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My Luci is Worse Than Expected I first joined YT about 2 weeks ago when I was looking for some info on liver diseases. Since then, Luci has been diagnosed with Microvascular Dysplasia. At first this was alarming, but with a low protein diet (Hill's L/D Diet) and daily doses of denosyl I was told she would live a close to normal life span. On Friday I learned that she also has a clotting disorder (basically her blood does not clot and she is at risk of spontaneous hemorrage...external or internal). The vitamin k she was on for 2 weeks did not help with the clotting. Her blood test also showed low levels of fibrinogen (another of the clotting factors). Apparently this is secondary to the MVD. I was told she would be lucky to live another year or two. :cry8: I am devestated...she is only 2! She is my baby. The vet is awaiting feedback from a specialist, so I hope they are wrong. But the thought of losing my baby so soon is overwhelming. Has anyone heard of this combination...microvascular dysplasia with a blood clotting disorder? Any advice or experiences you may have had would be helpful. Thank you. |
I cannot help u with that, but I hope your baby gets better really soon.. I cannot even begin to imagine your hurt and frustration. god be with you at this time. keep us posted.... |
I dunno if this helps but there is another member on this board with a baby just like yours .. user name is Cookie2, you might want to im her... here is the link to her post!http://www.yorkietalk.com/forums/showthread.php?t=33553 |
I am so sorry to hear about your baby Luci! We will be praying that a second opinion will give you much more encouraging news. Please keep us updated! |
I am so sorry about little Luci. She is in my thoughts and prayers. :girl_hug: |
Go to this web site for liver shunt and you can get information from people that have this problem. This web site can help you get the information you need on MVD. So sorry to heart about your little one being so sick. www.livershunt.com |
Oh I'm so sorry to hear this! Sometimes though you hear Dr's say "they'll only live a year" or whatever and they are proved wrong! Hopefully this will be what Luci will do! |
I'M SO SORRY I DON"T KNOW OR HAVE EXPERIEINCE... With your baby's medical disorders. I am so sorry this has happened. All you can do is what you are already doing, taking care of her medical needs and giving her all your LOVE. You will Both be in our thoughts and prayers. :( |
Sorry i don't have any advice because I am not familiar with this. I just wanted to say I'm sorry your baby is sick and hope she gets better soon. |
Oh my gosh, that all sounds terrible and I am so sorry you are both going through this!!!! I am not familiar with what she has going on. I sincerely hope a specialist has some incouraging news. You are in my thoughts and prayers. |
That's such sad news for you and hopefully they're wrong :( ....you must be so devestated but pleases try to think positive...These little guys can be fighters and she may surprise you..... Prayers for you are on the way... |
I am so sorry. Hopefully the specialist can give some insight to other drugs athat may help. Also, there is research going on so hopefully they will come up with something that will work. I would do some research on your own strating with the big university vet clinics. My Cali is going to have a liver biopsy soon to test for MVD. I am so scared. I will keep you in my prayers. |
I"m so sorry to hear about Luci ,i will be praying for your baby . |
:getwellso I am so sorry to hear your baby luci is having these problems. and I can only offer you and luci a hug and pray that the Doctors are wrong! and I would think if the Dr is having a specialist see luci maybe he isn't quite sure? So I will pray your baby will be safe and I hope you will hear good news! Blessings to Luci and your family :lovewings |
I feel so bad for you and Luci! I hope and pray that Luci proves that vet wrong! Hugs to you! I'll pray for Luci! |
Gosh Denise, I am so sorry to hear this :( Don't give up on her though! Villette is right, these little ones are fighters and they do surprise you sometimes. I will definitely say a prayer for your furbaby. Please keep us posted on her condition... |
Im so sorry to hear this news about your baby. I hope they are wrong. I will keep her in my prayers. sending her hugs from all of us. |
Oh, I hope everything goes well for you guys. You are in our prayers. |
I am so sorry you got bad news. I do not know of any advice to give, but this is the right place to com. You are both in my thoughts and prayers. |
Oh my! I am sorry to hear this! Mojo and I send hugs and kisses and get well wishes! |
