New Update On Baby Mikey
 

Hello Everyone,
First off I want to thank you all again for the thoughts and prayers that you have sent me and my family durning this very hard time. And thank you all for keeping those candles lite.
Becca finally was able to give an update late this afternoon. And I am going to post it at the end I will place Mikey's candle burning ceremony link for anyone who would like to lite a candle for him. He is going to be spending his 1 month birthday in the hospital. I just hope he is so much stronger by then. And he can come off lifesupport. Please keep sending the postitive thoughts and prayers.
hey everyone. sorry it took me so long to write today. we have been staying with mikey most of the day. its not often mike is up here all day. he is going back home tomorrow so he can make it to work on monday. although he wont be going home till tomorrow evening, its still not the same when he has to leave. so we spend as much time as a family as we can. going off of what my mom wrote, here is a little more information. the doctor today informed me that the white blood counts were a little high again (back in the 30's), so they were concerned the infection may be in the excess fluid in his brain (the cystic hygroma). so they called the neurosurgen team down to extract some fluid so it could be tested. i was able to see the fluid, and could tell immediatly that the infection has gone to it. it was neon yellow. technically, that was spinal fluid, and even when they took spinal fluid out, it wasnt that yellow. it will take up to two days to recieve the information back if the infection is in fact in there. now, the thing about that is, no fluid has gone in to that pocket, and no fluid has come out. so its just sitting there doing nothing. and they dont think the antibiotics have been able to get to it. so this may be whats keeping mikey sick and causing his levels to rise again. he did seizure when the neurosurgens where there as well, and they could tell, just by his seizures, that it is in fact his upper right brain that is doing it (where the fluid is sitting). he is medicated for his seizures, but it only treats specific seizures, and obviously, not his type. so they will be trying a different one (right now he is on kepra). since he has been on this mediciane though, his breathing has slightly improved. he is taking deeper breathes and breathing while sleeping. before, he would stop breathing during seizures, and now he continues to breathe through them. so the "best case scenerio" is that his seizures are causing the problems they couldnt find answers for. and i know how horrible it sounds to cross my fingers that my son is seizuring and causing these problems, but its the best one out of all the possibilities. seizures can be treated, some of the other things can not. i most likely will not update again today (unless something big happens), and possibility not till a little later tomorrow. i know this morning when we walked in, mikey was wide awake looking at mommy and daddy. so we didnt want to leave him. we are now praying every minute of every day that GOD will take care of him. yes, from my mouth, me and mike are praying. we hope everything works out well, and right now its going uphill. but its been a bumpy road so far, and we dont want to jinx anything. so i will talk to you all later.
becca
p.s. i have asked and the doctor said the best way to take care of the fluid if its infected is to drain it. so there is a possibility he will have another surgery in the near future
http://www.gratefulness.org/candles/...l=eng&gi=Mikey

Thanks for the update. Sounds like you have some good doctors that are on top of things.

Thank you for the continued updates on Mikey...I'm so glad there's some positive news....it hopefully gives you some time to regain your strength & hope....praying for continued improvement....will be waiting for your next post...

I'm still praying for baby Mikey and for your family.

Please try to stay strong and positive.

Continuing to send lots and lots of prayers and positive thoughts your way ...God bless BAby Mikey.

Mikey
 

I will continue to pray for Mikey and his family. I pray for his speedy recovery.


Jay.

thank you so much for keeping us posted on Baby Mikey... I will be lighting another candle for your precious baby...
d

Continued prayers for this sweet baby.

I will keep Mikey in my prayers, healings thoughts...and give his family strength.

Still praying for Mikey and thank you for the update!

Thank you for the update .... still believing for Mikey!!

My heart goes out to you, your husband and the sweet baby boy. I check for updates on Mikey several times a day. I pray that the Lord lay his healing hands on your baby boy and make him well.

Very Good News
 

Hello Everyone,
I got a great Sunday morning call from my daughter. She called to tell me that the hospital called her at the Ronald McDonald House to inform her that Baby Mikey made a decision to take himself off the vent. He coughed and pulled the breathing tube out and he has been on his own with no oxygen ever since. My daughter and her husband have been able to hold Mikey and kisses him. She just wanted to let everyone know that God does work in his own little ways and he does answer prayers. Thank you all for all the support you have given my family. We are not completely out of the woods yet. We do not know if he will start having apnea spells again or not. So she told me to be prepared just in case he starts again that he will have to be put on lifesupport. i told her we will only think positive. I will update again when she either calls or emails me.
http://www.gratefulness.org/candles/...l=eng&gi=Mikey

Wonderful news! :)

YAAAA Mikey! Bless you precious boy...
d

Way to go, Mikey! Thanks for sharing this great news.

