Something is Wrong with My Son
 

hi gang,

i haven't been able to read or post in a week or so and find that i sure miss this place when i can't stop in. it has been a horrid week. the coming one doesn't look much better but i'm willing myself to maintain some optimism.

one of my sons started complaining of pain in his back a week ago thursday. neither of us thought much of it at first but after the pain got worse and started spreading, we went to the doc....who had no idea what was wrong. he sent us home with instructions for trevor to rest. :confused:

the following morning he got up and told me he felt light headed. he looked pale as a ghost. i took his pulse and it was extremely low. called the doc who sent us straight to the er. 5 hours later, and without any explanation or new information, we were sent home. instructions were to follow up with the first doc. :confused:

the following morning we had some xrays done. went back to the first doc. 3 hours later we still know nothing. back home we go and trevor assumes his position on the sofa. doc calls and says we've got a referral to a rheumatologist. this seems sensible to me....except the appointment is in july. yes, i said july. :mad: try again, i told them.....and not so pleasantly, either. they call back an hour or so later and tell me they've decided to refer him to an orthopaedic specialist instead because they can see him in two weeks. well....ok....:confused:

meanwhile my son is planted on the sofa, getting grouchy and depressed, and missing far more school than he can afford to...and just, well, hurting. :(

the following afternoon trevor volunteers to go get the mail. i think to myself...maybe things are looking up. by the time he walks to the box and back which is maybe 100 yards, his chest is hurting so bad he has to lay back down. scared me to death, that. :(

i call the doctor. he doesn't know what to suggest. i can't stand not being able to make the pain go away. trevor's siblings are trying to be cooperative but it's stressful, beyond stressful. the house is a wreck, everything and everybody's out of sync and these are the times i just wish i had a little bit of help.

tomorrow morning i am thinking i will either call the primary doc again and tell him i want trevor admitted or take him back to the er. if this was something that just hurt but didn't leave him unable to function, i would wait. i am not an alarmist by any stretch....but i don't think any of us can take this not knowing, and not knowing what will hurt next, much longer. it seems maybe they can run tests and get consultations more quickly if he's there. i don't know....i am on the fence. i feel inadequate to make the decision and am not so certain i trust the doc to make it.

lulu is supposed to be spayed on tuesday. i've been dreading it and looking forward to getting it over with at the same time. now i don't know what will be happening on tuesday.

if you have the time, i would so appreciate a prayer or good thoughts sent our way.

please pardon the grammatical errors that are likely all through this....i am too darn tired to edit. thanks for reading.

My heart is breaking for you.. Please be assertive and make them test and find out whats wrong! I will pray for you and Trevor.

Courtney, I am so sorry that you are going thru all of this. I hope that the drs will be able to diagnose what trevor is going thru. It terrible to not know what it is that is wrong. Take one day at a time and as just keep positive thoughts going. I'll be keeping you and your family, skin and fur in my thoughts and prayers. Hugs. :) Bo

So sorry you are going through this. Prayers and good thoughts headed your way. You are absolutely doing the right thing by being persistant. Do not ever question yourself over that!!! (just a little pep talk there, don't let up until you get answers!!!).

sending prayers your way...I hope the Dr. can find out what's the problem....please keep us updated...

How far are you from a Children's Hospital? I know Children's Hospital of the King's Daughter is in Virginia...are you close to them? I would take him thru the ER and tell them you're not leaving until he is pain free. I hope they find what is causing his pain and please keep us updated....i'll keep you and your son in my prayers...and your little furbaby too. Good luck and god bless.

Keeping him in my thoughts and prayers.

Sending prayers your way. Keep good thoughts and I hope they find out what is causing Trevor's pain.

Special thoughts going your way ! I hope your son gets better soon.

Having gone thru similar problems with my granddaughter my suggestion is to be persistant. Stand up to the drs. until you get answers. How old is your son? The suggestion re: a children's hospital is a great one. Kallee's pediatrician sent us every place before we finally got answers....orthopedic dr., kidney drs., Shriners hospital, neurologists. Just keep at it. Prayers for you

Sending you prayers for answers and full speedy recovery!

