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-   -   Muscular Dystrophy (https://www.yorkietalk.com/forums/off-topic-discussions/139939-muscular-dystrophy.html)

yougetthesmiles 07-27-2008 05:10 PM
Muscular Dystrophy
 
I started taking care of a elderly man who has Muscular Dystrophy 2 weeks ago. It's a 24 hour shift job.

I just can not believe how awful this disease is. This poor man has been in a wheelchair for over 30 years. Bless his heart, he is the most sweetest and kindest man ever! His wife has passed away and they had no children.

If anyone has ever dealt with this disease I would like to hear from you, any advice would be appreciated. Coming in August, I will be having more days and I would like to know how you handle this disease.

celstu1 07-28-2008 06:24 AM
I have no advice or anything, I just wanted to say that you are wonderful taking care of him! What a sad story, you probably brighten his day so much! I wanted to bump this up to see if you can get some advice. :)

yougetthesmiles 07-28-2008 11:09 AM
Quote:
Originally Posted by celstu1 (Post 2142867)
I have no advice or anything, I just wanted to say that you are wonderful taking care of him! What a sad story, you probably brighten his day so much! I wanted to bump this up to see if you can get some advice. :)
Thank you very much! :)

Patti 07-28-2008 12:27 PM
I don't know anything about it but just glad you will be able to help take care of him. It must be so scary to have to rely on people 24/7 and so great when you get someone like you.

yougetthesmiles 07-28-2008 01:25 PM
Quote:
Originally Posted by Patti (Post 2143736)
I don't know anything about it but just glad you will be able to help take care of him. It must be so scary to have to rely on people 24/7 and so great when you get someone like you.
Thank you so much patti!

I have been taking care of the elderly since I was 18, I started out working in a nursing home and I did that for a year and I hated it! It saddens me to see so many people get so little care in a nursing home.

marcerella02 07-28-2008 01:49 PM
how old is he??? People with muscular distophy, as a rule, don't live past their 30's. The muscles in their heart and lungs stop working and they pass away. Are you for sure that is what he has?

yougetthesmiles 07-28-2008 01:58 PM
Quote:
Originally Posted by marcerella02 (Post 2143908)
how old is he??? People with muscular distophy, as a rule, don't live past their 30's. The muscles in their heart and lungs stop working and they pass away. Are you for sure that is what he has?
Yes, that is what he has, he is 78 and did not get MD till he was in his late 50's

marcerella02 07-28-2008 02:10 PM
Quote:
Originally Posted by yougetthesmiles (Post 2143922)
Yes, that is what he has, he is 78 and did not get MD till he was in his late 50's
AH there we go! lol.. i was thinking he got it when he was 2-6 (which is normal) but that makes more sense. he is VERY lucky to be doing so well.

what type of info do you need? I am taking a special Ed course and we have discussed MD. I'd be happy to help :)

yougetthesmiles 07-28-2008 03:16 PM
Quote:
Originally Posted by marcerella02 (Post 2143951)
AH there we go! lol.. i was thinking he got it when he was 2-6 (which is normal) but that makes more sense. he is VERY lucky to be doing so well.

what type of info do you need? I am taking a special Ed course and we have discussed MD. I'd be happy to help :)
I was just wanting to know if there is anything special I should know on what to do or what not to do.

He is pretty good about giving direction. He just does not have hardly any body control or movement. It's just so sad.

marcerella02 07-28-2008 03:23 PM
Quote:
Originally Posted by yougetthesmiles (Post 2144095)
I was just wanting to know if there is anything special I should know on what to do or what not to do.

He is pretty good about giving direction. He just does not have hardly any body control or movement. It's just so sad.
do you know which type he has?

yougetthesmiles 07-28-2008 03:51 PM
Quote:
Originally Posted by marcerella02 (Post 2144111)
do you know which type he has?
No, I guess I don't. I know he can't move his legs, they are in a bent position. He can move his hands slightly. His head is in a downward position.


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