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Old 05-14-2013, 06:58 AM   #1
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Unlove My Niece, Jada - Prayers Desparately Needed!

I should have posted this days ago but I think I've been in shock and denial.

They had to rush Jada to the ER at UAB in Birmingham on Friday. She had only been out of the hospital from a 3 weeks stay for less than a week. Her stats and numbers started to plummet!!

They said she had a "type" of pneumonia in those diseased lungs and she needed to rest and heal. They put her in a heavily sedated state and put her on a ventilator.

Yesterday, they did surgery to do a tracheotomy because it gives better access for the ventilator AND she needs to be awake. If lungs were found for her transplant right now, she couldn't even get them because she is too sick. UGH!!!

Here's the update last night from my sister:
"Real quick update: recovering from surgery. Some things improving, but not everything he wants...yet. Will bring her up in the morning, but, honestly, friends and family, he is afraid that if she is not significantly better on the next 24 hrs or so (I.e. awake and alert, sitting up, maybe walking a few steps) she may be too sick for transplant. That being said, she is NOT out yet! God is in control, and He will receive the glory! even if we don't receive the outcome WE think He should give us, all praise and honor go to Him! Thank you for your continued prayers <3"

With that, she updated a few hours later and said this:
"
My Buggie-girl smiled at me tonight. We can all sleep now. Tomorrow we show the CF just how much fight we've got! Several hurdles have already been jumped but a few stand between her and a solid place on that list! Prayers for Jada's peace and courage as she learns to work with and not against this ventilator.

~~even if...<3"

Prayers - as many as we can send up. Please please please!!! It would totally suck to have her this close, find lungs right this minute, and she can't even get them.

Bottom line - she is not leaving the hospital off of the ventilator. It's new lungs or hospital til.....

I am not even going to finish that sentence because I will not Quit until God says so. Only HE knows what is meant to be and He will make this right - whatever "right" is.
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Old 05-14-2013, 07:12 AM   #2
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I have come to learn that YT prayers are very powerful, and there are so many of us who really care. I pray that Jada gets stronger and that she can finally get her new lungs. Jada and your family sound very special.
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Old 05-14-2013, 07:21 AM   #3
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Terri, this is terrible news and I am only hoping that this is one of those times we hear about so often how it's the darkest before the dawn. How just when it looks so desperate, a way out suddenly comes. If they can get her pneumonia -free soon, I'm sure she'll be right back on the list for new lungs. And we know during times like this, we get our grace to get through it from steadfast faith and prayer even when we don't understand. Our Father is with Jada, her mother and all of your family and with you right now. Trust and believe in His ways and plan for Jada. I'm praying for help and healing rushing to Jada and that a better life awaits her just around the corner. I'd love to hear this lovely child has taken a pain-free breath. Miracles still do happen.
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Old 05-14-2013, 07:23 AM   #4
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I've prayed for Jada since your first thread about her, and I won't stop praying... Sending Super Huge Hugs...
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Old 05-14-2013, 07:39 AM   #5
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Jada is in my prayers. What a trial she has been through in her life. Praying for a miracle.
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Old 05-14-2013, 07:41 AM   #6
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Sending prayers for Jada and her family. I pray she is able to get help soon.
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Old 05-14-2013, 07:49 AM   #7
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I am so sorry that this is happening, sending prayers Jada and her family.
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Old 05-14-2013, 07:55 AM   #8
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Sending prayers for Jada..as I have from your first prayer request. God is in control and prayers for his healing hands touch Jada.
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Old 05-14-2013, 07:58 AM   #9
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Oh, when I saw the title of the thread, my heart dropped. I think about Jada often and pray that she recovers enough to get some new lungs and that God will know when that time is right and fulfill the need. The trach is definitely a downer, but it will make make her more comfortable on the vent. An eendotracheal tube is quite uncomfortable. Are you keeping Gilbert again? I know Jada is lucky to have an aunt like you! Prayers continue!
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Old 05-14-2013, 08:35 AM   #10
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Thank you for your prayers and words of support, everyone!

Actually, my sister has a new puppy and Gilbert is old enough now to stay at their house..he has company with the new puppy and my 17 year old nephew is caring for both of them (as well as Jada's and his father who is in a wheelchair).

I just keep thinking...my sister canNOT take anything else. I know He is in control. I just don't see how He would let my sister go thru anything else. She's the strongest Christian I know next to my mom. And she's had so much tragedy in her life with her family/kids.
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Old 05-14-2013, 08:46 AM   #11
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My your belief in God help you to give Jada and her family the support they need so much. May God give Jada strength, breath new life into those lung until new ones are available. Prayers sent your way now and in the uncertain future of precious Jada. God be with you and bless you all!
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Old 05-14-2013, 09:11 AM   #12
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Terri, I'm so sorry about Jada! I'll for sure keep her and her family in my prayers! God is definitely in control!
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Old 05-14-2013, 10:08 AM   #13
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Ok, I'm going to type this latest quote from my sister's update because I got it on my phone as I can't get on FB at work...

"Complications, complications...keeps you on yer toes, right? Jada has an infection in the blood that she really needs to shake so we can move forward. Still really needs to be able to wake up and be able to blow off some of this building CO2. We are possibly looking at a procedure to help facilitate this, but it is quite risky and he (doctor) wants to address the infection first because it is causing her to have low blood pressure. He says he has not given up and, though she is borderline right now, he still wants to proceed towards transplant. After he left and I got over being stunned, it hit me that one word he used several times was "tomorrow"..."tomorrow we will start *this*, "we may try *that* tomorrow"...this gave me earthly hope. Rejoicing, knowing that even if she runs out of "earthly tomorrows", an eternity of HEAVENLY tomorrows await her! It's a win/win for her! God is in control. Glory be to God!"

..........sigh (that is a quote from me)
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Old 05-14-2013, 10:13 AM   #14
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sending many prayers for your jada i hope she is able to have many tomorrow's and get the new lungs she deserves and has fought so hard for. prayers and many more prayers. hugs to you terri.
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Old 05-14-2013, 12:48 PM   #15
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Sending prayers for Jada!! May the good Lord grant her new lungs for her to have many tomorrows!!
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