Thanks Patti for the upbeat story!
Thanks for all of the well wishes. Yes, this is a crazy time and all of the support is much appreciated! The sleepless nights are also starting to get to me.
Ladysmom, I really have done everything for my little girl that I could have possibly done to help her.
Yes, when she started having the seizures she had the bile acid tests pre and post eating. She had an ultrsound they couldn't see a def. shunt- they thought MVD.
Why did my vet put her on pheno? I have no clue. I just listened to him and followed his instructions, because he is the vet. It helped her, but we had to keep ajusting the dose because she would have cluster seizures again. She has continued to have seizures her whole life until recently.
Yes, she has had blood work done at least 2X a year. The levels are always crazy -again because of the meds.
The levels he just took- I have to call for ther exact numbers- were not that high he said. But, the liver is so huge it is pushing on her organs.
I will call him and ask what he thinks about the diet change from Hills L/D to this diet your are talking about. She is so sick right now, I don't know if it's a good idea to introduce the runs with the diet change.
I will also ask about the milk thistle.
I did read the article but, as far as REDUCING her pheno barb. I don't know how we could do that when she is finally seizure free. That would just bring her levels down and she would start up again.
Thanks for all of your input. I will check into Redbank.
Roxy's mom,
Maria
