[yorkietalkjilly]

I'm so distressed for you that you all didn't get any definitive answers yet but the good news is there is nothing apparently imminently fatal. That's wonderful news in and of itself.

The tests and docs are obviously missing something or whatever disease process he has is too early to show itself. It's likely autoimmune in nature unless it's some odd quirk of a thing going on. I've heard many of the neurological autoimmune diseases are not easy to diagnose at their early stages and it can be a slog to get a diagnosis.

Has he seen an opthalmologist yet? If malignancies and fast-growing tumors have been ruled out, an opthalmologist might try him on a course of steroids to help any inflammation from possible optic neuritis, which could be what's affecting his sight right now.

Next step is keep going - see the best opthalmologist in town as he'll know if there is anything that can be done short-term and likely where to refer him next and what specialists to see next, how to get him help right now for dealing with his vision loss, get him started on what visual aids and coping classes are available, magazines and books on tape, etc.

If he's seen an orthalmologist already, I'd consult with another - the head of the Opthalmology Department at the largest, most respected hospital in the nearest big city if at all possible. That guy should be able to refer him on to the next right specialist to keep on working him up for a diagnosis. He needs to get in to see another neurologist who specializes in autoimmune neuro diseases - one who practices at a different neuro clinic and has a team of physicians who work with him for a whole new series of sets of eyes and maybe a few new different approaches in tests, treatment protocols. They will ultimately find out what is going on - sometimes it just takes a lot of effort.

And you need some support. Ask your son's neurologist or call your pastor or a local church, large MS clinic, to find out what support groups are available in your area for moms dealing with children going through hell. You'll help him more by helping yourself when you can. My prayers for your son, you and his father will go on.