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Originally Posted by Dayswalters  He has been to the opthomologist and a neuro opthamologist as well as a neurologist and a few mores doctors I can't remember. He has a new appointment with another specialist tomorrow that is supposed to give us the where we go from here bit. His records have also been sent out to other specialists for input and suggestions. The only good thing so far is that he has several doctors interested in his case just because they are stumped as to the diagnosis.
On the up side, the guitar that was not supposed to arrive until Friday just showed up on our doorstep. He is still at the hospital talking with a counselor there but when he gets back from the hospital it will be waiting for him. I know it won't take away what he is feeling but I hope it will help take his mind off it for a little while. He will get his first lesson Saturday but he can unpack it and start figuring out how everything goes. |
Glad he consented to see a counselor. Hopefully they will help him learn some coping skills for the next weeks and months and the guitar will work to distract him and he can focus on it. Don't hesitate to let him take his temporary sedation when he needs it.
I'm so sorry he will have to keep seeing specialists but some team of specialists or one of the docs will one day hit on what is going on - something will show itself sooner or later. Don't give up on medical science, fight for a diagnosis sooner rather than later. It could be a combination of things, not just one disease process. Another hospital with another stable of specialists and different testing protocols will have to be his future until there are answers.
Has your son gone through anything traumatic or highly stressful in the last few years - had a close friend die, been involved in a bad car crash? Any other symptoms at all?
I know you must be utterly exhausted. Go to be early tonight and take a sedative yourself, get what rest you can. We'll be praying.