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-   -   Chiari Malformation (https://www.yorkietalk.com/forums/off-topic-discussions/110969-chiari-malformation.html)

Shadow 01-23-2008 07:51 AM
So sorry Patti,how is she doing.Did she have to have surgery?
Quote:
Originally Posted by patty58 (Post 1690330)
I will keep her in my prayers. My granddaughter was diagnosed with syringomyelia when she was 2.

ARCHIE 01-23-2008 07:55 AM
Prayer's are on their way for your niece. Wishing her a successful surgery
a speedy recovery.

cj_michi 01-23-2008 10:35 AM
I have two cousins that have this the oldest has the more severe and the young girl has a mild form. I will say the oldest which is 14 going on 15 has been in and out of the hospital for the past year and a half numerous of times. He's had about I would say 50 surgeries and still counting. He makes improvement but then relapses again. My cousin had to move from Houston to Chicago so he could be treated by one of the best doctors in this matter. If you are interested I'm sure my cousin(the kids mom) is more than welcome to talk to you about this as she has became a real advocate for this. If you are interested you may PM me. I know she was keeping a blog about it I don't know if she still does. I wish your family the best as I know how difficult this illness can be and I will keep them in my prayers

patty58 01-23-2008 10:50 AM
Quote:
Originally Posted by Shadow (Post 1697778)
So sorry Patti,how is she doing.Did she have to have surgery?
She hasn't had to have surgery so far. They are so afraid the surgery will 'cause more damage. She has not had problems for a couple of years but is starting to have pain again so we are taking her to the neurologist for another MRI. She has had so many.

Shadow 02-25-2008 09:40 PM
How old is she now? I will keep her in my prayes. My niece's surgery is Scheduled for April 11.
Quote:
Originally Posted by patty58 (Post 1698303)
She hasn't had to have surgery so far. They are so afraid the surgery will 'cause more damage. She has not had problems for a couple of years but is starting to have pain again so we are taking her to the neurologist for another MRI. She has had so many.

patty58 02-26-2008 06:59 AM
Thank you so much for asking. She had her MRI and it shows that the cavity is still there...I think about one third of her spinal column is affected but now she has a bulging disc. We still can't see the neurologist until the middle of March. Pediatric neurologists are few and far between!!! even here in DFW with 2 children's hospitals.

MindieRose 02-26-2008 08:23 AM
Quote:
Originally Posted by Shadow (Post 1660976)
My niece was just diagnosed with the brain condition, anyone else have it or have heard anything about it?
Yes, my mom and brother have it. My mom had surgery to correct it, my brothers isnt as severe. I can get you whatever details you want from my mom. She had the surgery about 14 years ago now.

Little Bit 02-26-2008 09:00 AM
I don't know anything about it, but there was an episode on Extreme Makeover Home Edition that had a family dealing with this.

Your niece will be in my prayers.


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