Completely understandable, and such a shame it has come to this.
I sent you a PM. There I have posted another wonderful small group, at this group there is no bashing or rudeness at all to ever take place. It is a small group and I know for a fact there are a handful of precious babies that have the same condition as Lily, the format to the group is a little different than YT, but I hope that you join, b/c you WILL only get POSITIVE support and advice from other Mommas going through the same thing as you.
God Bless You
...and please check you PM from me