Atypical Cushings - Please Help!!!!! Nothing is working! Hi all! I am desperate for help and guidance! My Bella was diagnosed with atypical cushings in August of 2018. She had all the symptoms- excessive thirst, excessive eating, hair loss, excessive urination, pot belly, anxiety. She was tested and treated for a million things. Not normal Cushings. No liver disease (although her liver is huge). Maybe her thyroid. Her tryglicerides off the chart. Gallbladder issues. pancreas issues. The list goes on and I have treated her every step of the way because to be blunt there is not much I love in this world like her! She had a seizure over a year ago and after that I had to get to the real bottom of it. Most thought I was crazy to test her in Tennessee but I knew things were not right and after what seemed like forever of trying a million things I finally insisted on the test. Thank God I did. She tested positive for Atypical Cushings. Since then we treat her with:
1. Clopidogrel 1/8 of 75mg a day (since the seizure she’s been on this - MRI done no pituitary tumor to be found)
2. Omega 3 ultra concentrated chews
3. 3 mg of melatonin twice a day so 6mg total per day
4. Flaxseed lignans- 115 mg flaxseed hulls and 17.5mg SDG Lignans a day
5. Thyroxine 1/4 of .1 mg - was doing once a day started about a week ago twice a day
6. Fortiflora probiotic - 1 package a day
7. Ursodial 1/4 of 250mg once a day
8. Trazodone 50mg 1/4 twice daily- just started 2 weeks ago
I plan to get another ultrasound to see if the adrenal tumor is large enough to be seen. But really I need advice and if you all know of a specialist to go to. I live in South Florida but will go anywhere to help her. She is up all night now crying. Sleeps all day of course. It’s heartbreaking and it seems nothing I’m doing is working. Please any guidance is appreciated!
Thanks!
Joy
__________________ I LOVE my baby girl Bella!!!! She is my world!!
Last edited by joy and bella; 05-02-2019 at 05:42 PM.
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