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Do all of you know about the yahoo group NewGMEDogs?? It is a support and informational group for people who's dogs have GME!! I highly recommend it, it has helped me tremendously during this hard time with Brooke. Here is the link, NewGMEDogs : NewGMEDogs Please join, you will not regret it. Good Luck to everyone! |
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Lee Ann |
Question For those of you whose dogs have Necrotizing Encephalitis or GME, have any of you noticed that your dog after taking pred or chemo now has red veins that are more prominent on their stomach. Gidget is doing good but I never have noticed any veins showing on her stomach and I just noticed them today. Her belly doesn't seem to be swollen but veins are just really showing up like I never have seen them before. Her stomach looks like she has varicose veins like a human would get on their legs. Any thoughts? |
Blind and Weak From the things I am reading on here, I have male yorkie not 4 years old that has this. He has all the signs that has been mentioned. He went blind about 3 months ago, then about a month ago he started going around in a circle, then about 2 weeks later he started acting like he was getting weak in his back legs. I can not afford to take him out of state and get a MRI. I need any advise I can get on this. The vet is trying him on some predizone and antiboics and has done this twice now. The first time he was gave me a week of them, this last time she gave me two weeks of the predizone. Any advice will help. Thanks in advance. |
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Here is more information. gme |
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vo120258@yahoo.com |
? Necrotizing encephalitis VS GME My sweet girl Mia has been at NC State Vet School in ICU, I thought it might be Portal Shunt but this AM the neuro dept DVM called me to say that her Ammonia tests were ok and that she probably has Yorkie Encephalitis. We had been treating her at the local vet x 2 weeks and had ruled out Addisons and were going ahead with the Bile Salts study the following day. That evening she started agressively circling and salivating and on my way to the Urgent Care ER Center, she started to have a seizure, this was a very frightening event, the first of a total of 4 over a 24 hour period. She received Valium each time and also started on Phenobarb with no further seizures. I transferred to NC State Vet School care and now this very frightening news!!! PLEASE someone ot there help me!! She is my baby girl, only 3 years old!! They are going to do a CT scan then a spinal tap but WHY did the vet come out and tell me this first without any diagnostic work to support it??? I am in great need of some help please!! He said he thought she was now blind in one eye. She is not lame in any extremity. HELP!!!!!!!!!! |
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There is more information about it on the Yorkie Angel Patrol website: gme |
Mia/GME/Seizures I feel horrible that when she started circling this past week that I did not take her immediately to NC State but instead was taking her to the local vet who I feel was clueless about Yorkies (just moved to a smaller town from Raleigh, NC) Do you think that since she had a seizure that she suffered more damage? I grabbed her up and was on my way to the Urgent Care when I noticed her anxiety, increased circling and salivating. That was the first seizure and 30 minutes after arrival there she had another one. She was never lame and was walking from her bed to the door to go outside without circling and I only noticed it occasionally. I had NEVER heard of these kind of neuro problems before and really thought it could be a portal shunt problem. She has been receiving Decadron and Phenobarb which has made her very groggy but she is out of ICU today. Funny thing about this is we went for a ride and she actually started acting like she felt better and was staying out of her bed more just the day before the seizure!! Do all dogs have to take Seizure medication with this? THANKS to everyone on here who can help me! This little girl had tube feeds and then a cleft lip repair at 3 months and she has been through so much! And she is the love of my life! |
yahoo support group Please go to: NewGMEDogs : NewGMEDogs This is a support group for owners of dog's with gme/nme. You can also get information regarding Dr. Sisson's protocol that has had a lot of success with this horrible disease. |
