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Originally Posted by yorkiemini  Thank you Taylor! I had read that article and am researching the disorder pretty extensively. Always nice to talk with someone who has experienced it - that is why I reached out. Waiting for the rest of the lab work to come back, but she has had the best 4 days that she has had in the 5 weeks so I am hopeful we are on the right track. Like you pointed out it is not very common. She has the fact that she is very, very healthy going for her! |
I thought back when Callie was younger that she might have it but then like 3 years ago it turns out she has the opposite which is Cushings. I'm glad the medicine is working. I'm not sure if you have facebook but you might be able to find a support group on there. I have found one for Callie's Cushings and IBD and even though it can get a bit where some know more then others there can be some good info in just reading other peoples posts and stuff.