Oh wow, 15, thats amazing, i hope meesha has a long life, i thought where she was diagnosed so young, i wasn't sure.I've had her wearing a buddy belt since she was little, nothing's ever gone around her neck,. Do you have any other tips of how you've managed it? Has he been on meds his whole life, or just the cough suppressant and hydcodan on hand for when needed? Any special foods you give him? I really appreciate being able to talk to others who have gone through this, you must be doing all the right things if hes had it since he was 2 |