Still praying for Mikey...............

Great new. That Mikey one one strong little fighter. He has had enough and he is going to get better and get home where he belongs before long. Way to go Mikey, keep the faith guys, it is going to happen.

Another prayer for Mikey, every little step in the right direction, is a huge step for little Mikey...May he be blessed...

Update on Mikey 3:15
 

I am going to post my daughter's email so you can all see how excited she is.
hey everyone. i just wanted to let you know i was able to hold for for almost two hours now! and mike held for until he started to feel uncomfy (with all the wires and what not). so we both have had our fair share of time with mikey, but we can now hold him whenever we want!!!! he has been happily resting and is still doing perfect without the breathing tube. i was able to try and feed him. he took 6 cc's which is good because his throat is sore. so they gavaged the rest. he is almost due for his next feeding. he has been wide awake and loved being held finally. he doesnt look as swollen now either!!! hes starting to look like my little munchkin!!!! cross our fingers that he continues as he is and by tomorrow or the next day (24 to 48 hours) we will be in the childrens hospital instead of the PICU.
thanks for all the prayers!!!
becca

I have fallen in love with Baby Mikey, and he is in my heart and prayers constantly. Sweet little fighter - no one is going to give up hope for you!

That is such great news. I will continue praying for little Mikey until hs is home safely.

Keep up the good fight Mikey, Sooooooo happy to hear that your on an upswing...Prayer is a powerful thing so sending more prayers your way....and relit my candle for you also. :hands: :hands: :hands: :hands: :hands:

Thank you
 

I just want to say. My daughter is not a member of YT, but she wants to thank everyone of you that have lite candles and prayed for Mikey. I also would like to thank each and everyone of you. He still isn't completely out of the woods yet. HE still might need surgery to remove that cystic hygroma from his brain. That will be another hurtle to conquer. I just hope they let him get stronger before they decide to do the surgery. I will keep you all update as I have tried. I am going up the Maine Med in the morning. Leaving here around 5am so I can get there at 6:30-7:00. I want to be there when teh doctors come in. My daughter wants me there when they come in also. She knows I will not keep my tongue in my mouth if I do not like what they have to say. She learned that Friday night.lol I guess if you want things done you have to lite a fire under there behinds. And now she knows. It was just hard for her to put her foot down. It sure wasn't for me though. I have been in her position before with my youngest child. he has had two open heart surgeries and I know when things aren't going right you need to step up and be you childs advicate. I was my grandson's the other night.
I am just so happy he is getting better. My daughter informed me if he has the vent back in, in the morning it is becuase he had a hard time durning the night and they needed to vent him. I told her I completely understand. Right now it has been 15 hours and 20 minutes since he pull the tubes out. So far so good. She should be giving a update soon. When she does i will post it. I hope she gets some rest tonight knowing that he is doing better. She was debating if she wanted to stay in his icu room tonight or go back to the Ronald Mac Donald house. I told her she should probably go back to RMD house to get some good rest before she couldn't get any rest at all.(hmm that would not be a bad thing either.lol)
Have to run. Thank you again.

Sounds like he's a fighter!! So glad he's improving. We'll keep up the prayers

I'm so glad to read the latest updates! Prayers are being answered and bless his sweet little heart! I'm so glad they can hold him now. That, in itself, will be great medicine for Mikey. Nothing feels better than being held and cuddled and loved and that does a body good. I'll keep praying for his total healing! Hugs to you and yours!!!

Oh that is just the best news I have heard all day. What a little champ Mikey is. I hope your daughter becomes a member here and we can all watch little Mikey grow up together. He has become such a huge part of all of us here.

:cheer: :cheer: :cheer: Great news about Mikey!!! Prayers work!:thumbup:

I hope your grandson continues to fight and that he wins .... children are precious and need G-d's hand to help at times like these ... bless your family ...

This is wonderful news!!!...Mikey is such a strong little boy...uh oh, this may be a preview of what's to come for mom...strong & determined....get your rest now mom ;) ...Mikey sounds to be ding so great!...looking forward to the next update