God bless my little yorkie Hi MIAGIRLSWEETI noticed your post was in early September, so you might have already confirmed the cause of your dog's disease. I am almost certain it is GME/NE(necrotizing encephalitis). I am sharing the story of my yorkie here, hopefully that can help others in the future. I understand your feelings as I just went through far more horrible experience during the past week. My littleyorkie was perfectly healthy untill he had an intense seizure the first time one night about a week ago, lasting for about 2 or 3 minutes, I was so scared and thought he was gonna die immediately. But he managed to come over it and walk around. He then had another one around 3 o'clock in the morning. He looked quite normal the next day and because we were travel in another country so we did not take him to vet immediately. Unfortunately, in the following evening, he had seizures three times within half an hour. When we took him to emergency hospital, he could not stand. Again, he had a really bad seizure in the emergency room which last a few minutes, he was crying all the time and totally lost consiousness. The doctor sedated him and gave him phenobartital, and he stayed in the hostpical over night. We took him back the next morning, and he started to walk in small circle to the right, and he could not accurately located the food and water. The doctor suggest us to take him to see neurologist because she suspect he has cancer or tumor in his brain. We then immediately drove back to our country and on the way back home, he had small seizure a few times, partially around the head and neck, not full body. He panted a lot. He looked fine when we back home, he even happily walk and run for about an hour, I thought he has recovered and I was so happy. We called our vet and booked an appointment next afternoon. Next day, he woke up quite weak, he could not stand stable on his back legs, panting a lot. I thought he need some fresh air and took him to a walk. He walked in small circles frequently, then he started to have white foam out of his mouth, immediately drooling. I was heatbroke, called taxi and immediately sent him to the vet. The vet gave him catherter and phenobarbital again and keep him in the hospital. We managed to squeeze in an appointment with neurologist two days after due to his urgent status. Because the hospital is closed at night, we had to pick him up at night and planned to send him back the next morning. When they handed him to my arm, I noticed he seems unconcious, and he twiched his head all the time. After being put on his bed, he finally lied down, with his eyes open all the time. About thee hours later, he started to have partial seizure again, and started to stretch our all four legs and pull back his head, and his body turning hard. I was devastated and called my vet, and she suggested us to send him to emergency hosptital immediately. When we got to the hospital, he seems dying. They put catherer on him again, sugar injection, oxygen, blood testing, x-ray on chest, and kept him there. I called a few times during the night, and he was not doing better. He was basically unconcious, none-responsive, and paddling all the time. Once again, the emergency hospital called the critical disease center and finnaly moved our appointment to the next morning. I was warned to be prepared to lose him. Then the next morning, I was finally on my way sending the poor yorkie to a neurologist. His situation deteriorated so fast and so drastically and I alwasy felt like fighting for every minute and second. He was extremely weak, with catherers on both legs, tongue out, right eye popping out. He was so weak but he still crying from his throat, and paddling. I was devestating and desperate. I had the feeling, this is it, the end. Then we saw the neurologist, and for two days they did all sorts of tests, CT (MRI was canceled because his poor response to anethesia), spinal tag, ultra sound, ... everything you name it. His right brain is swelling, and there is no tumor. I was called again 3 o'clock in the morning that he was dying, because his breath became harder and harder. They asked whether to let him go, or put him on oxygen ventilator which cost 2000 dollars a day. We had fighted such a long way here, I told the doctor to do whatever they can to save the dog. I kept crying after that, and two hours later, they said he seems doing okay with the ventilator. Another morning, the spinal tap results could not be confirmed, they cannot be sure the brain inflammtion was infectious inflammation or NE. So they had to treat him in both way, manage the balance carefully before the result comes out. We were told the result will not come out on weeked, so yorkie has to wait for another two days with ventilator. Another two day's suffering for both the dog and us, but we could not do nothing but wait. I suspect whether yorkie can wait that longer. Fortunately, this morning when I called them to check the status, they said the result was sent back, and it is confirmed to be NE, and they are starting immunsupress medication on him. We are still anxiously waiting how he will respond to the treatment, he has been and is still completely sedated with the oxygen ventiator inserted into is throat now. All is uncertain, but we are praying that he could finally wake up and I can hold him in my arm again. Quote:
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Mia girl's Making Progress!! Hello and I hope your little Yorkie is doing much better!! Mia has been on Prednisone, Cytosar infusions and Leflunomide. She is still have some circling but with less frequency and mostly with excitement. She lost sight in her left eye during this crisis. She is on Phenobarb but has not had any further seizure activity since her initial hospitalization. She walks mostly in straight lines and even hops when she is in a hurry! She responds to her name right away when called. She actually barked last week after coming home from her Cytosar tx! I am very pleased with her progress over the past month! We are going to see a new neurologist in the next week to get closer monitoring of her care. I am not a happy camper with the resident at the vet teaching school! Where do you live? There is alot of resources that I might be able to help you with.:) |