I hope you are able to get some answers soon and that your son is feeling better VERY quickly!!

I'm certainly sending prayers your way. That' s really worrisome.:(

Hope you find answers soon. I will keep you and your son in my prayers.

I am so sorry that your son and your family are going through this. It is horrifying not knowing what is going on with your child. My son is a regular at Hopkins, so I understand your frustration and fear.

The only thing I can tell you is to stick with your intuition and keep letting the doctors know the seriousness of the situation. You are his advocate and doing what is in his best interest, so continue to stay strong, have faith, and say what is on your mind! As he needs to see your strength now!

Will keep all of you in my thoughts and prayers.

Any news? Im praying for your son.

I will pray for you and your family. I can\'t imagine going through something like this.... However, I know from experience that you KNOW when something\'s off within your body. Not having an answer is the hard part....because then your mind races thinking of all the possibilities which in turn cause more stress. I hope that everything turns out fine and your son Trevor will recover 100%. As everyone else has stated, stay strong for his sake and be persistent with the doctors... they do not always know everything and MANY mis-diagnosis\'s take place every single day.

God Bless!

I feel so bad to read about your son\'s illness. I will pray that you get answers soon and that he recover quickly from whatever it is. How scary and doctors should investigate and find the cause of the problem. I am praying for you and Trevor. Hugs to you!

Keep pushing to find an answer--kidney stones, heart, back strain, bowel etc...something is up--normal kids don\'t just crash out and have horrible pain--something is wrong---don\'t stop until you are comfortable with the answer!

Just checking back in to see if there were any updates on how your son is doing.
Keeping your family in my thoughts and prayers......:hands:

I hope and pray by now you have gotten an answer as to what is causing
your son pain. You have a right to know and it\'s the doctor\'s job to find
out the problem. I would go to another doctor for answers and not stop until
I got them. A young boy with back pain and chest pain and doctor\'s aren\'t
concerned? Time to switch and get your answers.
Hoping and praying your son is ok.

Holy smokes!!! I hope everything is ok, a few days have gone by with no updates.

As a mother I agree with the posts. Be persistent if you feel something is wrong. I had a child with sever stomach pain who would just scream and scream. I kept taking her in for tummy aches. Finally I got someone to take an x-ray and sure enough she was full of poop from top to bottom. The doctor was shocked. He said when he palpitated her stomach he never would have guessed. What she was doing was holding it in. he said kids have this incredible knack of not pooping and then when they finally have to go it hurts and then they hold it again. Vicious never ending loop. Had to give her mineral oil for a while. It was heart breaking.

As a kid I was sick. Nobody could figure it out and my mom wouldn\'t back off. 5 doctors and 4 ER\'s before finally demanding someone send me to Children\'s. They had me diagnosed and out of pain in less then a day.

Persistence ~ go with your gut

I wouldn\'t wait around with chest pain, I would definitely get a second opinion, Dr\'s are human they can make mistakes, miss something, or just not know. A children\'s hospital is a great idea! Don\'t leave the hospital until someone tells you what is going on with your son.

to all of you who responded here.....thank you from the bottom of my heart.

the few times i\'ve had a moment to check yt i\'ve not even had the time to view this thread. to read through all of your thoughts and words is beyond encouraging for me and i do appreciate them, and all of you, very much.

oh...where to start when it comes to my son..... first and foremost, i will say that his symptoms have lessened substantially. thank god. for several weeks, i was planted by his bedside at night for fear something would happen while he slept. i can sleep in my own room now.

he\'s gone back to school, though he still comes home and heads straight for the couch. this is unusual for him. i sense he\'s getting a bit stronger every day, though.

i still have no explanation for the symptoms. i am thrilled that they have subsided, but unnerved not to know what caused them. how do you prevent a recurrence if you don\'t know the original origin?

