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Originally Posted by Dayswalters  So my son is going blind and the doctors can't figure out why. So far the tests do not point to anything specific. At this point they do not believe that he will regain any vision and will lose the vision he has left. Without anything to go on, there is no treatment and they are running out of tests to do. How does a 25 year old deal with this and how do I deal with it? I can't make him better...I feel helpless and worried for my son. This is so hard too deal with...I can only imagine what my son is feeling. |
This is tragic......
There is a world reknown eye center here in Houston.... , headed up by Dr.Alice McPherson, Baylor College of Medicine. People come from all over the world to see this woman and her team.....I KNOW they are heavy into retinal diseases/disorders....she has a large team....maybe you could call her office and explane what is going on with your son, that you are desperate for answers, even a diagnosis, and you have not been able to get that as of yet. Maybe she and her team can see him.....I know you would go to any lengths to get help for your precious son....If I was in your shoes, I too would not stop looking for answers....and I would contact Alice McPherson for help of any kind....this is a doctor that would definitely be on my list of people to see my son.....leaving no stone unturned...this woman and her team is absolutely phenominal, and her reputation extends world wide....I just wanted to share this excellent physician with you in case you wanted to check her out.
I sent a patient to her years ago....he was given no hope to keep the eye sight in one eye....she saved this young mans eyesight, when he had been given no hope by many other professionals and experts.....