Little Yorkie was gone Monday morning (Oct 19, 2009) at 8:25. When I went to visit him in the hostipal on Sunday, he was doing well. He was still on the ventilator, but he was lying there with great comfort. He reconganized our voice and he was trembling although he could not move at all. His bloold pressure suddenly went up the moment I was in the room and talking. He responded promptly when we touched his eyelid. Doctor said everything was normal with him and his breath gets lighter and lighter, and they hoped him to get better every hour and were prepared to get him off ventilator and let him breathe on his own. I was so excited and thankful, I thought he would soon come back and I could hold him in my arm again tomorrow. Doctor called the same afternoon and updated that he was off ventilator and he was doing fine. We prayed the whole night and count each minute on the way of getting him back. We woked up at 3 AM then 4 AM in the morning, and no emergency call and we thought he has passed the most difficult time. We are so ready to touch him and talk to him soon. Then at 4:50, my phone ringed and the doctor called in and said he was breathing with difficulty. She said he has liquid in his lung and she would like to do some treatment although it most likely to be helpless. I was like being knocked down from heavy to hell. I don't understand why this, the day before they did ultrasound all over his chest and abodomen and said evrything looked normal. Then in the next four hours, I kept walking and trembling in the dark living room, and praying the god not to take him away from me. Finally the doctor called and said they were doing treatment and he was getting better, but suddenly there is blood coming out of his chest and his breath stopped. There is abosolutely not possible to get him back and she euthanized him. That is it, with full of hope, joy and anxiety, I was waiting for the miracle to come, but all of a sudden, he was taken away. I could not accept the fact, I lept recalling every moment in the past week since he got sick, regretting there might be a different result if I have done this or that.... But when I stand before his empty cold canine, there is only one truth in reality, I lost him forever. |
Your Painful Loss I am so very sorry for your loss, I had hoped everything would be ok after your email. I believe that if the seizures had been controlled better at first, maybe the outcome would have been much different. Mia never had a seizure at home. She started to develop a seizure just prior to my departure for the ER and half way had her first. They immediately took her back and started Valium IV and then the Phenobarb immediately. She had 2 more seizures, another one approx 30 min after the first then another one the following morning around 0400. The ultimate danger with seizure activity is the hyperthermia which can kill brain cells. They were treating her elevated temp the entire time and in fact had ice packs and alcohol wipes for her transport to the State Vet Teaching School Neurologist the following day. I did not waste any time after this episode. She immediately started on high dose steroids and her first Cytosar chemo treatment which halted her GME progression. I also have other Yorkies and I do believe that I know more about this disease than most vets including the clueless one I had to start with. Shame, they go through all kinds of clinicals and I as a RN had to tell my vet that Mia had hydrocephalus symptoms which it definitely was ruled in that she did!!! Instead, a full precious day was wasted due to her insistance to do an Addisons test which of cause she didn't. Borderline Potassium/Sodim ratio depression but she chose to ignore my comment about the circling that had JUST STARTED!! Her comment "well, I have never read where circling was a symptom with this (Addisons) THEN, I should have ran to the first closest vet within my locality. Anyway, Mia has improved, less circling, cognitive functioning improving, actually is becoming very vocal now! We have started to taper down the Prednisone with her Leflunomide on board for a litle over 3 weeks now. She received her #3 Cytosar treatment last Friday and I am not only switching Neurlogists but also her PCP. I hope you will seek out another sweet dog, one that really needs you, a shelter dog that realy needs the love you have to give. Yorkie baby is doing fine now with the thoughts that there is no more pain and suffering over the Rainbow Bridge. You will see her again some day. Take comfort in knowing that she knew you were there when you needed her most. God Bless You and I will think of you in my prayers. Marjorie |
Help Hi Jerry- I just sent you an email on this. My baby is going through the same thing right now and I am torn on the chemo. She had her first dose and is on the predisone daily. Did you notice any side effects from the chemo? I hope your baby is doing well. Please update me and give me any advice you can give. Thank you! Christine |
