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I get to go to NIH!! Finally I will get some answers and not the run around. For those of you who don't know me I have lupus and get seizures that have baffled many doctors. I also have Sjogren's and Hashimoto' and auto immune hepatitis. I'm only 36 and feel like I'm 86. I am so excited and nervous at the same time. My Mother actually worked there when I was a young girl. It's 2 hour drive, but they are the best in the world!! I can't wait to get better. Thanks so much for everyone's prayers and I'll let you know how it goes. I'll have to wait a while before they will see me, but it's worth it. :thumbup: :thumbup: |
I'm so happy for you!! Hopefully you'll be able to get some answers and treatments there :) I'll continue praying for you :) From your posts, I can tell that you're a wonderful and very talented person. |
Oh, I've been thinking about you. My thoughts and prayers have been with you. I don't know what NIH is? Did they ever do Cat Scans on you because of the dizziness? Just curious. |
I'm SO HAPPY for you and the BEST OF LUCK at NIH - you sound wonderful today and that has to really boost your moral.....I really hope you can get some relief and if anything - they will be able to be more accurate on your treatment right ? Way to go Michelle - that's the best thing I've heard all day and high fives to you girl ! |
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I'm so glad for you! Good luck! |
We are all wanting the best for you Michele. *~~*HUGS*~~* |
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Good luck. |
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Good luck! |
Oh that is great news...good for you- I truly hope you do not have to wait too long- |
Michelle I am so happy for you....you deserve to feel better and finally get some answers!! You are such a strong woman and I admire your courage....I am so glad you are able to get in with the NIH!!! I will continue to pray for you as you wait to hear something.... |
I am so happy!! I am so happy to see this, someone gave me the link. I have been so worried about you. I got a new email address Michele, frmme2u@min.midco.net. I am glad you get to go there!! I pray that they will be able to help you.... You are such a wonderful person!! HOpe you can start painting again soon too!! I know how much you love that... Keep in touch Michele Melissa |
That is wonderful news! I hope they can provide you with the answers you deserve! Best wishes, and let us know how your visit goes! |
This is good news . You are in my thoughts and prayers . |
I sent you a pm. We will be praying for you and your family. michelle |
Oh, tons of hope for you coming from Virginia. I have friend who suffered for years with mis-diagnosis....she'd gotten several that you mentioned....turns out they were ALL wrong. She has lyme disease, still has a ways to go, but is getting the correct treatment. Good Luck!! |
That is great news, I'm so glad, hopefully you will get some answers and they will be able to help you. You're in my thoughts, often. ;) |
I talked to some people at NIH today! Oh they want me! I am so happy. I will have to wait to get into their system. I have great insurance but everything is FREE!! I couldn't believe it. I think I've found the right place to go. I will still follow up with all of my reg. docs, but I have so much hope now. Thank you all for all of the support. You will never know how much you guys have meant to me!! :love::love::love::love::love::love: |
WAY TO GO!!! I'm sure they will be a great help to you!! We have a friend who used to work there (AIDS research) and from what I understand they always have the latest and greatest!! Good Luck, and BIG hugs!!! |
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