What a sweet baby! I am so sorry you are going through this! We are praying everything is going to be ok. Just remember, God has a plan for everyone, just keep praying. We lit a candle for you and your family tonight.

just checkin in on baby Mikey... you are all in my thoughts
d

Sorry for the late post
 

Hi Everyone,
Sorry for not posting earlier, but we have had a very rough day. Just to start off I will tell you some of what happend but I will also put my daughter's posts of the day in this letter so you all know what went on.
To start off with this morning I got up to make a post on YT,but my internet server was down. So I had to go to work. I had to take the person I take care of to the hospital for surgury. Well, after we got home from the hospital I got a call from a very close friend.(my daughter's god mother) she was crying her head off. I asked her what was wrong.( well today my daughter knew she would have a hard time getting ahold of me becuase I was going to be in the hospital all day) My friend asked me if I had read Becca's latest post. I said no why. Well she read it to me.(I am posting it now here it is)
hey everyone. i was informed this morning that what mikey has is menangitis. when i got back with mikey this morning, they decided they wanted to try the cpap again. which is a good thing. they are still trying to get him off of the ventilator. he actually did really well for about 10 minutes, he was breathing by himself. but he wasnt active and they wanted him to wake up a little bit. so they started tapping his feet and wiggling his legs. then he stopped breathing. and his o2 went down, and then his heart rate started to drop. so they hooked him back up to the ventilator. however, that isnt the bad news. the doctor explained to me after a few things they are concerned about. they said he is being watched very well and they want to make sure everything is going to get better. they told me two things that could be happening. they said where he is having a hard time keeping his temp up, and now having apnea spells, it could mean that the bottom part of his brain has been affected. that it may never heal. the other thing was that the menangitis has severaly affected his brain and has done damage to it and now he will have more problems then he would have before. they are continuing to watch him, and we are now waiting for the neurologist to have his input. this was some very hard information to absorb by myself. i really wish mike was here right now, but i understand he needs to work. we still need to pay bills, as every family does. mikey has been very inactive for the last day. they think that could be due to his brain as well. they are still doing test, but are not entirely sure how everything is happening. they believe he got menangitis from the surgery. mikey is still pulling, but im not sure for how long. he is doing okay, but everyday changes. its starting to get hard with the information i heard today. i dont want to lose my baby. he is my world. i gotta go and have a good cry now. i will update later.

becca
By the time my friend got through half of the letter I was in tears. Before I could get off the phone with her she informed me she sent her husband(my daughter's godfather) to be with her so she wasn't alone. I got off the phone with her and called Becca to see what was going on. NO answer. So I called my mother and made a few other calls. Becca called me back and she asked me to please come. I got someone to come in and sit with the people I take care of and ran. Now this hospital is well over an hour away. While I was on the road I got a call from my daughter with more bad news. This is what she posted the second email(here it is again)
after writing the last email, i went back to be with mikey. the doctor came in and informed me that results from an earlier lab came back. it seems that his red blood count is low. and is getting lower. so he is losing blood somewhere, and it is pooling up somewhere as well. so now he is on his was down to have a ct scan done because they think he may be hemorraging in his brain. either way, he will be having a blood transfusion. after we get results i will try to email again. i have called several family members and mom is on her way. aunt holly, uncle ray is here now. i know i said i didnt want any visitors, but this is for me. right now, i need support. im about to break down. thank you all so much for the support. it is helping in its own way.