Thank you all so much for your thoughts and prayers! It truly means a lot. It's amazing how much a 5.5 pound creature can fill a life with love. I too hope they're wrong...I can't imagine her being gone in a year or two. Just can't imagine it! I've done my own research on MVD. The problem is the clotting disorder that's secondary to the MVD which I can't find any info about. The stuff I find about MVD doesn't mention secondary conditions...at least not what she has. I do have to do some more research on maybe hemostasis to see what I can find. I will post an update when I have one. I'm hoping the vet gets back to me in a day or two...if not, I'll call her. I know she's working hard researching this, so I want to give her adequate time to find all she can. Thank you again for all of your support! I'm sure the shock will wear off eventually and I'll be able to look at her normally again instead of thinking her life is short. But the words, "I'll be surprised if she lives another 1 or 2 years" is still so fresh. I hope they're wrong...from my lips to God's ears. |
The vet's office called today to let me know that they are actively researching Luci's condition. Apparently the vet has been in touch with Cornell University and they have sent her some information. Once she reviews that, I should be hearing from her in the next day or two. |
Hi Denise, Cookie was finally diagnosed and I was told by the surgeon that they found it was Mild Microvascular Dysplasia (MVD) he has no other problems associated with it though. Let me just tell you that they are little fighters/ Cookie turns 2 yrs old in 3 weeks. I have never heard of this blood clotting disorders associated with MVD. I know how much you must love this little girl. I know you are extra careful with her to avoid injuries etc... I treat Cookie like a baby and will do anything to give him a long happy life. I know you are in shock and have probably cried so much over this. I cried for several days. I could not even open my mouth to say that I might lose Cookie.The surgeon suspected it was Liver Shunt but Thank God it was not! I would burst into to tears at the thought. Knowledge is power and once you get all the info you need on this disorder you will have a better understanding of it and will probably find helpful tips. If you need to vent ,send me a PM anytime! |
My dog didn't have microvascular dysplasia, but did have a clotting disorder called thrombocytopenia. This was certainly a terrible and scary experience for both of us. She had no platelets and her blood didn't clot. I came home from work one evening to find blood from one end of my house to the other. She had thrown up blood all over. We went to the ER and they didn't expect her to live through the night, but she did, and many weeks later after a ton of medicine, she finally recovered. It was no fun. I'm sorry for your little guy. What he has is obviously different from what my dog had. I'm sorry and wish you the best. Carol Jean |
Jewel's Fighting for her Life and Luci will TOO! You must be so heartbroken but keep hope. Research the conditions, contact doctors at various University Veterinary Hospitals look into alternative medicine doctors (even if you may not comfortable with it, there are other options). Back in June, Jewel was diagnosed with GME and we were told we would be very lucky if she lived a few days, weeks or a month. She is still with us today! You can see how well she is doing on my Avatar. Doctors CAN be wrong! These little bundles of fur have more heart & determination for life and are truly amazing teachers to us lowly humans! I believe with all my heart that they take their cue from us Human Parents. If we are sad around them, they WILL pick up on it and get depressed and sicker. If we are happy and encouraging, they will FIGHT to get better! All they want to do is to live and make us happy. Please keep all of us updated on Luci. We are all WILLING her to get WELL! |
Another Blood Test I took Luci to the vet this morning for another blood test. My vet spoke with a hemotologist who doesn't think the clotting disorder is a result of the liver disease. He wanted to do a test on factors 1 & 10 to see if she is deficient with those (there are 12 factors that clot the blood). The test is going to be sent to Cornell University for analysis. My vet is fantastic! :thumbup: I thanked her for her efforts in researching what is wrong with Luci. She said she will continue to do so until we find out what is going on. Right now I'm just taking one day at a time with my chalupa. She's laying on my lap right now...she gets exhausted going to the vet's, especially when she has her blood drawn. :angel2dl: Thank you all for your responses and your information. I am so happy to have found YT. The support I have received here in the past 3 weeks since joining has been absolutely amazing. Since Luci is my first pet ever, I don't know what lies ahead. This is a completely new experience for me so I thank you all for your words of encouragement. :hug: |
What is GME? Quote:
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My heart goes out to each and every one of you whose baby is sick. We lost one at the age of 3 due to a liver condition. Had it been caught sooner she may have lived longer, but this happened 10 years ago. It is heart breaking. I cry for a week when I lose a pet. May God give each of you the strength to get through this. Hugs all around. Jeanie |
When Mac was a baby I was told he would not survive the night and I should consider putting him to sleep. He will be 2 in June. Love & prayers work miracles. :heart to |
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