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Just seeing this. I will be Praying for your son. Just wondering, is there anyone in you or your husbands family with Thyroid problems ? as this could very well be Thyroid related. If it is Thyroid related then an MRI or Spinal Tap will show nothing. A Thyroid panel is fairly fast results & worth a shot IMHO. If you ask for a Thyroid panel, ask them to check T4, T3 & TPO as these are not part of the normal Thyroid panel & can diagnose or rule out an autoimmune disease of his Thyroid & Thyroid problems can mimic many other health issues. |
No one has mentioned thyroid...I will ask. Thanks everyone for your thoughts and prayers. I will update later today after we talk to the doc. |
I am just seeing this today as well. You are in my thoughts and prayers every minute.:heart to |
Praying they find a diagnosis soon. |
We are all here with you, prayers and positive thoughts and wishes going out to you..... |
Thank you all again for your thoughts and prayers. They did not find anything additional on the MRI and we may have to wait a day or two for the spinal tap as my son isn't feeling well. We are hoping it's just a cold and he will feel better soon. I will update when I know more. I am just very tired. |
I just saw this thread and wanted to add my prayers for your son and your family. |
Be sure to let his doctor know he isn't feeling well, let him know exactly what he's experiencing. I'm still praying hard for your precious boy, hoping for the best. Not one of us who has a grown child hasn't put herself in your place this week, imagining the horror you all are going through with these frightening symptoms, all the waiting and the worrying about your baby. Living on the edge as you have been for so long, it's no wonder you are tired. I'll bet you are ready to collapse and sleep for 72 hours if only you weren't so filled with tension. Hang in there - we're with you. |
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Thank you all so much. I did let the doctor know my son isn't feeling well and has a fever. He still wants to see him tomorrow but he won't do the spinal tap until he is better. My son is not talking about suicide anymore, so that is a great relief. I am learning to deal with things a little better and just work to have a positive attitude. I have felt wonderful comfort from everyone's posts and prayers. Thank you once again. |
My heart goes out to you and your family. It is so darn hard to cope when all this hits and your son still does not have the diagnosis. Hang in there, and give your adorable lil pup lots of kissies, and enjoy whatever happiness you can find in this stressful time. |
I know you are relieved that your son is coping better. I hope the doctor will be able to do the spinal tap soon. Praying they get the fever down so it can be done. You all haven't been far from my thoughts and I have you all in my prayers. You have us all here for you. Hugs to you! |
Still praying and hoping for the best news possible. |
Of course, you know you and your son are still in my prayers....... |
Just sending more hugs and prayers your way! |
They rescheduled the spinal tap for Monday as long as he doesn't have a fever for 2 days. My son has decided he wants to learn to play guitar since it is something he's always wanted to do and he is having trouble sleeping and concentrating so he thinks this would help him take his mind off of things. I took him yesterday and we picked it out, along with the needed accessories. We also found an instructor that will be able to teach him as he isn't able to see what he's doing. Unfortunately the guitar won't be here for a week (the only one in stock was damaged) but it's something for him to look forward to. I know this seems trivial but I'm just happy he has shown an interest in something and isn't contemplating "ending it." Thank you to everyone again...I can feel your thoughts and prayers as the days progress. It is still difficult but I'm feeling calmer and more positive. I'm hoping for good news after the spinal tap...although at this point I'm not sure what the good news could be...I'm still praying for it. |
What a super great idea!!! |
This IS big news!!! :) I am so happy that your son has found somethjng important to his heart that will help his mind focus on somethjng positive during this dark and scary time for him. Music is so healing and learning is so stimulating- this is wonderful that he has something to look forward to like this. My thoughts and prayers go out to your family. I hope you see some answers soon. |
Dear son Thank you for the update. Hoping that your son feels well enough on Monday to get the spinal tap, and hopefully lead to diagnosis. Waiting and not knowing is very hard to bear and you both must be relieved that he is at last getting tested. Praying that whatever they discover is treatable and that he will be on the mend soon. What a great idea to learn the guitar!!! I admire him for thinking more positively now and less depressed. Hope he gets the guitar soon and a wonderful teacher. How badly is his sight affected and have the docs indicated if he may be able to regain some sight with time? Warmest wishes, thoughts and prayers. Try and have a peaceful weekend. Hugs. |
Praying he will be well enough for the spinal tap and to have a diagnosis. It is so really great that he wants to learn guitar! What a wonderful thing that is...not only therapeutic but such a fun instrument to make music. Hope the guitar gets there soon! Your son is remarkable. Hugs to you and all. |
Thank you for the update. It is wonderful that your son has something good to look forward to, in the midst of the disturbing undiagnosed illness. Keeping positive thoughts is an important key to his healing, and music is a wonderful tool. |
That desire of your son, while waiting for frightening tests and news that may change his life, to learn to play a musical instrument he can feel and learn by touch, hear and enjoy, even when his vision is bad, speaks volumes about the young man you raised. I'm so impressed by his amazing strength so early. How many young men wouldn't at first think it better to end things vs. living a different life than they want? Anything is better to the young than sickness. But given only a short time, this young adult has rethought his position and priorities, made some quality choices and reached out for something productive and beautiful to achieve. He's seen the necessity to keep his mind and body busy learning and has the strength to go about getting that started. He's impressive, that young son of yours. While going through hell, he's managed to start re-inventing himself to manage whatever is coming his way. One can't help but root for such a young man. I'll always pray for him. |
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What a wonderful preparation for something he wants in his "future".....a future he was not so willing to accept not very long ago....shows a great strength and attitude, and he is obviously more positive about whatever his future is. This is great news....his spirit has turned.....without wanting to offend anyone, I just want to "quote" a scripture that I get great strength from....Jeremiah 29:11....."I know the plans I have for you.....plans to give you hope and a future....". In the darkness, your son has stood still, as He tells us to do when our souls are in turmoil and chaos, and he has been touched....he has received Guidance! "If He leads us to it, He will lead us through it"..... |
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Praying the test goes well tomorrow and the answers and whatever treatment is needed can be started soon. How's your son doing - getting any rest? Does he feels like having a friend or two in? How is mom bearing up? |
I am praying for the test to go well tomorrow. You, your son and family are not far from my thoughts. :love: |
Test Hoping your son feels well enough tomorrow to get the tests. Praying for good news to cheer you both up. Have a peaceful day. Hugs, Dot |
Praying that your son is well enough for the spinal tap today. Been thinking of him and your family. Hugs to you all. |
There's no fever yesterday or today and the spinal tap is scheduled for 2pm so it looks like it will get done today. Waiting is killing me and lack of sleep as well. I'll update when I know more. |
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