Praying it is just a b12 deficiency! Ask her if the feeling in her fingers feels like her skin is crawling. Alot of the times b12 deficiency syptoms are similar to that of MS. Also if levels are low it can have neurological effects - which could be why she can't taste the lemon on her tongue. Does her tongue have spots on it? Poor little girl! She seems like a trooper! Please keep us posted!

Checking for updates and sending prayers that today you get some answers and good news.

Sorry it took so long to get back. Ok I call the dr. from 1:00 on, every half hour. I leave a message. Then I call at 4:00 and the messge says that the office is closed. So by this time I am nuts and angry. I call the service number and I tell the lady what has happened so far, she asks me why i haven't taken her to the ER... I tell her that I am just doing what the doctor, that she works for, told me to do. She connects me to the office and the girl tells me that she could call the lab and get the results faxed over to her but there is no doctor there to read it. I am fuming now. I tell her to fax them to my pediatrician because they are open until 9pm. I call the pediatrician and explain the whole story to the receptionist. She says she will check by the fax machine and have a doctor read the results right away and she will call me back. After all that all the bloodwork is fine!!! Now what??? I have to wait until Monday now and call back the neurologist, if she is in, and find out what we do next. I just don't know what to do. It's not lymes, it's not vitamin deficency. and who knows what else she checked for. She didn't seem to be too alarmed, but in the meantime my poor girl is all weirded out. We better have a plan of attack by Monday or I am going to take her to the ER and stay there until we find out what the heck is going on. This is ridiculous. I am just worried sick!!
I will post when I have more info. In the meantime, thank you for all your support and prayers. It means alot to have you guys.

That is so frustrating. I will continue to pray for your daughter. If you take her to the ER do they have access to her lab results or were they done at an independent lab?

Sending prayers that the doctors can solve the mystery soon so that your daughter can get some relief and you won't have to worry.

I had severe hyperthyroidism that took doctors a few months to diagnose. It was hereditary, but my family are terrible health historians, so not even my father recognized the symptoms. However, I never experienced any kind of numbness.

Don't hesitate to go to the ER this weekend if your daughter worsens. An ER doc is the one who finally diagnosed me.

Just seeing this now. How unbelievably frustrating that you didn't get an answer today. I feel so bad for you. I've got an almost 16 year old daughter as well and cannot imagine what you are going through not knowing. I'd have to agree that if her symptoms become more severe over the weekend take her to the ER. They will notify your neurologist and he will be able to at least look at her blood work.

What a terrible worry you are going through. I will say a prayer that it is figured out on Monday. It is so hard not to know what is causing her symptoms. I hope you get some answers soon and that it is easy to treat. Hugs to you and your daughter.

If it was me, I would go on and take her to the ER. I know it costs a lot, but they may look at it from a different angle. They can access MRI's, cat scans and other tests. Please keep us informed.

I have a 17 year old son and if I had not had some type of results before now I would go to the ER.

I have your daughter and YOU in my thoughts and prayers. Sounds like you are going through a very scary and frustrating time.

Is it possible that she has a pinched nerve. All of the symptoms that you have described point to nerve pain - which has been my constant companion for the past 4 years. Nerve pain has a mind of it's own and a pinched nerve can wreak havoc on an otherwise healthy body.

:hands: :love: :hug:

My MIL had a virus that had similar symptoms...that is why I asked if she has any weakness. Does she have weakness or just tingling?

Hope she is feeling a bit better, and know how hard it must be for you as a parent.

I was hoping you had gotten results. :( As others have said, the ER would have access to specialists and tests. The whole situation has to be so frustrating for you.

I am sorry the blood work did not point out what is causing your dd numbness. I know this i must be so hard for you and your sweet daughter. I hope and pray next week brings more positive news. Best wishes and healing prayers.

Hi all, I took her to the ER yesterday. She now has tingling sensation in her hands and feet when they are bent. I just could not wait any longer. They did a whole new set of bloodwork and still nothing. They gave me a doctors number that is affiliated with the hospital. I will call tomorrow morning and try to get her in asap. She is now getting frustrated, I found her crying in her bed last night because she says it is so annoying now. I assured her that it is not a tumor or anything in her brain causing this. The bloodwork is all ok. That is a good sign, infortunatly no answer. I told her we will get to the bottom of it soon. I feel terrible as she has regents exams and finals in her classes next week. I hope she can concentrate. She will be a senior next year and these tests are important. I dont tell her that as I do not want to stress her out. The doctors at the hospital did all kinds of strength testing and motor skills and balance. She checked out fine. Her heart and lungs are good. No facial paralisis. She says she feels fine except for the weird skin thing. Who knows, I will keep pushing on 'til we find an answer. I will keep you guys posted.

Sometimes not knowing is harder to deal with than knowing. Sounds like all the right tests are being done, just a matter of getting to the root cause. Still sounds like it is something at the nerve/cellular level. Hope you get it resolved soon. I can onlu imagine how you both must feel.

i sure hope they find the cause soon it sucks when our kids are not feeling right and the places we go for help can not help us

I so wish somebody had the answer for her. :(

Just don't give up. When I had a tachycardia issue going on as a teen, two general practictioners, two ER trips, two cardiologists, and one endocrinologist were completely clueless. Four years later I went to a different GP and she sent me to two more cardios. The last one figured out the problem (we had a big clue what it was, but wanted the confirmation). So that's, what, 9 doctors for the answer? Get a third, fourth, fifth, sixth opinion if you have to. Drive them crazy. Insist that they figure it out.