becca
So I was on my way to say goodbye to my new grandbaby. When I got there everyone was there with her and her husband. The nurse came out and was talking to her when we got there. So i came in at the last of everything. But they were waiting on the Neurologist to come in and talk to my daughter and her husband. When the kids came out and told us what the doctors said we were over joyed. I am going to post what my daughter posted again. Sorry I am just so tired from everything that went on today I am having a hard time keeping my eyes open. And I have a major Migraine.
(here is her third post)
i wanted to let you all know that finally we got some good news from the neurologist. we found that he is severaly anemic, and that is why his red blood count is low. they have been pushing fluid and taking blood, so now they are giving him his blood transfusion to help with it. as soon as he started to get blood, he woke right up and kept looking around. it was the best thing i have seen in a while. then the neurologist came in and said that his brain looks great. if anything it looks better because his ventricles have still come down in size. he is not seizuring, and there is no hemorage in his brain. he said the results of the EEG were that of a normal child, just slightly slow, which with a hydro baby is common. the fluid around his brain will be reabsorbed, and they are not concerned about it at all. he is starting to come around. they said probably two more days and he will be off the ventilator, and hopefully out of the PICU. i will continue to update when we get more results.
becca
So as you can all see we all have had a emotional rollercoaster today. I do need to ask you all again to please keep those candles lite for my grandbaby. They last 48 hours, you can lite as many as you would like and as often as you like. He is going to get better I can feel it. My daughter opens all the candles and reads them when she has the chance. I really think that it lifts her spirits. I am going to post the link again for all. Thank you all for caring and worrying about updates. If you see it has taken me a while to post you will know that there is something up and I will get back to you as soon as I can get to a working computer. Thank you all again.
http://www.gratefulness.org/candles/...l=eng&gi=Mikey

We have lit a candle for mikey and we are keeping him in our prayers.:hands:

I lit a candle for baby Mikey...I have a good feeling that he will recover just fine...hugs to you and your family!!

Dawn

First and foemost Congrats on your grandbaby, he sure is beautiful! I am sorry that he has to endure all this pain and suffering so early in his very young life. He looks (and sounds) like a fighter. May God watch over his young life and keep him safe, and once again healthy. I will keep you & yours in my prayers. Though it may not seem like it now, but this child has been blessed with a wonderful family!

Thank you so much for the update ... I look every AM for news. Little Mikey is a fighter and I believe with all my heart that he will do well. God bless you all.

Goodmorning,
I have not heard anything from my daughter since last night when I left the hospital. So I am hoping that is a really good thing. I am getting ready to go to work so I will not be able to update until later on this afternoon. I just didn't want to worry everyone. I am praying this afternoon there will be some great news that he was taken off the ventilator. That news would make my day. Thank you all so very much. I just can not say it enough.

Thank you for taking the time to update us on Mikey, it must be so stressful for all involved...Mikey has had a rough time in the short time he's been here, but he's showing what he's made of...this tiny boy is so strong & determined...thought & prayers for continued good news...

Still praying for Mikey.............

Oh I forgot to add. Today is Mikey's three week birthday. I am praying this means there will be a big turn around and they can take him off the vent and he will be on more of a road to recovery.

ooh that poor Baby ! Keep your chin up , miracles do happen, trust me i know, i had a grandchild that was born with a neuroplastoma (childhood cancer) she had only a 20% chance of living. After many, many surgerys...in 2 weeks she is turning 18 ! Lots of Prayers coming your way !

I lit another candle for baby Mikey. Prayer's still coming for him and his
family. He is such a strong little baby to go through all that he's gone
through these last three weeks. That has to mean something.

Hugs,

I lit a candle for Mikey. He seems to be such a fighter and I am praying for good news soon.

It looks like good things are coming Baby Mikey's way.

Thank you God.

That is sooooo good to hear. Like I have said before, I am 100% sure that Mikey is going to recover and show no signs of this again. God is answering all of our prayers and you will have good news soon, I just know it.

