Kathy, I'm just now reading other threads and saw this. I'm so very sorry. I guess I've been so self absorbed lately. How is Amanda? How has she been feeling? Is she recuperated? How old is she? I'm sure it must be very hard having a child with cerebral palsy. She's so blessed to have an angel of a mom like you.

Thamk you all for the prayers and well wishes...
 

The hospital arranged for transport for Amanda Monday night... she finally arrived home at 10:30 PM. (I didn't think they brought patients home that late... The driver was worried we would be asleep!, lol) As she was not allowed to be fed for 5 days, she is back on a 24 hour slow feed schedule, so my apologies for not updating sooner... been trying to get a schedule in place.

Sorry if this is a bit graphic...

She has a mild burn on her tummy from where the gastric juices were leaking around and out of her feeding tube, but that is healing nicely. The Doctor was able to replace the tube in the original spot, so that was great... no additional cutting was necessary.

Amanda was very happy to be home and in her own bed, and extra happy to be getting nutrition once again. Once she adjusts to the feeding liquid, her schedule will be adjusted to daylight feedings only (Yay!) and life will resume on a more normal level, lol.

My poor pups... didn't appreciate Mom being at the hospital everyday... but they adjusted alot better and quicker than I thought they would. Sapphire carried on and gave me heck whenever I came in the house, Bless her heart... she's such a Momma's girl! They are very happy that Amanda and Mommie are home! Peek A Boo has to follow me into Amanda's room whenever I go in there... he waits patiently under her bed till I'm done with my tasks. Tink monitors the other dogs and alerts me by barking her head off if anyone is in need of my assistance. What a crew! I am so blessed!:D

Please don't be sorry... you have enough on your plate!

Amanda is 28 years old. She was born with Quadriplegic Cerebral Palsy, mild retardation, and developed a seizure disorder when she was 7 years old. She has Kyphosis and Lordosis of the spine and is wheelchair bound. She can't talk, but does communicate fairly reliably when asked a series of yes or no questions. She attends a Medical Daycare in Whitemarsh for about 6 hours a day, 5 days a week (ideally). She really enjoys going there. I know she can't wait to get back to her normal schedule!

So glad Amanda is home. You are all in my prayers.

Wow, so Amanda has the most severe form of CP? What a long road you have had, my friend! I am glad that she is getting her tummy full again, and that drs. were able to replace the tube without any additional incisions. I pray her burns continue to heal nicely, and that she can get back to her friends and her routine. I am not very educated in CP, but I know that the disorder often means it's hard to control the seizures. Judy (Yorkiemom1) was right, "the battles that are waged around us that we are never aware of". Kathy, I had no idea. I know that you are medically very knowledgeable, but now I know why. You face challenges very day with quiet dignity and steadfast resolve, yet are always here to help, uplift and encourage others, all the while suffering yourself with medical issues this last year. You've just become my biggest hero, and also my friend. I look up to you, and I am in awe.

I just saw this Kathy. I'm so glad the surgery went well and Amanda is back home. Bless her heart, keeping you both in my prayers.