Yippeeee!! Thanks for the update [I know you have your hands full.]! Go Mikey .... we'll take any little baby steps you choose! Praying still ... what great news!!

Still praying, little guy stay strong keep fighting. God will be with your family and you hold to his hand.


Glad to hear the news please keep us updated.

I lit a candle for this sweet little boy, he is quite the fighter. Keeping you & your family in our thoughts & prayers.
Desiree

I Lit A Candle Too

I Put (txgurl06-yt) So You Get Some Of These Yt Prayers.

YA for Mikey! I will continue to keep him in my prayers and light another candel for him.... Bless You All! d

i just lit a candle for mikey, you are all in my prayers, he is a little fighter, may he continue to heal and come home to you all very soon:love: :hands:

Nitely update
 

Hi there,
I talked to my daughter about an hour ago. She is getting nervous. The doctors are going to try and take Mikey off the lifesupport tomorrow morning and see if he can breath on his own with the cpap. So please keep your fingers and toes crossed he does it. He did well today for a hour and a half no apnea spell or not breathing at all. So this is going to happen around 7 to 9. I will not be home from work until 3 I will try and update then. I am going to go the hospital tomorrow. I have been trying to find a sitter for Babybear. I think my son said he will come and watch him for me as long as he can takea swim. So I guess that would be a good deal.lol
Thank you all for all your prayers. And Becca told me she just loves seeing how loved Mikey is by everyone. And your prayers are working.
Have good night.

I have my fingers crossed that Mikey breathes like a champ today. He is a real fighter and I think he will do just fine. Keep us posted on his progress.

Today Started good and ended bad
 

Well I got called to the hospital today again. With bad news. Mikey has not started to have seizures. And now they are saying he is having problems with his brain stem. I will put becca's posts on here for you all to read. I am just so emotionally and physically drained and I am going back tomorrow, Sunday and will be there Monday. We are talking about moving him to a Children's hopsital. Fingers crossed these kids do it. Please If you have a minute can you please lite a candle for him. HEre is his link:http://www.gratefulness.org/candles/...l=eng&gi=Mikey
Here are Becca's posts for today.
FRIDAY MORNING
this morning when i saw mikey for the first time, he was wide awake again! he still had his arms in no-no's because last night he tried to rip his breathing tube out! so they just put some things on his arms to keep him from playing with the tubes. i talked to him for a bit and he was very alert. when i finally got him calmed down, the nurse took his no-nos off and told me they could stay off if i wanted to watch him. so i did and i put him to sleep (by rubbing his forhead, he loves it!) so that he wouldnt have to have them back on. so as of right now, he doesnt have them on. then they tried cpap again. his breathing became very off kilter. he would breathe really fast, then stop. he would catch himself though, which he wasnt doing before, and breathe again. however, his stats kept dropping when he would do that. the respitory person said something about chain stemming. which i guess is where the brain stem tells him to breathe and not to breathe. said it was not working properly. the resident said they discussed that the other day, but feel like he is just not ready to come off (that its not his time) only because he is doing better and better every day. so after about a half hour, they put him back on the vent, only breathing for him once every 20 seconds. now he is controling his breathing (although he still takes pauses-which is normal for any baby) and he is keeping his stats up. so it may just be a process of weaning him off of it for the day. although they may not take him off today because of what he was doing earlier, which i wouldnt be upset about. i want to make sure he is going to do it by himself before they take it out, so they dont have to put another one is. once its out, i want it to stay out. they will be giving him a steriod shot to help his throat heal a little with how long the tube has been in for. we are crossing our fingers everything turns out okay. and he proves the nurses wrong again!
becca

FRIDAY AFTERNOON
i just wanted to let you all know that this morning i watched mikey have a seizure. i had the nurse watch him and she agreed that he was having a cunvolsion. when we watched him, we noticed that it was mainly his left arm and side that was moving. however his head and right arm were moving slightly as well. i had actually watched him have some convulsions like these earlier in the day, but thought it was normal baby activity because he was awake and alert during them. he is having a two hour mri performed right now to see if they can find out why he is seizuring now. they told me that there are a few things they are concerned about. first, the infection has clogged his brain stem and is causing the seizures, or that the infection once again, damaged his brain stem. the only other thing is that there may be fluid built up and its causing pressure. that is the one im hoping for, cause that is the easiest fix of all. but they said the probability of that is slim to none. the doctors have a feeling he will never come off the respirator. and i really dont know what i would do if they asked me if i was ready to pull the plug. he is stable, but cant breathe by himself. most of the family is up here now, and are here for support. mike is here for the weekend and will be with me when we recieve the results from the mri. im becoming more and more scared at this situation. hes my baby. what would i ever do if i lose him???

It has been a roller coaster ride full of ups and downs. Everytime we think Mikey is doing good, then something happens. I was sure hoping Mikey would be able to breathe on his own today. Please dont start talking about what you will do if the worst happens. Only concentrate on all of the things you are going to do with him when he gets better and you can bring him home. No negative thoughts although I know as you watch him lying there that is easier said than done. We arent giving up on Mikey. He just has to get better. My thoughts and prayers are with you and your family tonight.

We are continuing to pray for little Mikey. He will pull through this, just don't give up hope. I hope today goes well. Thanks for taking time out to post updates for us. I know this is really hard for you.

Hoping for the best for little Mikey today.

I 'm just coming across this thread now. Sending prayers out for little Mikey.

We're not giving up on Mikey! He's so precious and such a fighter.

Prayers,

Judy

quick Mikey update (6/30/07)
 

Hello Everyone,
Becca is sorry she hasn't posted today. she has been at Mikey's beside and spending time with Mike. She just got off the phone with me and asked me to post this. She said she really hasn't had time to get to the computer. The doctors believe where Mikey's seizures is what is causing the apnea and everything else they couldn't figure out. The doctors that are on this weekend have gone over the mri and the fluid in the "cystic hygroma" looks like it is infected. The neuro surgeon came today and have watched the seizures and now they know that it has something to do with the right side of the brain which is where the cystic hydroma is. Then they took fluid from the right side of the brain (from the cystic hygroma) and they are sending those cultures out and it will take two days for results. His white blood counts are up again so they believe the infection is in the cystic hygroma. Becca will update later and can be more in depth with everything. I was trying to type and listen to her at the same time.
Becca will continue to update as soon as she can. She has been by his bedside all day and apologize for no updates but she should be with her baby. Updates will come as soon as we can get them posted. Right now he is doing best to be expected. Everyday things change as we all know. Mike is with Becca and Mikey at this time and there time together is not long with Mike working. So weekends are hard to get to the computer. But if she has time she will post.
Becca wanted everyone to know she has not had time to read any emails, but as soon as she can get on she will try and respond.
Thank you everyone for your support. And all the thoughts and prayers. I will again at Mikey's candle ceremony as I try to everyday.
Val (Mikey's meme)
http://www.gratefulness.org/candles/...l=eng&gi=Mikey