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08-01-2008, 07:46 AM | #31 |
Forever Athena's Mommy Donating Member Join Date: May 2008 Location: Oklahoma
Posts: 806
| Thank you for the offer and the information. I have found that Cyan's kindergarten teacher (she had her two years in a row and has become a close friend) is wanting to take on after school learning with cyan to help her get where she needs to go. I've got the patch for her today and she will wear it tomorrow for the first time. Daytrana patch for the adhd help. I've been researching and signed up for a workshop but the earliest one is Sept 2. Trying to find groups here in Tulsa that meet on a regular basis as well.
__________________ Proud Mommy Cyan Korbin Athena : Venus |
Welcome Guest! | |
08-05-2008, 08:18 PM | #32 |
Senior Yorkie Talker | I wanted to write and let you know that what you are doing is in the best interest of your child. My son was diagnosed as a high functioning autistic and the school disputes the doctor's diagnosis. You may have a battle with the school. I fought to keep my son out of special ed. His comprehension skills were on target with the class. He could do the work. He views things in black & white. When it came to explaination of answers that's where he needed more time to find the right words. He had a "shadow", a teacher aide that followed and recorded his entire days activities, she helped a lot. This was provided by the school. I would talk to the Special Education Administrator and find out what your district will do to help you. Many times changing the class can bring on "meltdowns". Most children with Autisim are accustomed to a routine and are upset by change. I found a book titled: Autism Spectrum Disorders by Chantal Sicile-Kira to be helpful. It covers the spectrum of autism. It also included information on useful websites, organizations and resources. It was under $20 and in relatively simple language. A few sites are listed below: Autism Society of America Autism Society of America: Families for Early Autism Treatment FEAT National Autism Organization National Autism Association is here to offer information and support to everyone affected by Autism Spectrum Disorders. Autism informational education and advocacy. NICHCY Home lists states resources that may be of help including transition services, vocational education, client assistance program, etc US Department of Education U.S. Department of Education Home Page I hope some of the information will help you. Also, starting in mid 2009 insurance companies will be required to cover some of the expenses. It was on the news a couple of weeks ago. I am sure if you googled it you could find the new legislation that was passed. Prayers and best wishes for you & your family.
__________________ LeosMama |
08-05-2008, 09:34 PM | #33 | |
Currently Suspended! Join Date: May 2007 Location: Ohio
Posts: 2,503
| Quote:
BPD1---Bipolar I (stands for one but thats just how it is always wrote) w/ ultra rapid cycling Cyclothymic--this and the BPDI were the difference between the 2 docs, but he is obviously BP 1 with ultra rapid cycling ADHD---Attention Deficit Hyperactivity Disorder OCD---Obessive Compulsive Disorder ODD---Oppositional Defiant Disorder I personally have seen several signs of autism in him. But with the IEP's and other papers you sign there is a few that will "Label" you child as being mentally ill and it will follow in several different aspects of his life for schools, teachers, law enforcement and such and right now I cannot add or change his dx for I fear it will haunt him if it isn't going to already. He does not handle social situations at all and has a hard enough time. also if he doesn't stay on medication the things he gets in trouble for will result in more permanate discinaplary actions and such for him not treating his disablities by taking his meds. Just doesn't seem fair does it? So we have faced some very challenging times needless to say. Ty is going into 5th grade this year and his grades are above state average in everything but reading/english/writing, it is at a 2nd grade level. But as others have mentioned he is very verbal, just has such a hard time putting his thoughts from his head to the paper and words in paper to his mouth. We have had IEP's for 3 years now which have required 4 meeting each school year with myself, my Mom (to help advocate) school priciple, school counsler, school dean of students, school special ed teacher, every one of his teachers, county certified counsler, and tri-county special ed associate. Needless to say these are very intensive and intimidating meeting for me. The school always pushes for putting him into special ed saying he is too much of a disruption to the class and is interrupting their learning. If it were not for my Mom and I he would be in special ed by now arguing that he IS learning at a steady increasing level. Please no one take offense as I am not saying this is a cruel way whatsoever about special ed. But we as parents MUST advocate for our children, because if we do not speak up for them the system will just push them aside when they shouldn't be. Ty has a special school day set up for him that instead of riding the bus (as he has been kicked off 8 times so far) that we take him to the school latchkey program at 8am where he is able to eat his breakfast and work 1 on 1 with the teacher assistant at getting his assignment book filled out for the day, taking his homework while walking with her to each of his diff teachers rooms and dropping it off( he can never find it and gets overwhelmed due to excessive unorganizational skills, in class and just ends up not turning it in and loses his grade when he had it the whole time) puts his coat/backpack in his locker and is ready for homeroom when the other students are just arrving for the day. This is stuff that should be done the first 10-15 minutes of class but when he starts behind he will stay behind all day. Also on his main 3 ring binder he has his schedule in the front plastic and it is all color coded with the folders in it for each individual class, consistinsy is the key Also when doing his homework, which is when we can get him to do it after 4-6 hours of constant motivation a night trying to get him to sit still long enough to start. but anyhow he does better with a timer. We give him a set time to get something done and when he can see that time is still moving (on a kitchen timer) even though he isn't/can't he does better. With homework if the paper is too crowded or "busy" we fold it to make it look like less of a challenge for him. In school for some tests he is allowed to voice record some longer answers or to voice them to the asistant who then marks the paper and the school is required to grade him that way. They wanted to have him use a head phone type machine where the teacher would pre record any tests since the tring to get from paper to mind and out of mouth is so challenging, and he would verbally speak them for an answer but the school would not let this be done outside the classroom, it had to be in front of the other children or during recess and I would not allow him that embarrassment or to not get his recess as children need time to release during school, as in recess. Oh my I just realized how much I have been rambling and I apologize, I just wanted to share with you and let you know your family is not alone. May I ask what meds they started your child on. Is the patch staying adhesive during play? We have done the med go round for to long now and it's time were due for a change as his current ones are not effective anymore Ty is on Depakote ER 500mg and Propranolol 20mg for severe migraines. He has been on every single ADHD med incuding the newest one Vyvanse and always has severe side effects. Also have been on several atypical antipschycotics with only one being really effective and that too only lasted for less than a year(abilify). Please follow all docs advise when they order a blood workup as several of these medications, their levels have to be maintained in the patients body and they may need to increase or decrease the dosage. Ok so there I go rambling again, lol! Please accept my apologies!! I have just been through a lot with my son and if I can ever help please don't hesitate to pm me or I can give you my email addy. I could go on for hours but I'm not going to, lol! I wish Cyan the very best this year and you so many stay strong vibes. (((((HUGS))))) one more thing, my Mom and MIL and I go to meetings held by NAMI...National Alliance of Mental Illness, while this may not pertain to you it has wonderful family support groups. | |
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