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I am praying for Cassie to get well. It is heartbreaking to visit your little one but I think it will do you and her good. Like someone said, bring a shirt or something you wore so she can smell your scent...it is comforting. I will be checking in and hope to see an update on how she is this today. |
My heart is breaking for you!!! Prayers! |
Prayers to Cassie and you! I'm so sorry! |
OMG..........I am dying for you and sobbing uncontrollably as I try to type....this is my Hailee's story all over again......I am sooooooooo sorry....I sincerely wish there was something I could do or say that would help relieve the heartache and gut wrenching nausea and pain and shortness of breath you are experiencing.....just know we are all here for you, and that those of us that have actually lived your horrible circumstance, do actually "feel your pain"..... I can say, when I went in to see my precious little Hailee, she tried so hard to get into my arms, it was not doing her any good and her o2 levels began dropping as she struggled to come to me....so I sat in the exam room and squalled uncontrollably for 5 hours, to the point of exhaustion.... Praying for you and Cassie now....praying for strength for you and peace and relief for your precious Cassie....I am sooooooo sorry............... |
My thoughts and prayers are with you and Cassie. Praying for strength for you both. |
Thank you all for your prayers and wishes, I called a little while ago, and the tech said that she is eating regularly, but she is still in oxygen. She said there was a teeny tiny bit of improvement, but only a little, and when I started to get excited and hopeful with any positive movement at all, she said, no, it really is only a very tiny improvement, not much at all, so I was shot down a bit thinking we were moving in the right direction and she needed to qualify that no, it is really nothing to get excited about. She said they sent Cassies X-rays out to another radiologist, a different one (these are not new X-rays, they are the same ones, only the radiologist is different.) They are hoping for a more definitive diagnosis I think. They say they will call when they have an answer. To me, the fact that she is eating regularly is progress. I need to hang on to any tattered shred of hope I have. I will go see her today, soon, I think. I was talking to my dad today, and I was saying that in my wildest dreams, when I took her into the ER, did I ever even suspect that she might have cancer. I pray it is not, but I am so devastated by this possibility. I cannot get my mind around it. She seemed perfectly fine before she vomited up her food. She was playful on my bed a couple of days ago, and even started to mount Muffin who is a whole pound and a half heavier than her, in order to show her how is boss. She was very playful. And the insane thing is, that she, of all people, does not deserve this. She is the most loving, kindest, gentlest little creature on God's green earth. Why is this happening to her on top of all her other crazy disabilities. She does not deserve to suffer like this. I don't understand this. How can such a beautiful, loving, sweet baby be made to suffer so much in life. How can this be fair in any sense of the word? Between her AAI, and her cysts on the brain and hydrocephalus, and eating disability, and etc, etc, (which we overcame, I thought) even the accidently poisoning with xylitol, after all this, and her being so brave and determined to survive in spite of how tiny she is, her enormous spirit and heart, how can the universe, or God or whatever, do this to her? I simply don't understand. My baby does not deserve this. She deserves a happy life. Why is this happening to her? Why?:cry: PS, I left my shirt with her when I first brought her in, everyone, so you don't have to worry about that, it has been done |
I am so sorry your baby has such a hard life. Hearing about how much this sweet baby has suffered makes me so angry. I don't get it either. I believe in miracles and I pray for a miracle for your little one. Again, I am so very sorry. |
Poor Cassie.... she has had a lot to deal with in her 6 years. Don't give up, and we will continue to pray for her miracle recovery. |
Update Everyone, The doctor just called and I am crying with tears of hope and joy and hopefully not temporary relief. She said that they spoke to their regular radiologist, and she concurred with the other weekend radiologist that it could be cancer or pneumonia, and that she is going with pneumonia. The doctor said she is eating and doing a little better and she thinks she just might be responding to the ABX, so she is going to stop these ABX and they are going to be hitting her hard with everything they've got, with the most powerful ABX they have available, that kills everything in its path (except her of course). They can only use it for 4 days, because then it starts to kill the good bacteria-but although this is not a definitive diagnosis, it is the one they are all going with, and this is the diagnosis the doctor was hoping and praying to hear from their radiologist. So there is hope. I am so relieved, I just hope the ABX is not too strong for her. That is what I am worried about. I am getting dressed to go down and see her after I feed and love up Muffin. Thank you all for your love and prayers. I wanted to let you all know before I left so you would have hope, as I do. Blessings to you all. I need to go now, but will update later as always. Much love to all of you angels. Shellie:) |
Sending my prayers with you for Cassie... Eating is an excellent sign... as is being upright... |
So glad that the news you have received gives hope of recovery. I will keep you and yours in my thoughts. |
Sending prayers for Sweet Cassie. I am glad she is eating that's a good sign. |
Sending prayers for your baby!!!! So difficult as we love them so much!! |
Wow my heart was breaking for you as I read your posts & your last update has me filled w/hope! Hope & pray that precious Cassie will overcome this & she'll quickly heal & feel better real soon! |
PRAYERS SENT:hands: |
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