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Originally Posted by ladyjane I am so sorry that you are going through this.
As for the questions about diagnosis, my reading of the OPs post is that funds are limited so an exact diagnosis is not determined; but the neurologist ruled other things out and they usually do know what is going on. Unless a person is going to treat, there is not much sense in doing a lot of testing....and, as she was informed, the outcome is usually not a good one. If it is GME which is what I am guessing they think, then treatment would be pretty much what they are doing.
OP, as for homeopathic, I dare say it is not something I would attempt. This is a deadly illness and the steroids are the best chance of buying time so to speak. I hate to sound negative, but it seems that the neuro was pretty forthright about this.
I will keep you and your baby in my thoughts and prayers. I hope she responds to the meds and you have some good quality time with her...no matter how long that will be. Remember that none of us or our animals have an expiration date, so live each day to the fullest! |
Yes, that's what I was thinking but didn't want to say it aloud
I will keep your little one in my thoughts. How very sad