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Btw, I forget to mention that with chemo, Eli didn't suffer the side effects of vomitting or diarrhea (which some dogs do experience and you should let the vet know) and they will try another agent. |
I apologize for not seeing this thread sooner. In answer to your question, Gidget is still alive and is now in remission. She is off all meds and doing great. Here is the link to the site with information and a support group that will provide you some hope. NewGMEDogs : NewGMEDogs A photo of Gidget and an update on her condition is on the Yorkie Angel Patrol site under Faces of GME/NME. gmefaces |
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I'm so very sorry for your loss. I really don't think a day or even 30 days would have made a difference. Between the chemo and the disease itself, that's alot for any little dog to handle. Please don't blame yourself. I'm sure you did all you could... I'll keep you in my prayers... |
Coquette Thank you much for your reassurance. Awaiting autopsy results to hopefully clarify what happened. Last night was the first night I didn't cry. I adopted Coquette and her parents when she was 3 years old; her mistress wanted a cat instead of these three guys. She was born dead but was revived. Started having seizures at 8 and was misdiagnosed with GME. After 6 months on heavy duty steroids and anti epileptics the neurologist diagnosed cause as a chiari lesion, tapered steroids and balanced out the epileptics and she was going well. Three months later, a week before Xmas, another MRI and she was diagnosed with a tumour on lumbar spine totally unrelated to the seizures. Surgery was not an option due to location- with nothing to loose, with the neurologist's assistance drove 9 hours in a snow storm to have her operated on three days before Xmas. She survived the operation, the anesthesia and despite surgeon's prognosis, taught herself to walk again. Pathology results - schwanoma tumour. That was three and a half years ago. Since March of this year we have been tapering her anti epileptics and she has been seizure free. From something like 20 something pills at 4 different times of day, we were down to twice a day that Sunday. Up until Tuesday at midnight she was just about as normal as can be. Wednesday morning 4:30 a.m. she went into status epilepticus, tried valium injections at home; next an MRI showing inflamamation &/or brain mass totally unrealted to the two previous brain events. Seeing she had been such a figher, we decided to take it day by day. Her heart stopped the next morning and we decided to let her go rather than to resusitate, now I don't know whether I made the right decision that maybe with further treatment she would have come through or maybe if had heeded a few warnings signs of the previous two weeks, she would still be here. I have omitted the details of the roller coaster ride of the last four years but I just cannot accept that she's not here. She was doing so well - still in shock here. But thanks again for the reassurance, but I feel I dropped the ball. C.B. |
Oh my gosh! That all had to be so difficult. Sometimes when disease progresses with a vengeance like hers seemed to be doing you have to really evaluate her quality of life. Sounds like she's had quite a few things going on. I understand the 'dropping the ball' feeling. Had it bad when my first Yorkie was PTS at 16 years due to osteosarcoma of the jaw, and when I let my Maltese pass away on his own at home of hermangiosarcoma, inoperable tumor on his heart. I think we get into the habit of doing all we can for them, that when they pass, there's an immense block of time that would normally have been spent on their day to day care, and I was just left feeling like if I could have, should have, would have done more, they would still be here. It is heartbreaking, to say the least. It's sad too, but we have to decide if they are alive for themselves, or for us. In any event, when they go, they are relieved of their pain and suffering, as our pain and suffering increases immensely at our loss of them. We can only find peace in our hearts to know we did what we could, in the end the result will always be the same. They will be at peace. It's got to be hard waiting for those results. I will pray that you get the answers you seek, that they put your mind at ease, and reaffirm to you that you did everything possible, in your power. And even if you find you could have done more, know that you made the final decision out of the love you have for her in your heart, and that you helped her by ending her pain, and in turn you gave her wings to fly Home to be with her Maker, and allowed her to go on to her final journey to be with Him. And know that you will see her again... next time for all Eternity. You were her Angel here on Earth, now allow her to be yours, in Heaven. May God Bless You. |
Me again Thank you for listening to me. It will be 5 weeks tomorrow. I did hear what you said and I will take it to heart. How do you post your pictures of your pooches? I would very much like to post hers. |
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Coquette's mom, I am so sorry about your loss. She was very lucky that you were her mom. I don't think we can ever prepare ourselves for losing our babies. I understand how deep your loss is, and I hope the pain lessens for you in time and that you can find peace. |
