| Mybabe4me | 06-30-2007 04:13 PM |
New Update On Baby Mikey
Hello Everyone,
First off I want to thank you all again for the thoughts and prayers that you have sent me and my family durning this very hard time. And thank you all for keeping those candles lite.
Becca finally was able to give an update late this afternoon. And I am going to post it at the end I will place Mikey's candle burning ceremony link for anyone who would like to lite a candle for him. He is going to be spending his 1 month birthday in the hospital. I just hope he is so much stronger by then. And he can come off lifesupport. Please keep sending the postitive thoughts and prayers.
hey everyone. sorry it took me so long to write today. we have been staying with mikey most of the day. its not often mike is up here all day. he is going back home tomorrow so he can make it to work on monday. although he wont be going home till tomorrow evening, its still not the same when he has to leave. so we spend as much time as a family as we can. going off of what my mom wrote, here is a little more information. the doctor today informed me that the white blood counts were a little high again (back in the 30's), so they were concerned the infection may be in the excess fluid in his brain (the cystic hygroma). so they called the neurosurgen team down to extract some fluid so it could be tested. i was able to see the fluid, and could tell immediatly that the infection has gone to it. it was neon yellow. technically, that was spinal fluid, and even when they took spinal fluid out, it wasnt that yellow. it will take up to two days to recieve the information back if the infection is in fact in there. now, the thing about that is, no fluid has gone in to that pocket, and no fluid has come out. so its just sitting there doing nothing. and they dont think the antibiotics have been able to get to it. so this may be whats keeping mikey sick and causing his levels to rise again. he did seizure when the neurosurgens where there as well, and they could tell, just by his seizures, that it is in fact his upper right brain that is doing it (where the fluid is sitting). he is medicated for his seizures, but it only treats specific seizures, and obviously, not his type. so they will be trying a different one (right now he is on kepra). since he has been on this mediciane though, his breathing has slightly improved. he is taking deeper breathes and breathing while sleeping. before, he would stop breathing during seizures, and now he continues to breathe through them. so the "best case scenerio" is that his seizures are causing the problems they couldnt find answers for. and i know how horrible it sounds to cross my fingers that my son is seizuring and causing these problems, but its the best one out of all the possibilities. seizures can be treated, some of the other things can not. i most likely will not update again today (unless something big happens), and possibility not till a little later tomorrow. i know this morning when we walked in, mikey was wide awake looking at mommy and daddy. so we didnt want to leave him. we are now praying every minute of every day that GOD will take care of him. yes, from my mouth, me and mike are praying. we hope everything works out well, and right now its going uphill. but its been a bumpy road so far, and we dont want to jinx anything. so i will talk to you all later.
becca
p.s. i have asked and the doctor said the best way to take care of the fluid if its infected is to drain it. so there is a possibility he will have another surgery in the near future http://www.gratefulness.org/candles/...l=eng&gi=Mikey | 