BTW, I was finally dx at the Detroit Medical Center. If you don't get an answer soon, don't hesitate to go to a medical school or major medical center. They see a lot of things...

Thanks guys. The support here really means alot. I feel she is kind of getting depressed about this. I have to watch her like a hawk. I'm a wreck. She just keeps saying that people just think she's crazy. Unfortunately is is very difficult for her to describe the "numbness". I took her to a University Hospital. There are tons of doctors and professors there so I'm sure we will get an answer. If not I will take her into New York City and get her to one of those hospitals. I am right here on Long Island so the "city" is only about 45min away. My older daughter had her leg surgery in Hospital for Special Surgery and subsequently at New York Presbyterian Hospital so I am not afraid to go there to get the help she needs. It is just so frustrating seeing her this way. My husband and I are just wanting to help her "get back to normal"

I will pray your daughter gets answers soon. Please let her know she has our thoughts and prayers. I can't imagine how frustrating this is for her and you. give your daughter ((hugs)) from me. :)

Just seeing this thread - so sorry your daughter and you are going thru this! I'm sure this is causing both of you tremendous anxiety.

I can't agree more w Crystal about getting your daughter to a large university hospital. There are some very smart ppl in the NYC area in the teaching hospitals. They are much better equipped in diagnostics and trained in rare presentations of illnesses.

Just a thought, you may have already done this, but a journal of when this started, how started, which parts went numb first, progression of numbness, would probably be appreciated by the drs.

Will be keeping the two of you in our prayers.

It sounds like you're on the right track.

If you don't get answers from one uni hospital, move to another, etc.

I actually was told by a dr. at UofM that I didn't have something that I and my GP are quite certain I do have. So, sometimes you do have to move around to get the answers that you need.

You sound like a fabulous mom. I know when I was going through my thing, I waned my mom there but not visibly panicky.

That is the most frustrating part of having something that can't be easily diagnosed. I was told I was crazy and that I needed to be treated for an eating disorder. Your daughter is fortunate to have you at her side. Keep hammering away at the doctors. I pray the mystery is solved soon so that your daughter can get some relief.

I think the fact that I am trying to keep calm on the outside is making her believe that I don't care. I told her I will do everything I need to do to get an answer. I also told her that we believe her. My friend has MS so she can relate to the "nummy feeling". It makes my daughter feel better that someone else believes her also. It's harder when stuff happens on the weekend because you have to wait until Monday. This is the hardest part about being a Mom. It's not the fun part. I went from being so high and proud of my son for graduating from college on Tuesday...to this on Wednesday. She will be fine I am sure of it. Just wish we knew so we could treat it and get rid of it already

I feel so bad for you all. It is so scary to have symptoms and no answers. I know they don't like to prescribe meds without a diagnosis but could they give your daughter a mild anti anxiety medicine to see if that helps. I have an anxiety condition and it can manifest in many physical ways. Now a days teens are under so much pressure. Just a thought. I will keep her in my prayers.

Keeping your daughter in my prayers.. Maybe soon you will get a answer or at least they will send you to the right place for diagnosis! HaNG IN THERE

Wow...just seeing this thread. I am so sorry. What a concerning thing to be going through...and definitely hard on a teen. I hope you soon find out what this is.
Prayers for you and your daughter.

Saying prayers for you, hoping you find an answer soon and it is something easily treatable. I understand the numb feeling, I lived with a father who had multiple sclerosis my whole life...Hang in there, have hope.

I am so angry right now. My friend who has MS went to this neurologist for her, I guess, annual appointment and they thought it was appropriate to discuss my daughters condition. The doctor told my friend that we may never know what it is and it might just go away. She told her about my daughters bloodwork and everything. That she checked for lyme and everything. WTF I am fuming!!! Why is my daughters doctor discussing my daughter with another patient. I mean my friend knows everything but who the heck is she to talk about my daughter anything!!! I have to go there later at 4pm for another appointment with my daughter. I thought I would go at least to hear about the bloodwork and to get a copy of it and the cd of the MRI. Maybe I should ask her about my friends MS and what is going on with that!!! I think anyone who gets in my way will feel the wrath of this sicilian mother!! I have to calm down. Oh maybe we should just sit around and wait for it to go away! yeah right. When my daughter looks down at her arm in class and sees a drop if blood and has a scratch that she didn't even feel I am not waiting for anyhting to go away!! Sorry for the rant. I will let you know what this idiot doctor has to say about the next step we take.

If this is true - and I'm not doubting you, I'm questioning this "friend" and how truthful she is - this is a violation of HIPPA. The dr should know this is a big NO NO. Charges can be brought against him for discussing another pt to someone else (not dealing w her medical care and info necessary for the other person to treat your daughter). This is a federal offense that carries fines. This is serious business in the medical world if this friend is telling you the truth.

Is this dr affiliated w a hospital, university, or is this his own practice?

I think it is about time for a new dr, especially if this is true.

I've worked in healthcare for years, practice in clinical care, and HIPPA is a very serious violation.