Thank you. Hanging in here. |
I just wanted to let you all know, we are praying for all of your precious babies. Zhoie sends many doggy snuggles and lickies, XXOOXXOO. Your babies are so blessed to have you all ! :hands: |
I hope you continue to come to Yorkie Talk. I found this forum last August when I was looking for information online about irritable bowel. It really is a wonderful community, and it helps me a lot to come here. My little girl, Ashley, passed away two months ago, a month before she would have been seventeen. She was with us since she was a baby, and our home is so empty without her. Love lasts forever, and like her sisters, she will always hold a very special place in our hearts. It's hard to see beyond the pain, but I hope each day gets better for you. If you need some support, just let me know. |
It has been helpful coming here. Some parts of the day are pretty bad but overall I am doing somewhat better. I realize that even if she had made it that day, whether it was NE or GME or a brain tumour it would have been painful for her to linger; this way it was over quickly and painless. And I did get a chance to hold her in my arms and letter her go. She was a very special girl and I was fortunate to have her in my life. I wish I could clone her - it would be such a joy. I am still awaiting the results of the autopsy. I am hoping that will give me some closure. Not many people realize that it is the same as losing a baby. And I thank all of you for listening to me - it has made it easier to have others with whom to share my pain. P.S. Can someone tell me how I can post her photo? |
I 'm feeling a lot of what you are feeling right now with Ashley. She was doing so well just a few days before, and then we just didn't like the way she was acting. I took her immediately to see her doctor, and he thought it was just a stomach bug. He wasn't concerned, but I should I have stressed more how worried I was. He had just seen her five days before when he told me how amazing Ashley was doing, and he told me to give it a couple of days. She died in my arms at home. She cried just before she lapsed into a coma; I thought she was afraid because she would get scared if she was nauseous or her stomach bothered her. Her cries have since haunted me. She had had bloodwork done not long before, and it came out good. I may be wrong, but because she got lethargic so fast and spit up foam a couple of times, I think it might have been her kidneys failing. I just don't know because that had never been a problem. I keep thinking we might have been able to save her if we knew, but then I think that I wouldn't have wanted her to suffer just because we didn't want to let her go. She was almost seventeen and we were so lucky to have her with us for that many years and to have her be pretty healthy and active. I'm glad it's getting easier for you. I know how difficult it is when you put all of your heart into trying to care for and protect such a precious little one. I hope each day the pain lessens and the happy memories start overtaking the difficult ones. I'd love to see pictures of your baby. This was copied and pasted from the frequently asked questions on the forum. On your profile page, you click on the albums on the right hand side and go to add an album. It's better to attach pictures rather than linking them. The biggest problem I had was resizing the pictures. The digital files that you have are probably too large, and they need to be made smaller. It tells you how to do it here. I used my photo editing program to resize mine, but this is probably easier. For posting pictures on the Forum side of YorkieTalk, please try to post pictures as attachments rather than linking a picture from another site. Long-term, the picture may stop working via linking, whereas if it is saved as an attachment, it will never be lost. There is a maximum filesize of 200KB for JPG/JPEG files, and 150KB for GIF files. Any files bigger than those will be rejected as attachments. Most digital camera files will be bigger than the maximum filesizes. The easiest way to resize your photo would be to use a program that can resize your picture, such as Irfanview (which is free and downloadable at the link below). The maximum filesize is to save some space on the forum servers, as well as help out the dial-up users. By uploading pictures as attachments, dial-up Internet users can opt to view the picture if they would like and not be forced to download huge files within a thread. Download IrfanView The best picture sizes to use for attachments is either 640 by 480 pixels or 800 by 600 pixels if you want a bigger picture. Here is a guide on using IrfanView: Irfanview Tutorial After you have made sure your pictures are under the maximum filesize, you can create a New Thread or Reply to a message and add an attachment to your post. Click on Manage Attachments and click on Choose to find the picture on your computer that you want to upload. Then click Upload to upload the picture, and Close Window after you are finished uploading. Then click on Submit New Thread or Submit Reply as normal. If you have any questions on picture posting, please reply to the thread at the link below: http://www.yorkietalk.com/forums/sit...ting-help.html |
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