Sending more prayers for him. I hope they come up with a diagnosis after they get the tests back.

Sending prayers for you and your DH.

Goodness. Just seeing this thread for the first time. Sending prayers that they find out what is going on quickly.

:thumbup::thumbup: I am so glad they kept him for at least one more night! Sounds like he was some better last night and I am praying that he continues to improve. God bless you both.

GM...we need more prayer!!

Last night hubby's rash started to come back. He's been on steroids so they've started giving him Benadryl again. This morning his throat hurts and the rash is now all over his face. They look like really mean hives. This is what he's been getting sick with all along and what he was admitted with. Every time his labs go wayyyyyyyyy off by day 2 or 3. They drew at 3 a.m. but I'm keeping fingers crossed it was enuff to make them realize whats going on.

I'm getting frustrated. I'm gonna ask if they've tested him for lupus. They said they were but nobody has told us anything regarding it.

They better not discharge him like this.

I will keep him in my prayers.

Sending more prayers for your dear husband and I think you need some special hugs yourself.

Interesting discovery
 

I'm so thankful hubby was still in the hospital for the next go round with this.

They started drawing blood last night when the rash came back. By this morning, those hives looked really p!ssed off!!! His muscles were hurting and he couldnt swallow cuz of the neck/throat pain. I was scared when I saw him today...he went down really fast. His heart didnt change rhythms this time though.

The doctor brainstormed and came up with porphyria, a deficiency in an enzyme of some sort. His iron levels were really high so they decided to start withdrawing pints of blood a few hours apart in an effort to dump this extra iron. After the first one, he looked awful-very ill and in a world of pain. Four hours later, after the 2nd pint, within 30 minutes he was sitting up in bed and watching t.v. Now granted he isnt up running the halls, his rash is better (not gone) and his pain is tolerable. He's able to talk to me now when he couldnt this morning.

I dont understand what prognosis he will have if this is indeed what he has, but I'm happy that they are getting somewhere. The hematologist is the 5th specialist to join this case. I'm sure they're on the right track now.

It does sound like they're making progress. Good luck to you both. I've got to go look that one up!

Glad to hear that they are making progress there. i am so happy that they did not send him home the other day. It sounds like you need a Dr like that show HOUSE! goodness you have been through a lot . im still praying for him.

I am so sorry your family is going through this. Sending prayers for your husband, and for his doctors to find the cause soon.

Hugs,
Bonny

So sorry your Hubby is having to go through this. Will keep him, and you as well, in my prayers. Maybe they are on the right track now.

I am so sorry that you and your hubby are going through this scare. I was wondering if they have checked him for lyme disease. I am praying for you and your husband. I hope you get some answers very soon!

They sure havent but a student asked him to mention it to his doctor.

Update
 

He's been discharged, but without a definative diagnosis. They are still leaning towards porphyria, but the hematologist this morning said he's not so certain my husband had it. He said the tests are still pending.

He has a thyroid test in the morning. Repeat CBC on Thurs or Friday and appointments next week with 4 of the doctors who saw him during his hospital stay. They said he may have to have blood dumps every few weeks to keep his hemoglobin and hematocrit in a good range. He was at high normal this morning.

I sure hope they can put their finger ON it soon. I'm afraid of another flareup and I'm watching him like a hawk.

Just read this. How scary for you both lots of prayers going your way

Oh my, I do hope they find out what is causing this. My thoughts and prayers go out to you both.

I hope he does well at home and some of those tests this week will give you some answers. I know how badly you need them. {Hugs}

Gosh! I hate it when the discharge people when they haven't come up with a diagnosis and treatment. I'll continue to pray for him and for his recovery! You must be exhausted. Hugs to you!

Sending prayers for your DH, you, and a correct diagnosis of the problem.

Prayers to you and your husband and family. That is so scary, he is WAY too young for this to be happening. I hope you get some answers soon. Keep us posted. (((HUGS)))

Know that my thoughts and prayers are with you...