another bad update
 

Hi everyone,
I am going to post Becca's email to everyone today. It isn't very good. I am sorry this is going to be short. I just got back from taken Babybear for his accupunture and I have to go back to work. I will try to get on after I get back home. Please keep the candles burning.
Thank you very much. Sorry this is so short.
hey everyone. just wanted to update you all. today started off pretty good. he was able to get his ventilator tube out and he was breathing by himself for just about two hours. then he started to fall asleep and stopped breathing again. this time his heart rate was down in the 50's. so they had to bag him and put him back on the ventilator. i asked the doctor why he would do good, then bad. he said he still thinks there is neurological damage and that the menangitis isnt helping. this confused me because the neurologist yesterday said everything was looking okay and that nothing looks damaged at all. anyways, mikey gave it a good shot. we called a couple family members, to inform them how it went. and then after, we went back to the room, i asked the nurse why one doctor is saying one thing and the other doctor is saying something completely different. she explained that you cant tell if the brain stem is damaged. its like breaking your leg, you know its hurts, you limp, its signs that its broken. but you dont know its broken until you look at an xray. then again, sometimes the xray doesnt show its broken. she says its not the same, but similar to that. you can look at the brain scan, but cant tell what damaged. then she went on to explain he has been off of all drugs that would make him sleepy, but he continues to sleep. hes not waking up often at all. they didnt even have to sedate him this time to put the tube in. she said it definitly well could be from the menangitis, or the infection. but he has been on antibiotics for several days and should be doing more then he is right now. so they are going to keep pumping those antibotics into him and when his fourteen days are up and he is still not doing well, then they will lean towards there being a neurological problem. this is driving me nuts. i hate being told one thing, and then another. you would think the neurologist knows what he is saying. mike was here this time when the doctor said it. so he knows what he was talking about yesterday as well. im becoming scared again. im trying to stay positive, as is everyone else. and i know people have told me on the hydro group im on, that some of thier children went through the same things. so im hoping that mikey makes it out okay. but the way the RN was just talking, im not too sure. i guess we all just got to keep our heads up. hope that he does a good job. i mean even from yesterday he did better. yesterday the tube didnt even come out. he only lasted 10 minutes on the cpap. today the tube came out and he did fine for just about two hours. so we are hoping that he gets better day to day. and that the infection is causing everything. if we hear more, i will continue to update. sorry for the novel this time. thanks
becca

my prayers are with Mickey, his parents and your whole family

I am glad Mikey is breathing a little longer on his own but hope tonight he will start to be more alert and less sleepy. I am sure his little body is just tired of getting poked and prodded. You know how it is in the hospital and you never get any sleep so maybe he is jsut worn out. I hope tomorrow is a better day for little Mikey.

Val, thanks for the update! Will continue to pray for Mikey. God bless you all.

What a roller coaster for all of you. Hang in there, and keep praying. You're doing great considering what you're going through.

I'm going to light another candle and send out another prayer.

Prayers and a big hug.

Bless You All! I lit another candle for Mikey and sent the message on.. .Prayers do wonderful things! I will continue to pray for your precious baby boy!
d

I have lit a candle for this precious little baby and his family.

I am praying for your precious baby. I would think that he would be tired and sleepy after all he has been through. I am praying that is sleeping so much is due to the fact that he's been so sick and his little body is weak, but will grow stronger each day. I think it's a good sign that he breathed on his own for so much longer today. My heart goes out to you for all that you are going through. I pray that he will come out of this a happy and healthy baby. Hugs to Mikey and his family.

Hoping and praying today will be a better day and we get awesome news about Mikey.

Hope baby Mickey is doing better today! Don't give up hope and he'll pull through! You & yours are in my thoughts and prayers!

Sorry for the late update
 

Hi there everyone,
Sorry for the late update. My cable modem went dead and the cable company told me they couldn't come out until the 7th to fix it. I told them I will buy my own and do it myself. I just had to call them with my numbers on the new one. And it is going ot save me 5.00 a month.
Well today has been much better. Mikey has woken up and has been trying to move around. He has been pulliing at his tubes in his mouth and popped one of the blue pieces off. The doctors told Becca he keeps this up they will have to sidate him again. Just what she doesn't want. He was put back on the cpap for a hour and a half today did great. They just wanted to exercise his lungs. They might try again tonight. Becca asked for him to stay on lifesupport for at least one more day so there are no set backs. So he has been doing great today. All the prayers are helping. Thank you all very much.
I have to run I have to go swim Babybear. IT is getting late and need to get this done.

i lit a candle for mikey, my prayers go out to you and your family. glad he's getting better:)

Thank you for posting the updates....with all you are going through it must be a little hectic fitting them in ...it's great news Mikey is better...even if it is a small step at least now it's in the right direction....Mikey's days are moment by moment milestone....good thoughts for continued progress....