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Originally Posted by dwerten  not sure yet as he just had the surgery yesterday as they thought there was one shunt from scintigraphy and when she opened him up there were multiple so he was inoperable  I am sure he will email me what she is going to keep him on - she did say it was great that he was not showing any signs and he is i think 2 or 3 years old too |
Oh ok.
When you talk to him tell him to try to not be too upset. It is great that the boy has been dx and can go onto the right path as far as food and supplements. Honestly I don't agree that he has 5-7 and 9 yrs max. Look at Olga'c Clara, I think she is now 9 and is doing really really well despite being close to death and not given much time to live either. Olga is really really great when it comes to the aftercare and the proper food and supplements and testing. If he needs to talk, she would be who I would recommed as well
