007 Location: Schererville, IN
Posts: 175
| Thank you. They think I will need the shots soon for the MS but unfortunately they have to let it progress a little further before I can start the MS drugs. Until then its just finding the right pain medications that will allow me to function normally. Are the shots working for her?
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11-28-2007, 12:48 PM | #4 |
YT 3000 Club Member Join Date: Jul 2007 Location: HOT, HOT, HOT AZ
Posts: 3,150
| I was diagnosed with MS 18 months ago. I give myself a shot every night of copaxon. It doesnt hurt and so far, I dont have any side effects. I feel so bad for you as I dont have any pain with mine. I feel more tired and the nuerologist says not to over heat my body as it can cause "flare ups". Now how am I supposed to not over heat my body when I live in Phoenix???LOL He says that swimming is the best exercise for people with MS. As for the bad taste in your mouth, I love Mentos in the mint flavor. Please keep us posted on how you are doing. Lynn |
11-28-2007, 01:27 PM | #5 |
My hairy-legged girls Donating Member Join Date: Jan 2007 Location: lompoc, ca.
Posts: 12,228
| I've never taken any medication, but I think I would make myself a hot-toddy rather than take a sleeping pill. There are always bad side effects to medications, and some are worse than the ailment itself. |
11-28-2007, 02:32 PM | #6 |
LuvMyFurbaby Donating Member Join Date: Apr 2007 Location: Miami
Posts: 700
| I have taken it without any taste side effects...that's weird. I would try the mentos if you like them. My Mom had the same metal taste when she was on chemo and gum helped her. On the MS I would seek as 2nd opinion. My daughter at 19 had her first incident 2 years ago. Her right side became completely paralized and was confined to a wheel chair. With therapy she is 99% back to normal and you wouldn't know what she went through. The Dr. put her right on the Copaxone 2 weeks after discharge. She has relapsing remiting MS. With MS there is not a single test to diagnose it....it is a process of elimination. She hasn't had another flare up and had to get off the Copaxone because of side effects. She is now on a experimental drug study for the last 9 months. (A pill) This website is very good and might have your answers on Lunesta. http://brain.hastypastry.net/forums/...play.php?f=195 Good Luck!!
__________________ Bella KCee Mia Cody |
11-28-2007, 03:40 PM | #7 |
Donating YT 5000 Club Member Join Date: Mar 2007 Location: texas
Posts: 5,272
| My daughter and I both took Lunesta and we both had that horrible aftertaste. We tried it several times with no change. Both of us switched to different sleep meds. I take Restoril now.
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11-29-2007, 09:58 AM | #8 |
Donating Yorkie Yakker Join Date: Jun 2007 Location: Schererville, IN
Posts: 175
| That's what I am thinking I am going to have to do too. I am trying different mints and the listerine strips...they help a little but I still have the taste. Although its not as bad today as yesterday. So i will try it one more time tonight since it does help me sleep, and if the taste isn't getting better I am going to ask for a different one.
__________________ I love my TobyII!! |
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