Keeping him in my prayers and thoughts

My heart stopped when I saw this thread.
My prayer's are with you and your family and for
Nathan to be well again.

Any updates on the little guy today? Still sending prayers.......

Good morning all. Before I went to bed last night I got a call that gave me a smile. They have backed up on the medicine that is keeping Nate asleep and he is waking up for a few minutes off and on and able to say a few raspy words. He is also very calm and his vital are good. So he was able to talk to his parents. A nurse (he has his own at all times) asked him if he knew where he was and he said "the hospital". She asked him if he knew why and he didn't. She told him his heart is sick and they're fixing him up. He was saitsfied with that and went back to sleep. Nate is not able to open his eyes all the way yet, he has been asleep for 5 days...but he is eating ice chips now. Been a long time since he ate anything. He has been put on Lasix because he has fluid on his lungs. Hopefulyl we will get some biopsy results today. I don't understand what is taking so long. The kids nice drs at the Blue Bird Clinic there at the hospital are calling in some meds for Tony...God Bless them. I felt a tear welling up in my eye right there when I heard this. I love my baby but he wearing us out ;) That's all for now. I'll try to post later. Thanks again.:animal-pa

thanks for the update! i am glad to hear that his vitals are better. :thumbup: waiting is so hard and ever worse when its a child. like i said he looks like a strong little trooper. i will keep your family in our prayers:)

I had to log on when I got this email notification and I can't tell you how happy I am that he is awake and eating ice chips. One day at a time but it's sounds so much better. Just be assured prayers are coming for Tony until he back to good health. Hugs, Joan

We got 2 of the 3 biopsies back yesterday and they are saying its genetic instead of viral. Waiting for the last one. An MRI is being done today to help them fninish pinpointing just what our problem is. Nate Mother called me last night just to talk and catch me up. She's going down slowly. Couldn't make a whole lot of sence of it but what I have just said. Hope to learn more today. In the meantime Tony is oblivious to it all and "energetic" as ever. Preliminaries are being done for a transplant just in case. Someone tell me this is a dream. Please keep remembering Nate in your prayers. I know God is holding him in His arms, but a whisper now and then in His ear couldn't hurt. Thanks

I'm so sorry to hear the news might not be good. I'm keeing Nate in my prayers along with your entire family. Remember, faith will see you through.

I'm still saying prayers for Nate.

im sorry i just saw this,, where am i looking? im sending prayers to
all of you right now... god is watching over...

Still praying for Nathan. And for his family. God Bless them all.

News flash!! I actually got to talk to Nathan on the phone! We were all so excited we put it on speaker phone and we all got to talk to him for just a minute. I told him I loved him and he said "OK Maw Maw. Can I talk to Tony?" He kept saying hi Tony and the baby actually kissed the phone. It was beautiful.

They took his catheter out and want him up walking now and then. He ate his first meal. My son has been trying to get him to eat but wasn't hungry. I guess after you haven't eaten in a while your just not hungry. Anyway, son gave it the usual try yesterday and mentioned chicken nuggets and nathan bout jumped out of the bed he said. Well, that boy ate a whole kid meal. Dr said he could have anything just to get him to eat. He was up watching tv last night.

The third biopsy came back yesterday and all three have shown not viral but genetic. So now they at least now what direction they need to take. He gets tired easy, still have to sedate now and then to calm him. Hoping if we can keep him eating he will feel much better. That's all I know for now. I have the phone number to call directly to his room now! I can call when I want!

All we can do is wait now to find out what the shape his heart is in and what direction they are gonna take.

Thank you so much for your well wishes, comments and prayers. They lift me so much. Later.
~~~~~~~~~~~~~~~~~~~~~~~~~~Denise:)

Thank God for chicken nuggets!!!!!! Hopefully, Nate's appetite will perk back up and that will help him get stronger. Whatever the tests show, at least you will know what the issue is and have a plan of action for treatment. And never forget that miracles to happen. Keeping those prayers coming!!!!!!!

Praying that your grandson continues on the upswing (((hugs)))

I am so glad it sounds like he is feeling better!
Keeping your family in my prayers.