i have consulted with chkd...someone mentioned that here. yes, i consulted them first and foremost as i wanted him in the hands of the best. sadly, it just wasn\'t helpful. chkd wanted his regular doc to take the lead, his regular doc wanted chkd to take the lead....and meanwhile, i felt they were all letting him slip through the cracks. so i took the stinkin\' lead and spent weeks doing medical research while i watched him at night, and catching a bit of sleep when the other kids were home after school. it just had to be done. i wasn\'t going to wait, like one of the docs from chkd actually suggested, until my son keeled over to call 911 and finally get a diagnosis.

i could not find any syndrome, any virus, any anything that was marked by all the strange symptoms my son had. i still haven\'t. i noticed though, that as trevor saw how determined i was to help him, he seemed to feel a bit better. it\'s almost as if all of the speculation by docs, who then proceeded to do nothing, had terrified him so much all he could do was think about pain and worry about pain and worry nobody would help him. i looked at him one night when he\'d woken up and i simply told him, "trevor, you are not alone here. i am not going to let you hurt indefinitely. i may not be a doctor, but i\'m your mother and if i have to turn over the local medical school library to get to the bottom of this myself, i will. i promise you can stop worrying now."

you know...when i said it i didn\'t think it would be all that helpful but amazingly, my everything about him seemed to relax right in front of my eyes. i have never been so relieved.

it\'s been over a month, and no...i do not have the exact answers yet. i have what are some complicated theories, and am currently working with someone at the local medical school on those. it took quite a bit of tenacity to get in there, but i simply wasn\'t going to take no for an answer.

trevor has been seen by a cardiologist at my insistence. his heart has been deemed healthy. i have been feeding him all the healthy foods i can think of, and making a concerted effort to keep things stress free around here. i\'ve met with his teachers and requested they get with me immediately if they notice anything out of the ordinary as far as he\'s concerned.

other than that, i treat him as if nothing ever happened. i feel that asking how he\'s doing is only going to make him think about his health. i\'m certain he knows to come to me if he needs to.

he knows i continue to work on this and he knows i will keep my promise and for now, that seems to be effective medicine.

anyhow....it seems i\'ve rambled again....i apologize. i\'ve been out of the loop so long and not able to really have a normal conversation with an adult that it seems a dam burst when i opened my mouth!! :eek:

once again, thanks so much for the kind thoughts and words here.

I am so glad that your son seems to be doing better. My heart goes out to you on your fight for a diagnosis. I pray that eventually you get to the bottom of this.

Thank you for the update, many of us have been worried and wondering how he is. I wish you all the best to see him thru a complete recovery, even if the diagnosis remains a mystery.

Dear lulumom-
My heart goes out to you in a HUGE way! I personally suffer from extreme chronic pelvic pain due to a serious uterian disease. I know how scary it can be to watch someone you love suffer and not be able to help them and I know what it is like to be in that pain and feel your hope, energy and will to get through the day falter. This is a difficult journey for you as a mom but also for your son and all I can tell you is to take it one day at a time! One moment at a time really. I will be praying for you to have supernatural strength to face whatever tomorrow brings, for your son that they will be able to quickly find the source and treat it and in the meantime he would be encouraged as he waits to be pain free! Please let me know if there is ANYTHING I can do to be a support to you! I am new to yorkies and YT but unfortunately am a pro/expert when it comes to managing and coping with severe pain on a daily basis! Feel free to PM me any time day or night and if you feel like you need to talk live I would be glad to give you my phone number! I will be thinking of you and will check back with you tomorrow! Prayers and Hugs!
Mary

lulumom!
I just saw you mention CHKD! I live in Virginia Beach too!! I would love to find out more about you and if you need a meal brought one night this week I would love to be able to help out and make you guys dinner!! Please call me if this at all interests you! will PM my phone number!! How cool!! WE are VB\'ers!!!

I\'m relieved that your son\'s feeling better, but I know it has to be terribly frustrating to not have any answers!
I will keep him in my prayers! I hope you can get the answers you need!!